Dr Simon Stones

🏳️‍🌈 • he/him • Global Patient Engagement Leader & Med Communications Specialist • Chair, @eular_org PARE Committee

[Dr Simon Stones @SimonRStones]

Never thought I would see the day! The best time at my #PhD graduation. 🎓

#phdchat #PhDone #PhDVoice #phdlife

[PxP @PxPHub]

Day 1 of #PxP25 is about what's happening and what's possible in patient engagement in #healthresearch. Excited to learn from this fantastic line-up of speakers today 💜
@JoabWako @nikhil_jayswal_ @JBBC @SimonRStones @joelvsarthritis @breastlessAfrik @patientispard

[PxP @PxPHub]

@JBBC “You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones #PxP25

[Silvia Aguilera @sil_aps]

In Munich 🇩🇪 today with the @eular_org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!

[BSR @RheumatologyUK]

@SimonRStones delivering the keynote lecture “From Patients to Partners: Shaping the Future of Rheumatology Together” #patientvoices

[PxP @PxPHub]

📢Sign up now for #PxP25!
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
#PPI #ConsumerInvolvement #ForPatientsByPatients

[Jean-Guillaume Letarouilly @JGLetarouilly]

Look forward to chairing with you this exciting final of #RheumaVision! Our 6 finalists will present their topics to a prestigious jury: @DrPoddubnyy Jette Primdahl Caroline Ospelt @SimonRStones. Audience vote will be essential so join us! 🎉

[Prof. Karen Woolley @KWProScribe]

Power in patient partnerships.
Do you have it? Do you share it?
Don’t underestimate the power of power.
Our preprint is live.

https://t.co/jwebfP35xR

@JanelleBowden @PGee51 @alexhaagaard @anitarena @anetto @CodiePrimeau @ATricco @KT_trainee @LLi_1 @HettyMulhall

[Krystel Aouad @krystelaouad]

💡 How can you effectively integrate patient research partners into your research projects?

👉🏻Watch our recent EULAR research webinar that brought together experts to discuss the updated EULAR recos and their application
👏🏻@MartinusPTdeWit @MurielElhai @SimonRStones
@eular_org

[Krystel Aouad @krystelaouad]

📣 Join us today for this important EULAR session on how to integrate patients (PRPs) into your research projects!

👉🏻 Gain insights into the recently updated EULAR recommendations on PRP involvement.
@MartinusPTdeWit @MurielElhai @SimonRStones Heidi Bertheussen

[EMEUNET @EMEUNET]

🚀 We’re excited to launch the EMEUNET x PARE Podcast Series!
Patient representatives will interview young experts on key rheumatology topics.
Help us make it relevant by sharing our questionnaire with your patients. 🙏
#EMEUNET #PARE
@milena_bond @krystelaouad @SimonRStones

[EMEUNET @EMEUNET]

🚀 We’re excited to launch the EMEUNET x PARE Podcast Series! 🎙️ Patient representatives will interview young experts on key rheumatology topics. Help us make it relevant by sharing our questionnaire with your patients. 🙏
#EMEUNET#PARE
@milena_bond @krystelaouad @SimonRStones

[EULAR @eular_org]

🚀Join us for our "How to integrate the patients' perspective in research? The value of the updated EULAR recommendations for collaborative research" webinar!

💻Wednesday, 05 February, 2025, 18:00 -18:45 CET

Register here👉 https://t.co/xlQx9hwQXa

#EULAR #Rheumatology

[Prof. Karen Woolley @KWProScribe]

What's a new year without new ICMJE recommendations? Not too many changes, but always worth another read. https://t.co/zRSucGvm0q

[Alessia Alunno @alessia_alunno]

📢 A @eular_org study group project!

Are you a person living with a #rheumatic and musculoskeletal disease? Share your thoughts on #cardiovascular prevention in this 15-min survey.

https://t.co/exTyeoCybS

Languages: 🇬🇧🇮🇹🇪🇸🇫🇷🇩🇪🇵🇹🇭🇺 🇩🇰🇳🇱

Thank you!

[Dr Simon Stones @SimonRStones]

@JackCooper92 I’m so sorry for your loss @JackCooper92. Thinking of you 💛

[Trishna Bharadia BA(hons), MFPM(hon) @TrishnaBharadia]

"Giving patients a voice at scientific congresses" - what are the opportunities for improving accessibility? Great discussion with @SimonRStones @networkpharma @eDawnlobban To watch a recording of the full discussion go to: https://t.co/fY0c1sbhVA

[Javier Rodríguez-Carrio @javierrcarrio]

♥Interested in #cardiovascular risk in #rheumatology? Experience in #inflammatory diseases?

Help us by participating in an international survey on awareness of @eular_org guidelines (10 min)

🔗https://t.co/BpvkSNx9hj

🔄RT and share with your colleagues

[Paul Studenic @Stiddyo]

The second Workshop round feedback during the #EULAR2024 #PARE conference:
@SimonRStones feedbacks the main synthesis of our 3 tables discussions on co-authoring publications #PRPs
Great insights
Reflections
Action plans for the future 🎢
Discussions could have continued😊

[Sjögren Europe @SjogrenEurope]

Day 2 of @eular_org #PARE2024

[Mrinalini Dey @DrMiniDey]

🌍 #PARE2024 continued with #WorldCafe on #PatientResearchPartners in research

🏃🏻‍♀️‍➡️ We’ve come a long way but still have a far to go

💡 We identified many challenges but also solutions- hopefully through continued discussion, we can make PRP involvement the norm