Syngap Soiree

The Syngap Soiree is rallying behind Jansen Jones, recently diagnosed with SYNGAP1, a rare, presently incurable, neurodevelopmental genetic disorder.

[Syngap Soiree @SyngapSoiree]

💚💙💜 Sponsorships and tickets remain on sale, but availability is becoming limited. Don’t miss your chance to throw your support behind the Syngap Research Fund and party at the Syngap Soiree on eighth at 26.23! https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope

[Syngap Soiree @SyngapSoiree]

💚💙💜 Meet Eliza, age 6, and diagnosed with Syngap1 in 2019. Please join us and honoring another local Syngap warrior. SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 Meet another local SYNGAP warrior, Jackson, H8. Diagnosed with Syngap1 in 2021, Jackson is another kiddo who will benefit from your philanthropy.
SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 Atlanta loves SYNGAP1! 5 of 350 US SYNGAP1 families are involved in the Syngap Soiree; 15 are in Georgia; Our takeaway- SYNGAP1 is rare but the #’s are clearly significantly under or mis-diagnosed and cases are being continuously reported. https://t.co/sekyC7FLaw

[Syngap Soiree @SyngapSoiree]

💚💙💜 the evening is shaping up to be a gala to remember! Don’t miss out! Sponsorship deadline for print is July 31. 💚💙💜 SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 spread the word, sponsor, Mark, your calendar! 08.26.23. This is our call to action! How can you help? Join us on 8/26! The deadline for recognition is 7/31/23

[Syngap Soiree @SyngapSoiree]

We are grateful for this committee of volunteers ensuring we have a beautiful evening raising much needed funds for the Syngap Research Fund. https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 Today we are celebrating our nation’s independence and the loves of SYNGAP1 individuals! SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund
��️🤍💙❤️🤍💙

[Syngap Soiree @SyngapSoiree]

💚💙💜 Founded in 2018; SRF is celebrating its fifth birthday. Cheers, to SRF for racing $4M since inception! SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

6.21 is SYNGAP1 Awareness Day and is celebrated with Splash for Syngap, because the SYNGAP1 gene is located on chromosome 6, in the 6p21.3 region. SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 Meet another local Syngap warrior, Ellie, age 21. Diagnosed with SYNGAP1 in 2014, Ellie is another kiddo who will benefit from your philanthropy. SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 What is the treatment for SYNGAP1? Currently, there is no specific treatment or cure for SYNGAP1. SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 Plan a night away from home and book a room at one of Buckhead‘s, newest luxury boutique, hotels, the Thompson, using our special group rate! Rate available through 8-4-23 https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund.

[Syngap Soiree @SyngapSoiree]

💚💙💜 The SynGAP Research Fund and Syngap Soiree brand colors are representative of the primary diagnoses given to SYNGAP1 individuals. SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 Daily life with SYNGAP1 is a challenge. Please join us as we raise funds for a cure. 8/26/23 SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜 Meet another local Syngap Warrior, Wells, age 14. Diagnosed with SYNGAP1 in 2016, Wells is another kiddo who will benefit from your philanthropy. SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

Marked your calendar yet?

[Syngap Soiree @SyngapSoiree]

Marked your calendar yet? We hope to see old and new friends at the Syngap Soiree | Sparks of Hope gala! https://t.co/sekyC7FLaw #syngapsoiree #sparksofhope #curesyngap1 #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

💚💙💜SYNGAP1: A rare and debilitating roll of the dice. But, we are on the quest for a cure! SYNGAP SOIREE | SPARKS OF HOPE https://t.co/sekyC7FLaw @curesyngap1 #syngapsoiree #sparksofhope #syngapresearchfund

[Syngap Soiree @SyngapSoiree]

Reminiscing on the success from last year’s Sparks of Hope! We couldn’t have done it without help! Please join us at this year‘s event on the Evening of Saturday, August 26 https://t.co/sekyC7FLaw #sparksofhope #syngapsoiree #syngapresearchfund