When this is all over and everyone goes back to their lives please remember that there are millions of us who will continue to be home for unending days, weeks, years.
This is temporary for you, it's life for us.
#YourTemporaryIsMyNormal#SevereME#MyalgicEncephalomyelitis#pwME
@ericnamofficial Last time I laughed, today chatting with my kids.
Last time I cried, full on cry 2018 but won't say why, it's not my story to tell.
Last time I teared up, earlier this year watching Moon Lover's Scarlet Heart Ryeo
@KITHOnline is the reason I can't ff through this video because I'm Canadian, it's just so good, or it's like a train wreck? I'm not quite sure, hmmm. 🤣
Welcome back! 🎉
#KidsInTheHall
Any of my Severe ME people have the energy to make a video on how the pandemic has impacted them?
For me it's made accessing services so much easier.
Info in video at 7:33 & where to send it in video description
#SevereME#MECFS#MyalgicEncephalomyelitis
Please RT
Connor I miss you. It hurts more everyday. I’m scared. Please Connor if you’re on Twitter and see this let me know you are ok. If you need anything at all please let me know. I’ll never change my number. I love you Connor. Always and forever❤️
Please! It’s so important to sign this petition asking NICE to publish their recommendations and not hold them up for ridiculous reasons like everyone has to agree, for Pete’s sake. https://t.co/VkGG8stgRc
Ack, my brain is doing that weird internal vibration thing. I hate it. Not dizzy, not vertigo, just a horrible shaking, spinning, vibrating thing. At least it's not brain zaps?
@GhostSpiral1 I'm going to throw your average off. I had my second bath of the year a couple days ago, so I guess closer to once a season. I usually manage to wash my hair in the sink every couple of weeks. Healthy people don't understand how exhausting bathing is.
#SevereME#MEcfs
Netflix, in foreign language dramas and films why isn't the English always part of the subtitles?
Sometimes I watch without sound, there are days that sounds send me into sensory overload. What about your deaf customers?
#Accessibility@netflix@Netflix_CA
When my energy is more drained than usual I sometimes get brain zaps, it's really annoying because it happens when I'm trying to sleep, but they keep me from sleeping and make me more tired, it's a vicious cycle. Ugh!
#BrainZaps#SevereME