Sickle-Strong Group

SickleStrongGroup is a movement dedicated to bringing the conversation of Sickle Cell out in the open!

[Sickle-Strong Group @SSickleStrong]

So next month we’ve decided to have some fun at the park. There’ll be food, drinks, games, prizes, competitions and a few faces you may know!

So this summer bring the kids, mum, dad and most importantly bring your Game faces along!

Get your tickets fast! Link in the bio!

[MAMI @ANGOLANCVNDY]

My awareness video hit 1 million views. I’m speechless, that’s more then I ever wanted. I’m grateful. God is real. Hopefully with this we can actually start to see changes, I’m doing everything I can to make things right for us Sickle Cell warriors.🙏🏾❤️

[Sickle-Strong Group @SSickleStrong]

More good news but will majority want to undergo this treatment? 🤔

Alabama man first in the state to become sickle cell free through new therapy https://t.co/PZ69EsyKR3

[Sickle-Strong Group @SSickleStrong]

Maybe it’s probably because Sickle Cell Awareness month was last month but it’s encouraging to see the conversation about #SickleCell still going strong!

[TONI TONE @t0nit0ne]

A woman with sickle cell has undergone experimental gene therapy in the US. Scientists have modified her cells to create a protein that babies usually stop making shortly after birth. If successful, it will treat her disease, and could improve many lives. https://t.co/ItYBYMiXu5

[Sickle-Strong Group @SSickleStrong]

How many people have actually seen someone going through an actual crisis? Could you stay strong for them? That’s when they’ll you the most.

[MAMI @ANGOLANCVNDY]

I suffer from Sickle Cell and most people can’t even imagine what it feels or looks like. This is what I and others go through. Please share it and raise awareness for it, that‘s all I want🥺❤️

[Sickle-Strong Group @SSickleStrong]

@_BeingNae Feel like any health staff that’s tasked to care for any patient of any health should really know an acceptable amount of that condition. It’ll make things easier for them and put the patient at ease.

[Sickle-Strong Group @SSickleStrong]

Incredible to learn not all NHS staffs are knowledgeable in #SickleCell

[Sickle-Strong Group @SSickleStrong]

All it takes is finding out your #genotype first then start a open conversation. Everyone talks.

[Sickle Cell Anaemia Trust Zimbabwe @ScatzZim]

Fingers crossed that we’re on our way to find a cure... @NetOneCellular @SSickleStrong @PSMASZim @NewsDayZimbabwe @kubatana @MoHCCZim @nickie_mjuru #health #SCATZ

[Sickle Cell Anaemia Trust Zimbabwe @ScatzZim]

Thank you for your sacrifice and selflessness!!👏🏿❤️ @kubatana @PSMASZim @SSickleStrong @NetOneCellular @SickleCellTN @Memej99 @sicklecell101
https://t.co/yZf0t9dMaR

[Sickle-Strong Group @SSickleStrong]

In light of #SickleCellAwarenessMonth
🎥: @LittleDropsP
Insta: @SSickleStrong
Go watch the full video https://t.co/2knL7Lmb5E

[Sickle-Strong Group @SSickleStrong]

Today I will bravely tell you a story of the often untold stories of a #SickleCell crisis. It happened, I suffered through it and came out stronger, strong enough to share.
#SickleCellAwarenessMonth
🎥: @LittleDropsProduction
Insta: @SSickleStrongGroup

[Sickle-Strong Group @SSickleStrong]

Guess why this month is so special?

[Sickle-Strong Group @SSickleStrong]

Some experts say sparkling water is better than still water.

[Sickle-Strong Group @SSickleStrong]

@preshgaza @SCAF_Nigeria 💪🏾💪🏾💪🏾

[Sickle-Strong Group @SSickleStrong]

More times than not, one can often sense a crisis coming.

That’s your Sickle Sense! 😂

[Sickle-Strong Group @SSickleStrong]

In Lehmans terms, Genotype knowledge is your first step in the right direction

[CHEF BAE @_BeingNae]

Please know your blood groups guys.

[Sickle-Strong Group @SSickleStrong]

@NaomiLaCoco 😂 going to retweet this

[Sickle-Strong Group @SSickleStrong]

@RejiYates @TableTalkLDN Thank you for the opportunity! Hope to be involved in the next one 🙌🏾

[Sickle-Strong Group @SSickleStrong]

Tug-O-War is one of them misunderstood games, it’s not about the strength of one but more the strength of a team/community.

All are welcome to come and test strength of your team against another on the day.
#TugOfWar #SSickleStrong #FunDay #Challenge

[Sickle-Strong Group @SSickleStrong]

Today we were invited by @TableTalkLDN to discuss Sickle Cell! We getting there with the task of awareness, more of us need to be supporting and productive conversations like this.
#SickleCell #LetsTalkAboutSCBaby #Genotype #SSickleStrong