SweetyBird

wife, mother, crafter, but sadly #MECFS is what rules my life, I am one of the #MillionsMissing #SevereME #KDrama #Dyslexia🌹#TheRose #EXO #SuJu #Day6 #SuperM

[SweetyBird @Sweetybirdtoo]

When this is all over and everyone goes back to their lives please remember that there are millions of us who will continue to be home for unending days, weeks, years.

This is temporary for you, it's life for us.
#YourTemporaryIsMyNormal
#SevereME #MyalgicEncephalomyelitis #pwME

[SweetyBird @Sweetybirdtoo]

@ericnamofficial Last time I laughed, today chatting with my kids.
Last time I cried, full on cry 2018 but won't say why, it's not my story to tell.
Last time I teared up, earlier this year watching Moon Lover's Scarlet Heart Ryeo

[Geneskool @geneskool]

These field trips and all of our free workshops are all back in person this fall! #GeneskoolDreamSchool

[SweetyBird @Sweetybirdtoo]

@KITHOnline is the reason I can't ff through this video because I'm Canadian, it's just so good, or it's like a train wreck? I'm not quite sure, hmmm. 🤣
Welcome back! 🎉
#KidsInTheHall

[Prime Video Canada 🇨🇦 @PrimeVideoCA]

🗣 Tell everyone you know: the kings of sketch comedy are back! Watch the trailer for #TheKidsInTheHall, premiering May 13 on Prime Video 🎉

[SweetyBird @Sweetybirdtoo]

Any of my Severe ME people have the energy to make a video on how the pandemic has impacted them?
For me it's made accessing services so much easier.
Info in video at 7:33 & where to send it in video description
#SevereME #MECFS #MyalgicEncephalomyelitis

[SweetyBird @Sweetybirdtoo]

It just occurred to me that March is my 8 yr sickiversary.

Who could imagine a simple cold would have such a devastating effect on my life.
#MyalgicEncephalomyelitis #SevereME #Sickiversary

[Illustrator Interrupted @FranceyME]

Another brilliant cartoon from Djanko…

#MECFS #MyalgicE #pwME #MyalgicEncephalomyelitis

[SweetyBird @Sweetybirdtoo]

Anyone esle miss #Happiness as much as me?
#kdrama #ParkHyungSik
https://t.co/SNF4jkWEo1

[☃️☃️Fibro Sloth☃️☃️ @FibroSloth]

Please RT
Connor I miss you. It hurts more everyday. I’m scared. Please Connor if you’re on Twitter and see this let me know you are ok. If you need anything at all please let me know. I’ll never change my number. I love you Connor. Always and forever❤️

[SweetyBird @Sweetybirdtoo]

I have that general feeling of absolutely awful. Nothing specifically wrong, just an overwhelming feeling of unwell.

#SevereME #MyalgicEncephalomyelitis #InvisibleIllness

[Janet Dafoe @JanetDafoe]

Please! It’s so important to sign this petition asking NICE to publish their recommendations and not hold them up for ridiculous reasons like everyone has to agree, for Pete’s sake. https://t.co/VkGG8stgRc

[SweetyBird @Sweetybirdtoo]

I'm absolutely hating this heat, my body is struggling to maintain it's normal temperature.
#SevereME #MyalgicEncephalomyelitis

[Toronto Star @TorontoStar]

As Muslim women are attacked in Alberta, a community asks: Can Canada face its Islamophobia problem?

Story from @OmarMosleh
https://t.co/2UzAcjDDi7

[SweetyBird @Sweetybirdtoo]

Ack, my brain is doing that weird internal vibration thing. I hate it. Not dizzy, not vertigo, just a horrible shaking, spinning, vibrating thing. At least it's not brain zaps?

[SweetyBird @Sweetybirdtoo]

When an apology includes justification, it ceases to be an apology.
#UncomfortableTruth

[SweetyBird @Sweetybirdtoo]

@GhostSpiral1 I'm going to throw your average off. I had my second bath of the year a couple days ago, so I guess closer to once a season. I usually manage to wash my hair in the sink every couple of weeks. Healthy people don't understand how exhausting bathing is.
#SevereME #MEcfs

[Dan 🦠➡️🧠🔥 @Dan_Wyke]

Imagine having an illness which is so badly neglected by the medical profession that committing suicide feels like your best option.
#MECFS #pwME #MyalgicEncephalomyelitis #MedTwitter #MedEd

[SweetyBird @Sweetybirdtoo]

Me - has a debilitating chronic illness for 7yrs
Also me - hates to ask for help

#ChronicIllness #SevereME

[SweetyBird @Sweetybirdtoo]

Netflix, in foreign language dramas and films why isn't the English always part of the subtitles?

Sometimes I watch without sound, there are days that sounds send me into sensory overload. What about your deaf customers?

#Accessibility
@netflix @Netflix_CA

[SweetyBird @Sweetybirdtoo]

When my energy is more drained than usual I sometimes get brain zaps, it's really annoying because it happens when I'm trying to sleep, but they keep me from sleeping and make me more tired, it's a vicious cycle. Ugh!
#BrainZaps #SevereME

[A Life Suspended by ME @b5field]

After 29 years of #MEAwareness, we're still fighting for the basics — recognition & meaningful engagement with authorities. (sigh)

I've had #ME for 38 l-o-n-g years. Anyone care to share how long it's been for you?

#StillSickYearsLater #MyalgicEncephalomyelitis
#HealthEquity