Carmen Carroll

Grandma MeMe to our Colin Bear who was born with Angelman Syndrome. And I love photography (amateur/hobby/passion)!!

[FAST @cureangelman]

Today is a historic day for the Angelman syndrome community! FAST and the Angelman Syndrome Foundation (ASF - @angelman) are collaborating to host the Inaugural Angelman Syndrome Congressional Advocacy Day (ASCAD) in Washington, DC.

Read more:

https://t.co/J5Qh1fkbfw

[Carmen Carroll @Sheright]

@withers_fi So very sorry for your loss. ❤️🐾❤️

[FAST @cureangelman]

Did you see our exciting announcement posted earlier today? Easton Bryant breaks it down in 85 seconds explaining our new partnership with PENN to develop an investigational AAV gene therapy for AS!

❓ If you have any questions, check out our FAQs:

https://t.co/ZWmjmV6mCe

[FAST @cureangelman]

Calling all Florida residents! 🌴

Lisa and Ian Elliot, parents of Heath, who lives with AS, are hosting their 1st annual Hole Out Fore Heath Golf tournament in New Smyrna, FL on Saturday, Nov. 18!

Registration is open - register now:

https://t.co/ifppHBAKMQ

[4ocean @4ocean]

The face you make when you realize 4ocean has officially recovered 28 MILLION pounds of trash from the world's oceans, rivers, & coastlines 🎉

That's right, we just hit a new milestone!

RT to celebrate with the clean ocean movement.

[FAST @cureangelman]

Happy International Angelman Day!

In 2021 FAST France 🇫🇷 created a hugely successful video for IAD. This year, FAST France created a follow up video explaining different treatment options for AS, again from a child's perspective.

Check out the new video!
https://t.co/0QSzPiIIwC

[FAST @cureangelman]

We have a robust, strategic Roadmap to a Cure 2.0 with four main pillars. 🏛️

This year, we’ll be investing in each of the pillars - watch the 2022 Global Science Summit presentation from Dr. Allyson Berent to learn more:

https://t.co/WaXsKxDt6W

[FAST @cureangelman]

FAST is preparing for a future when drugs for AS may become available, and focusing on making sure treatments will be accessible to the community. 🧬

Read FAST Board member Lauren’s blog post about patient access to future AS treatments:

https://t.co/oPRCshTISb

[4ocean @4ocean]

WE DID IT! 25 MILLION POUNDS!

That's right, we set a new world record by recovering over 25 MILLION pounds of trash from the world's ocean, rivers, and coastlines. And it only took us 5 years to do it!

[FAST @cureangelman]

FAST parent Deanna McCurdy recently competed in the Breck Epic, a 6-day mountain bike stage race through the Rocky Mountains of Colorado 🚵‍♀️, in honor of her youngest daughter, Hayden, who is living with Angelman syndrome.

Read more about Deanna’s Trek: https://t.co/RwaKBKi9El

[Carmen Carroll @Sheright]

@4ocean This saddens me to my core. Thank you for all you do to clean up “our” mess.

[4ocean @4ocean]

That's right, you heard it here first folks...

Cool kids clean the ocean 😎

RT if you agree!

[Carmen Carroll @Sheright]

@pups_Puppies1 ❤️🐾❤️

[4ocean @4ocean]

4ocean Guatemala hit 2 million pounds pulled!

This achievement comes just three months after reaching their first million pound milestone.

Help us celebrate by dropping a 🌊 emoji in the comments!

[Carmen Carroll @Sheright]

@4ocean This is awesome!!!

[FAST @cureangelman]

It’s progress like this that gives us such hope!🧬🧬💕 See the full release here: https://t.co/wei1wQKtnn

#cureangelman #Angelmansyndrome #BetterDaysAreComing

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[FAST @cureangelman]

#ICYMI: In 2008, a group of visionary parents, led by Paula Evans, dedicated themselves to a singular mission: to cure Angelman syndrome.
Last week, we got some major news about our journey 💙

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[FAST @cureangelman]

@amazon Be a part of something bigger and link your Prime account to AmazonSmile today by visiting https://t.co/Aj9JpRbW5a.

#Angelmansyndrome #cureangelman #BetterDaysAreComing

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[FAST @cureangelman]

#PrimeDay is almost here—Did you know you can give back to your favorite charitable organizations while you shop on @amazon? 💡Through Amazon’s giving program, AmazonSmile, a donation will be made to FAST with each purchase all year-round, at no extra cost to you!

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[Carmen Carroll @Sheright]

@4ocean Been a subscriber since mid 2019. I don’t plan on stopping either. Wish I could do more. God bless.