Tilly

Though this used to be a #WhatYouDontSee page, it's currently just the life of an undiagnosed #Spoonie teenager trying to figure out what the heck she's doing.

[Tilly @TheConstantFear]

2 days ago I had a day of activity, today I'm bedbound, lightheaded and I lose my breath if I try to sit up. Don't tell me nothing is wrong.

[Tilly @TheConstantFear]

I feel like being a bit sorry for myself. And maybe cry a little.

Just a little though.

[Tilly @TheConstantFear]

Is it weird that I’m looking foreword to my next doctor appointment?

[Tilly @TheConstantFear]

I really want to apply for a wheelchair

[👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ]

@punnysamosa Me calculating what the odds are that I'm currently dying after I ignore a random blindingly sharp pain:

[Tilly @TheConstantFear]

@eveewing @punnysamosa Great thread 👍🏻

[Tilly @TheConstantFear]

Okay, been spamming Twitter enough considering it’s 04:55 AM. Should at least try to get some more sleep tonight.

[Tilly @TheConstantFear]

@VLNXbb Thank you for your thoughts 💙.

Unfortunately, there isn’t much else I can do besides just waiting it out. I have hopes though ☺️.

[Tilly @TheConstantFear]

On this very day, I have been ill for exactly two years.

I have been fatigued for two years.

I have been mostly bed bound or house bound for two years.

Falling behind on school for two years.

Rotting in my room for two years.

1/8th of my life just gone.

[Tilly @TheConstantFear]

Much to catch up on here.

I’ll be applying for a wheelchair, filter glasses and free handicap taxi within the end of month.

Fingers crossed, I might be able to have a more accessible life soon. Would be nice to be outside again.

[Tilly @TheConstantFear]

Aaaaand I no longer have depression or panic disorder, so that’s good. https://t.co/gVgqzidYEz

[Tilly @TheConstantFear]

Oh, and I got diagnosed with #mecfs this winter. Only took two years.

Also just came home from 1 month “rehabilitation” for my ME.

And I’ve dropped out of school.

Life happens, I guess.

[Tilly @TheConstantFear]

Been away from the #spoonie community on Twitter too long https://t.co/gVgqzidYEz

[Tilly @TheConstantFear]

Oh, and I got diagnosed with #mecfs this winter. Only took two years.

Also just came home from 1 month “rehabilitation” for my ME.

And I’ve dropped out of school.

Life happens, I guess.

[Tilly @TheConstantFear]

Oh, and I got diagnosed with #mecfs this winter. Only took two years.

Also just came home from 1 month “rehabilitation” for my ME.

And I’ve dropped out of school.

Life happens, I guess.

[Tilly @TheConstantFear]

A friend of mine on Facebook wanted to know why poc can wear weaves, but whites can’t wear box braids. This was my reply, any pointers? I tried to be diplomatic and not to overstep anyone’s boundaries.

[Tilly @TheConstantFear]

What should I do when my brain is fried? I’m sooo fatigued 😩.

[Annie Segarra @annieelainey]

#InvisibleDisabilitiesWeek "Can't" doesn't always mean completely unable, sometimes it's "CAN'T without symptomatic/painful consequences"

[Bob Vulfov @bobvulfov]

friend: can i ask for ur advice on something

me (have never made a decision that didn't fuck me over for months afterward): yes absolutely