@JBBC “You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones #PxP25
Look forward to chairing with you this exciting final of #RheumaVision! Our 6 finalists will present their topics to a prestigious jury: @DrPoddubnyy Jette Primdahl Caroline Ospelt @SimonRStones. Audience vote will be essential so join us! 🎉
💡 How can you effectively integrate patient research partners into your research projects?
👉🏻Watch our recent EULAR research webinar that brought together experts to discuss the updated EULAR recos and their application
👏🏻@MartinusPTdeWit@MurielElhai@SimonRStones@eular_org
📣 Join us today for this important EULAR session on how to integrate patients (PRPs) into your research projects!
👉🏻 Gain insights into the recently updated EULAR recommendations on PRP involvement.
@MartinusPTdeWit@MurielElhai@SimonRStones Heidi Bertheussen
🚀 We’re excited to launch the EMEUNET x PARE Podcast Series!
Patient representatives will interview young experts on key rheumatology topics.
Help us make it relevant by sharing our questionnaire with your patients. 🙏
#EMEUNET#PARE@milena_bond@krystelaouad@SimonRStones
🚀 We’re excited to launch the EMEUNET x PARE Podcast Series! 🎙️ Patient representatives will interview young experts on key rheumatology topics. Help us make it relevant by sharing our questionnaire with your patients. 🙏
#EMEUNET#PARE
@milena_bond@krystelaouad@SimonRStones
🚀Join us for our "How to integrate the patients' perspective in research? The value of the updated EULAR recommendations for collaborative research" webinar!
💻Wednesday, 05 February, 2025, 18:00 -18:45 CET
Register here👉 https://t.co/xlQx9hwQXa
#EULAR#Rheumatology
📢 A @eular_org study group project!
Are you a person living with a #rheumatic and musculoskeletal disease? Share your thoughts on #cardiovascular prevention in this 15-min survey.
https://t.co/exTyeoCybS
Languages: 🇬🇧🇮🇹🇪🇸🇫🇷🇩🇪🇵🇹🇭🇺 🇩🇰🇳🇱
Thank you!
"Giving patients a voice at scientific congresses" - what are the opportunities for improving accessibility? Great discussion with @SimonRStones@networkpharma@eDawnlobban To watch a recording of the full discussion go to: https://t.co/fY0c1sbhVA
♥Interested in #cardiovascular risk in #rheumatology? Experience in #inflammatory diseases?
Help us by participating in an international survey on awareness of @eular_org guidelines (10 min)
🔗https://t.co/BpvkSNx9hj
🔄RT and share with your colleagues
The second Workshop round feedback during the #EULAR2024#PARE conference:
@SimonRStones feedbacks the main synthesis of our 3 tables discussions on co-authoring publications #PRPs
Great insights
Reflections
Action plans for the future 🎢
Discussions could have continued😊
🌍 #PARE2024 continued with #WorldCafe on #PatientResearchPartners in research
🏃🏻♀️➡️ We’ve come a long way but still have a far to go
💡 We identified many challenges but also solutions- hopefully through continued discussion, we can make PRP involvement the norm