SUDEP Action

Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP

Get in contact: [email protected]

[SUDEP Action @SudepAction]

Around 1 in 100 people in the UK live with #epilepsy, and families face the devastating reality of Sudden Unexpected Death in Epilepsy (SUDEP) every day.

By taking on My Way to 5K, you can help fund life-saving research and specialist support services: https://t.co/jh6gkfejjR

[SUDEP Action @SudepAction]

“Grief has seasons, too. And sometimes you can feel them changing.” (Claire Bidwell Smith)

Just call 01235 772852 or email [email protected]

#SUDEP #Epilepsy #Grief #Support

[SUDEP Action @SudepAction]

“With growing demand on our services, rising costs and very competitive funding opportunities, we need your support more than ever.”

Hear from CEO Sammy Ashby reflecting on the first half of this charity year, 2026-2027: https://t.co/scsfirPFSw

#SUDEPAction #SUDEP #Epilepsy

[SUDEP Action @SudepAction]

Join our incredible My Way to 5K team who have already raised over £2,700!

Every person taking on 5K for SUDEP Action this October is actively funding our life-saving resources for those living with #epilepsy and specialist support service: https://t.co/jh6gkfejjR

[SUDEP Action @SudepAction]

A big thank you to the family and friends of Dean Hayball who raised £2418 with a charity day in Dean’s memory at The Comrades Club in Romsey, one of his favourite places.

“He was the most amazing son, brother, uncle and friend to us all and we miss him deeply."

#SUDEP

[SUDEP Action @SudepAction]

What question do you think researchers need to answer about SUDEP, prevention or treatment?

Ahead of SUDEP Action Day (21st Oct), share your voice with the NIHR to help guide funding.

👉 Submit here: https://t.co/QCwK6DrdAc

Help shape the future of #SUDEP research 💜

[SUDEP Action @SudepAction]

We are only two weeks away from SUDEP Action Day 2026!

Here are a few easy ways to support our #StopSUDEP campaign!

Learn more: https://t.co/3ePH61ijGY

#SUDEPActionDay #SUDEP #Epilepsy #EpilepsyAwareness

[SUDEP Action @SudepAction]

One week down in our My Way to 5K challenge!

A huge thank you to everyone walking, running and fundraising for SUDEP Action so far! 💜

Want to support the 2026 team or take part?

Go online today: https://t.co/jh6gkfejjR

#MyWayTo5K #SUDEPActionDay

[SUDEP Action @SudepAction]

Thank you to Wizzy Mills who swam 10,000m last month in memory of her cousin, Adam Foulkes, and raised £1,404 💜

Adam was just 22 years old when he died from #SUDEP.

“He was taken from us far too soon, and the loss has left a lasting impact on everyone who knew and loved him.”

[SUDEP Action @SudepAction]

The Children’s Checklist supports every important conversation between health professionals and children, young people and families about epilepsy.

Learn more: https://t.co/ztv8Xgd2fc

#SUDEP #Epilepsy #Seizures #EpilepsySupport

[SUDEP Action @SudepAction]

“Loki was a smashing grandson... Losing him has left a big Loki-shaped hole in our lives, but we are lucky to have so many lovely memories of him.”

Read Darren’s full story and support his journey here: https://t.co/GOxNJsRtaA

#SUDEP #EpilepsyAwareness #VirtualWalk

[SUDEP Action @SudepAction]

Well done to Natalie Treadwell who took on a sponsored paraglide in memory of her sister Kathryn who died from #SUDEP 20 years ago.

She raised an incredible £4,100!

If you are inspired by Natalie email [email protected] to find out what challenges you could take on! 🪂

[SUDEP Action @SudepAction]

Every year, charities miss out on £560m in unclaimed Gift Aid tax relief. When you donate, remember to #TickTheBox! It costs you nothing but means everything to us. #GiftAidAwarenessDay

Donate today: https://t.co/0dfEjakCTU

#SUDEPAction

[SUDEP Action @SudepAction]

Help shape the future of #SUDEP research 💜

What question do you think researchers need to answer about SUDEP, prevention, or treatment?

Ahead of SUDEP Action Day (21 Oct), share your voice with the NIHR to help guide funding.
👉 Submit here: https://t.co/QCwK6DrdAc

#Epilepsy

[SUDEP Action @SudepAction]

Today marks the start of My Way to 5K!

Every person taking on 5K – in any way they wish – for SUDEP Action this October is actively funding our life-saving resources for those living with #epilepsy and specialist support service.

Sign up today or donate: https://t.co/jh6gkfejjR

[SUDEP Action @SudepAction]

Have you heard of EpSMon?

EpSMon is our free, award-winning epilepsy-monitoring app.

It’s your personal epilepsy record, helping you keep track of data.

Download today, just search “EpSMon” on the App Store. 📲

#EpSMon #Epilepsy #EpilepsyApp #EpilepsySupport

[SUDEP Action @SudepAction]

Since 2014, our mission with SUDEP Action Day has been simple. To come together globally to educate on life-saving risk prevention, safety info and to honour those we have lost.

Learn more: https://t.co/uVjhwfSP8g

#SUDEPActionDay #SUDEP #Epilepsy #EpilepsyAwareness

[SUDEP Action @SudepAction]

@youngepilepsy @epilepsyaction

[SUDEP Action @SudepAction]

A major new research project is launching to uncover the true lifetime cost of #epilepsy.

The @EpilepsyInst and SUDEP Action will examine how funding and resources are being spent across epilepsy care, and where gaps and inefficiencies are creating risk: https://t.co/D34pCCAaQo

[SUDEP Action @SudepAction]

Congratulations to our 14 amazing runners who took part in the Great North Run and raised over £10,100!

If anyone is interested in taking part in the GNR 2027, email [email protected] 🏃‍♀️

#GreatNorthRun #EpilepsyAwareness