Stacey S DeLoye

Health and science news from Florida. Personal account, views my own.

[Stacey S DeLoye @StaceySinger]

@saffronandsky Quadruple the function! 😝

[Stacey S DeLoye @StaceySinger]

@saffronandsky Telehealth. Yes she gave me about six good action items, and five out of six are very helpful I think.

[Stacey S DeLoye @StaceySinger]

@saffronandsky I know pwME are all tired of doctors, but the hour I spent with Dr Klimas two weeks ago was really beneficial. She is so knowledgeable.

[Stacey S DeLoye @StaceySinger]

@saffronandsky Yesterday I tried my first microdose of a GLP1, and I had a great day today, first in a long time. Hoping it’s the start of many such days. We just keep trying, don’t we?

[Stacey S DeLoye @StaceySinger]

@JackHadfield14 I’m so sorry you went through that. I’ve never been that severe, it’s very frightening. Where are you now with your symptoms?

[Stacey S DeLoye @StaceySinger]

@KristinaRevay @JackHadfield14 I can’t imagine how much Forti Sessions would cost. Did they do any functional test tests for cognitive functioning?

[Wertheim UF Scripps @WertheimUFScrip]

ARDS, acute respiratory distress syndrome, strikes 2M worldwide, with 40% mortality. A new therapy shows promise. https://t.co/pvajtjWl6v

@WertheimUFScrip #ARDS #ARDSAwareness #clinicaltrials @UFHealth @UF_Research

[Stacey S DeLoye @StaceySinger]

@Covid_institute For me, it erases my fibromyalgia-like pain, which allows me to work. Huge.

[Stacey S DeLoye @StaceySinger]

@saffronandsky @Rob_DeRosa Dr K told me it should be on the belly, right against the skin. It makes you warm, so you need to drink more. No negative effects to speak of.

[Stacey S DeLoye @StaceySinger]

@saffronandsky @Rob_DeRosa My doctor has me using infrared light pads against my skin 30 minutes a day and also a neck-based vagal nerve stimulation device. My sleep is substantially better, I like the IR therapy because it’s not another pill. It’s very soothing and I feel better afterwards.

[Stacey S DeLoye @StaceySinger]

@saffronandsky @Rob_DeRosa Do you feel like you’re doing better lately?

[Stacey S DeLoye @StaceySinger]

@2laurabone @internetuserf12 Same

[Stacey S DeLoye @StaceySinger]

@internetuserf12 All of the above?

[Stacey S DeLoye @StaceySinger]

@Rob_DeRosa A Comment: My Dr. cautions that people with LC have damaged mitochondria that pump out 7x the reactive oxygen species, and so oxalacetate may be long term trouble; take antioxidants with it. (KPax)

[Stacey S DeLoye @StaceySinger]

@Rob_DeRosa 5) famcyclovir 500 mg 2x a day
6) arterosil, microvascular perfusion, 2 caps a day
7) oxaloacetate, 2x a day, energy and clear thinking

[Stacey S DeLoye @StaceySinger]

@8Eevert @ZdenekVrozina I recently added nitric oxide and I think it’s helping - doc’s recommendation.

[Stacey S DeLoye @StaceySinger]

@AybeeinOH @ThePOTSPostman Very good description

[Stacey S DeLoye @StaceySinger]

@Samanth18984539 @ThePOTSPostman Pain is incredibly draining. Wishing him well. And you too. I’ve recently added IR light therapy and vagal nerve stimulation, it’s surprisingly helpful after one week.