STOPFOP

Saracatinib Trial TO Prevent FOP

[STOPFOP @STOPFOPEU]

Part of the Amsterdam UMC's rare bone disease center on the 'Bone Throne' at #ASBMR2023 #amsterdamumc

"When you play the game of BONES, you win or you die. There is no middle ground."

[STOPFOP @STOPFOPEU]

Proud to present our #STOPFOP trial at #ASBMR2023!

[STOPFOP @STOPFOPEU]

The STOPFOP team welcomes a new member: one of our participants was so kind to make us a brand new mascot! #RareDisease #cureFOP

[ISCBH @childrensbones]

Eekhoff et al: Innovative therapies in bone biology: what can be learned from rare bone diseases? https://t.co/C6u9djQD08

[STOPFOP @STOPFOPEU]

The STOPFOP team is committed to open science. We are therefore happy to report that our protocol paper has just been published 😃It can be found at: https://t.co/HMKt6BdE77 #cureFOP #RareDisease

[STOPFOP @STOPFOPEU]

Today, some members of our team were able to explain and discuss about STOPFOP at the @FOPFriends meeting. Very informative session! #cureFOP #RareDiseases

[STOPFOP @STOPFOPEU]

Happy to share on #RareDiseaseDay that STOPFOP site Garmisch-Partenkirchen has started including patients in Germany! In collaboration with the @amsterdamumc , these patients will soon receive their first doses of study medication. #RareDisease #CureFOP https://t.co/VmCuC006Eu

[Innovative Health Initiative @IHIEurope]

IMI-funded @STOPFOPEU is trialling cancer drug saracatinib which shows promise in the treatment of fibrodyplasia ossificans progressiva (FOP), a rare disease in which muscles, tendons and ligaments slowly turn to bone.
#IMICarryTheTorch
#RareDiseaseDay
https://t.co/KIYFWf8y6P

[Innovative Health Initiative @IHIEurope]

What are IMI projects doing to advance research in #RareDiseases?
#RareDiseaseDay
#IMICarryTheTorch
READ: https://t.co/azibXb3puD

[IFOPA @ifopa]

Two great sessions today on FOP clinical trials at the #2021FOPGathering. Thanks to @IpsenGroup, @Regeneron, @BioCrystPharma, @DaiichiSankyoUS, @Incyte and @STOPFOPEU for sharing about your clinical development programs.

[STOPFOP @STOPFOPEU]

STOPFOP site Klinikum Garmisch-Partenkirchen is ready to start inclusions! They will soon be recruiting patients in Germany. See also: https://t.co/qc2E20mIuY #cureFOP #RareDisease

[Innovative Health Initiative @IHIEurope]

In #FibrodyplasiaOssificansProgressiva (#FOP), soft tissues slowly turn to bone. Our @STOPFOPEU project is trialling cancer drug #saracatinib as a treatment for this #RareDisease
Read more in today's #IMISummerReading: https://t.co/MGm71DS836
#IMICarryTheTorch #cureFOP

[IFOPA @ifopa]

It's Global FOP Awareness Day - a perfect day to “show off” & show how you're raising FOP awareness. Post photos wearing FOP awareness shirts, hats, beanies, bracelets…or showing off your #cureFOP license plate frames, mugs & blankets. Don’t forget to add #cureFOP when you post

[IFOPA @ifopa]

Learn more about the drug development process at https://t.co/B3UF0KOPC7 #cureFOP #RareDiseaseDay

[Innovative Health Initiative @IHIEurope]

FOP is a #RareDisease where muscle and tissue turn to bone. Our @STOPFOPEU project is testing if #Saracatinib, a drug developed for cancer, could treat FOP.
https://t.co/MGm71E9JrG
#cureFOP #RareDiseaseDay #IMICarryTheTorch