Teesside Cystic Fibrosis Centre

Teesside Cystic Fibrosis Centre. Delivering care to children from newborn to 18 years. Contact us on 01642 854684

[Teesside Cystic Fibrosis Centre @TeessideCF]

Excellent conference. Lots of learning and networking. Great ideas to take back to @TeessideCF team. Exciting times in cystic fibrosis care #ecfs2024

[Caroline Whitton @CFNurseCaroline]

Thought provoking presentation by Charlie Dawson @GreatOrmondSt on the ever evolving role of the CF nurse
#ECFS2024 @CFNA_UK

[Teesside Cystic Fibrosis Centre @TeessideCF]

@CFNurseCaroline @GreatOrmondSt @CFNA_UK Excellent presentation. Thank you Charlie @GreatOrmondSt

[Cystic Fibrosis Trust @cftrust]

Following NICE's statement today, our Chief Executive, David Ramsden, has shared the following video, giving an update on where things stand.

You can read the statement from NICE here.
➡️ https://t.co/9177UdLvCx

[Teesside Cystic Fibrosis Centre @TeessideCF]

@CFpaedsGNCH @Carol_A_Sharpe @GreatNorthCH @NewcastleHosps Enjoy your retirement, it is well deserved. You will be missed by the whole CF community for your passion and dedication. We will miss seeing you around at meetings. Have fun and keep in touch ❤️ xx

[Teesside Cystic Fibrosis Centre @TeessideCF]

@cf_newcastle @cftrust @Lucia44535015 Well done Lucia, amazing achievement #cysticfibrosis #teamcf

[Heather Collins @heather88081350]

A huge congratulations to childrens outpatients JCUH for achieving a diamond accreditation 💎 Truely putting children, young people and their families at the heart of all they do! @hilarylloyd13 @NatalieCock29 @spittsy @Nicola_Howe79

[Alex Horsley @AlexRHorsley]

And here’s a link to the paper I presented last week at #ecfs2023.
Important to know that research into better treatments continues and doesn’t end with kaftrio.
#CysticFibrosisweek

[Cystic Fibrosis Trust @cftrust]

Do you receive any hospital-prescribed medicines directly to your home? Have you experienced any problems?

With a recent review announced of a homecare delivery company, we want to hear about your experiences.

Click the link to fill in the survey:

https://t.co/9ovTntObH7

[ACPCF @acpcf]

Paeds physios! Questionnaire on Infant/Baby PEP provision in UK and Ireland. Big variations in the way baby PEP is taught, the questionnaire aims to identify any consensus.

https://t.co/gK2wVftdxM

Any questions please contact Emma Dixon @EmmaDIX39217881

Many thanks!

[Alex Horsley @AlexRHorsley]

Worth reflecting on #InternationalClinicalTrialsDay quite how far cf care has come, not just through modulators. It’s an amazing story, driven by clinical trials and by amazing people (patients and researchers).

[Nicola Metcalfe @Nicmetcalfe]

Exciting opportunity 👀

[Cystic Fibrosis Trust @cftrust]

We need your help to reach our survey response goal!

Here are three simple steps you can take to help out:

⭐ Fill in the survey.
⭐ Share the survey with your friends and family.
⭐ Retweet this post.

Make your voice heard today!

🔗 https://t.co/NOsHINfojU

[Teesside Cystic Fibrosis Centre @TeessideCF]

Good luck team ☘️

[York Hull Adult CF Centre @yorkhullcf]

Our CF Nurse and other team members are doing the coast to coast raising money for York Hull CF, through York and Scarborough Hospitals Charity. Good luck!!
Any donations will be most welcome!
York & Scarborough Hospitals Charity: Beat the Tide (https://t.co/FTNnWJAViq)

[Strawfie Challenge @strawfie]

Petitions that get shared more often, get more signatures. If you know someone with CF please share this every day this week. Thanks.

https://t.co/YfoBOTdebZ

@Wessex_adult_CF @ChildrensUnit @AdultCystic
@CF_PROSPER @saporedisale14 @TeessideCF @nickluck @yorkhullcf #cfaware

[Teesside Cystic Fibrosis Centre @TeessideCF]

@SouthTees @STRIVEEvents looking forward to being part of the annual developmentally appropriate healthcare transition and health conference tomorrow at the Strive, JCUH #steestransition2023

[Teesside Cystic Fibrosis Centre @TeessideCF]

We also have a brilliant supportive social worker. I’m sure our families will agree Sara is amazing too

[Alex Horsley @AlexRHorsley]

Shout out to Fiona, one of our brilliant CF social workers!

[Cystic Fibrosis Trust @cftrust]

We’re developing training resources to help CF centres improve exercise provision for people with #cysticfibrosis.
If you’re an adult with CF, or a healthcare professional, you can help by filling in our survey about exercise and CF.

➡️ https://t.co/UYCWgABKn1

[Alex Horsley @AlexRHorsley]

Pleased to be able to share this nice piece of work from @Manchester_cf and @ChrisvanderGast team at MMU. Posting sputum back to the lab does not reduce our ability to culture CF bugs!
https://t.co/Qsto9lQ4lg

[CYPEDjamescook @cypedjamescook]

Nutrition and Hydration week in CYPED, #anappleadaykeepsthedoctoraway #hydrationstation #NHW2023 @ste_mck1 @Sir_Souter @CathyBrammer @KeepGoinEoin @algordon94.