kathleen sinnott

[Brian Wallach @bsw5020]

The only way we ever drive change is when people who are not impacted by a problem start to pay attention to it and demand change.

Thank you to those of you who are not impacted by ALS but have joined us to demand change. #grateful

[daniella ✨ @otradaniella]

people who still have one direction on their spotify wrapped in 2022 are true veterans

[I AM ALS @iamalsorg]

Our hearts are broken. Sandy Morris has passed. Sandy was not just part of I AM ALS – she was foundational to it. She either directly or indirectly impacted almost everything I AM ALS has done. We have no words to describe our grief and rage.

[Brian Wallach @bsw5020]

Please don’t mistake my optimism for naïveté.

ALS has taken from me everything from the ability to read my daughters a bedtime story to my ability to help around the house.

Everyday is a struggle but I choose hope and to keep fighting. For my and every family.

Good night moon.

[Kelsie Snow @kelsieswrites]

Today is #RareDiseaseDay, so here’s your reminder that ALS is not as rare as people think. What’s rare is to live with it for very long. Retweet if you know someone who has/had ALS and tell us their name.❤️ #NotSoRare

[kathleen sinnott @sinnott_2WINit]

@lasinnott @DannyPellegrino @MaureenSinnott OH HELLLLOOOO!!!!!!!

[Synapticure @synapticure]

We are so excited to publicly launch with this story by @maureenmfarrell in @nytimes. This telemedicine company will bring personalized care to all living with ALS. Together, we'll leave behind the era of, "I'm sorry, but I can't help you." #NewEraOfHope
https://t.co/AUebrm9Jbw

[Brian Wallach @bsw5020]

Thank you ⁦@levfacher⁩ and ⁦@statnews⁩ for telling our story in this raw, poignant and beautiful piece. And yes, I am going to prove you wrong with the help of tens of thousands of friends at ⁦@iamalsorg⁩. #NeverGiveUp https://t.co/xEoieQ9ocY

[Brian Wallach @bsw5020]

The next time someone tells you something is impossible, I invite you to send them this tweet and then to go out and change the world. ALS can go f itself.

Good night moon.

[I AM ALS @iamalsorg]

BREAKING NEWS: ACT FOR ALS JUST PASSED IN THE SENATE

[I AM ALS @iamalsorg]

Today, we have hope. ACT for ALS just passed in the House. One chamber of Congress down, one to go! Thank you to the bill’s cosponsors @RepMikeQuigley and @JeffFortenberry. The ALS community is forever grateful.

[Sandra Abrevaya @sabrevaya]

I've never seen @bsw5020 work so hard in his life. Day in and day out, pushing ACT for ALS as his body fails him.

Patients are in the fight of their lives and when this bill passes, it will be one of the greatest victories of patient community advocacy in history.

[Sarah Nauser @SarahNauser]

There are several things I miss having the ability to do. One of the things at the top of that list is just the embrace of a good hug. Sometimes you don't truly appreciate the value of something until you can no longer do it. #ALS photo credit :@JasonHannaphoto

[Brian Wallach @bsw5020]

Today proved that you don’t have to be rich or famous for your voice to move mountains.

Today was hope for the others.

Not today ALS. Not. F’ing. Today.

[Brian Wallach @bsw5020]

Here’s to the people in your life who make you feel like you matter, whose presence gives you comfort and their smiles real hope. Be they young or old, with us or passed on, here’s to having people who make life beautiful.

Good night moon.

[Brian Wallach @bsw5020]

“I appreciate you.” Let’s all promise to say it more often. Please.

Good night moon.

[Greg Gowe @GregGowe]

The load placed on ALS caregivers who are parents to young kids - like @sabrevaya and my wife- is incredible.

ALS crushes families not just individuals. We need to end it.

[Brian Wallach @bsw5020]

Today, this guy with ALS worked 9 hours, did Pilates and rolled his immuno- and respiratorily- compromised self to get a vaccine shot. If I can do it, so can you. Get vaccinated. Help save my life. Thank you America.

[ColoradoIndependent @ColoradoIndepe1]

Jimmy Carter was, and is, a badass.

[CBS Mornings @CBSMornings]

As athletes in Tokyo were competing at the top of their sports, a couple of amateur athletes in the U.K. were attempting their own Olympics, to raise money for ALS research.

After completing over 100 sporting events in 17 days, they smashed their fundraising target. ❤️🏅