Spinal Muscular Atrophy UK

Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics

[Spinal Muscular Atrophy UK @SMA_UK_]

Christmas may still feel a little way off, but our charity Christmas cards are ready to go! 📣

Choose from six festive designs and support SMA UK with every card 🎄

Order yours now 👉 https://t.co/zgA3eKIJNB

[Spinal Muscular Atrophy UK @SMA_UK_]

Nusinersen (Spinraza®) has been approved in Scotland for babies with SMA before symptoms appear, giving families identified through newborn screening more treatment options. Read more here: https://t.co/MF1xHPaLgp

[Spinal Muscular Atrophy UK @SMA_UK_]

Three years. 159 grants. A lasting impact.💜

Our SMArt Moves programme has now reached the end of its three-year grant, supporting people living with SMA to access vital wheelchairs, powerchairs and adaptations.

Read about the difference it has made 👉 https://t.co/rJTDLbELeb

[Spinal Muscular Atrophy UK @SMA_UK_]

🧬 Help support Zolgensma research

The University of Liverpool is looking for families to take part in research exploring why some children experience liver-related changes following Zolgensma.

Could your child be eligible? Find out more below👇
https://t.co/bQspmqhhoR

[Spinal Muscular Atrophy UK @SMA_UK_]

As SMA Awareness Month comes to a close, we want to say a heartfelt thank you to everyone who has shared their story, raised their voice, supported our community and helped drive change 📣💙🧩

Take a look back over the campaign here 👉 https://t.co/e2ofeo4mIY

[Spinal Muscular Atrophy UK @SMA_UK_]

Kidz to Adultz are hosting an event in Scotland on Tuesday 15 September 2026!📣
It’s going to be jam packed day that’s educational, enjoyable and entertaining for the whole family. Find out more, here 👉 https://t.co/pAbGKGU0ff

[Spinal Muscular Atrophy UK @SMA_UK_]

Paws for SMA is a fun virtual challenge to support SMA UK during October alongside your pet! Simply set a distance target of your choice and then walk, jog or wheel your way to your goal whilst enjoying quality time with your furry friend! ✨

👉 https://t.co/9IcLpgAOKk

[Spinal Muscular Atrophy UK @SMA_UK_]

As we continue our 'Every Piece of the Puzzle' campaign for #SMAAwarenessMonth, we want to shine a light on the amazing fundraisers and supporters who have helped SMA UK reach where we are today! 📣

Read the full blog here 📷 https://t.co/5BDIwVIdPv

[Spinal Muscular Atrophy UK @SMA_UK_]

We’d like to say a huge thank you to Tracy Proctor and her colleagues at Staffordshire Children’s Hospital for their incredible work in raising awareness of SMA across the hospital this SMA Awareness Month 👉 https://t.co/tK7tStdHzI 💙

[Spinal Muscular Atrophy UK @SMA_UK_]

As we continue our 'Every Piece of the Puzzle' campaign for SMA Awareness Month, we’re hearing from clinicians who have witnessed SMA care evolve firsthand 📣

Read the full blog here 👉 https://t.co/vd6GEUF82b 🔗

[Spinal Muscular Atrophy UK @SMA_UK_]

We’re continuing our SMA Awareness month campaign “Every Piece of the Puzzle” with a brief overview of how newborn screening for SMA became a reality 📣

Read the full blog here 👉 https://t.co/TQGHfbTQyf

[Spinal Muscular Atrophy UK @SMA_UK_]

We're continuing our SMA Awareness month campaign "Every Piece of the Puzzle", with a look into the journey of securing access to Spinraza 🧩

Read the full blog here 👉 https://t.co/LbUoSJywNJ

[Spinal Muscular Atrophy UK @SMA_UK_]

Your next adventure awaits! 🌿 Fancy exploring somewhere a little more off the beaten track? Our Extreme X8 off-road wheelchair is available to hire, giving you the freedom to enjoy more of the great outdoors. Find out more, including our FAQs 👉 https://t.co/pvP6xQzfLK

[Spinal Muscular Atrophy UK @SMA_UK_]

On 29 August 2026, a group of dads will climb Ben Nevis to raise funds for SMA UK! This fantastic "Fathers to the Summit" fundraiser has been organised by Tony Pearson, Dad to Grayce who has SMA Type 2 📣

Please donate, share and help spread the word👉 https://t.co/RKCTEjvbHD 💙

[Spinal Muscular Atrophy UK @SMA_UK_]

Thank you to everyone who joined us for our recent insights session. It was fantastic to hear your perspectives, experiences and ideas! 📣 Your feedback is invaluable and will help us shape the future of SMA UK 💙

[Spinal Muscular Atrophy UK @SMA_UK_]

The General Pharmaceutical Council (GPhC) is urging people to check that online pharmacies are properly registered before ordering medicines. Medicines that contain the wrong ingredients, incorrect doses, or harmful substances, put your health at risk 👉 https://t.co/DF109JnCAD

[Spinal Muscular Atrophy UK @SMA_UK_]

August is SMA Awareness Month, and we're continuing our Every Piece of the Puzzle campaign 📣

This piece of the puzzle focuses on the Journey to securing access to Zolgensma, featuring a community story from Amy Williams. Read the full blog here 👉 https://t.co/gKPqA48UvK

[Spinal Muscular Atrophy UK @SMA_UK_]

Paws for SMA is a fun virtual challenge to support SMA UK during October alongside your pet! Simply set a distance target of your choice and then walk, jog or wheel your way to your goal whilst enjoying quality time with your furry friend! ✨👉 https://t.co/AbOMK2NUIl

[Spinal Muscular Atrophy UK @SMA_UK_]

A new report from the Local Government Association is calling for adult social care reform that puts people first 📣

Read more here 👉 https://t.co/dCeMYUVyJs

[Spinal Muscular Atrophy UK @SMA_UK_]

🧩 Our first piece of the puzzle takes us back to where it all began. From Anita Macaulay’s determination to ensure no family faced SMA alone, to the creation of SMA UK. Read the first blog in our Every Piece of the Puzzle series 👉 https://t.co/BhEeb73FSc

#SMAAwarenessMonth