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ThinkAgain.Think NPC
@ThinkNPC
Think Again. Think NP-C is an international campaign to improve diagnosis of Niemann-Pick type C disease (NP-C). The campaign is led by the INPDA.
Joined August 2014
35
Following
129
Followers
94
Posts
ThinkAgain.Think NPC
@ThinkNPC
over 8 years ago
#TalkNPC
would like to thank you for your valuable insights into symptoms of NP-C. Please continue to share your descriptions!
ThinkAgain.Think NPC
@ThinkNPC
over 8 years ago
Symptoms of NP-C are difficult to recognise. As a healthcare professional, how were symptoms described to you? Use
#TalkNPC
ThinkAgain.Think NPC
@ThinkNPC
almost 9 years ago
Delayed development is a non-specific sign of NP-C. How would you describe this to a healthcare professional?
#TalkNPC
#RareDisease
ThinkAgain.Think NPC
@ThinkNPC
almost 9 years ago
The
#TalkNPC
symptom card shows how gelastic cataplexy can be described. How else would you describe it?
#NPCAwareness
Who to follow
NNPDF
@nnpdf
National Niemann-Pick Disease Foundation
wAIHA Warriors
@WAIHAWarriors
wAIHA Warriors is a 501 (c)(3) support and advocacy group for those diagnosed or caring for someone with Warm Hemolytic Autoimmune Anemia (#wAIHA)
gailk
@koujaianunit1
❤️Smile❤️ Believe in yourself #dontgiveuponNPC #hopeforhayley #showyourstripes #ultrararedisease #NPCmom #CureNPC #Hope
ThinkAgain.Think NPC
@ThinkNPC
almost 9 years ago
#TalkNPC
aims to increase recognition of NP-C symptoms amongst healthcare professionals. We value your descriptions!
ThinkAgain.Think NPC
@ThinkNPC
almost 9 years ago
#NiemannPickC
patients can develop depression. How would you describe the signs? Share your photos with
#TalkNPC
ThinkAgain.Think NPC
@ThinkNPC
almost 9 years ago
@ThinkNPCCanada
How would you describe symptoms of NP-C? Keep sharing your photos with
#TalkNPC
ThinkAgain.Think NPC
@ThinkNPC
almost 9 years ago
Vertical Supranuclear Gaze Palsy in NP-C can be difficult to describe. Use
#TalkNPC
to share your descriptions of VSGP
#NPCAwareness
ThinkAgain.Think NPC
@ThinkNPC
almost 9 years ago
Dysarthria is often described as slurred speech. How would you describe this common symptom of NP-C to a healthcare professional?
#TalkNPC
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
Is your patient experiencing ataxia? Could it be
#NiemannPickC
? Discover our
#TalkNPC
cards at https://t.co/MUPiSXR5ry
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
Think NP-C. Talk NP-C aims to uncover how patients with NP-C or carers may describe symptoms of NP-C. Share your descriptions using
#TalkNPC
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
@FNP_Espana
how would you describe the learning difficulties and mobility problems associated with NP-C?
#TalkNPC
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
Our last day at the
@EANeurology
congress. Come visit us by the posters to learn more about
#NiemannPickC
#EAN2017
#TalkNPC
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
Come visit the
@ThinkNPC
stand near the Scientific Replay Lounge
@EANeurology
#EAN2017
! We're keen to talk about
#RareDisease
#NPCawareness
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
#TalkNPC
aims to increase clinical recognition of key symptoms of
#NiemannPickC
using real-world descriptions: https://t.co/kMGkKbDu4h
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
Heading for a coffee at
#WFSBP
today? We’re right by the coffee station with
@inpda_org
at Booth 11 in the Bella Centre.
#WFSBPday2
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
It’s day 1 of
#WFSBP
and we’re with
@inpda_org
at Booth 11 in the Bella Centre. Come and visit us to hear about
#ThinkAgainThinkNPC
ThinkAgain.Think NPC
@ThinkNPC
about 9 years ago
Off to Copenhagen for
#WFSBP
! Looking forward to presenting
#ThinkAgainThinkNPC
at
@inpda_org
’s stand next week https://t.co/llP9aYWHVM
ThinkAgain.Think NPC
@ThinkNPC
almost 10 years ago
To mark 2 years of
#ThinkAgainThinkNPC
we’re sharing birthday wishes. What’s your wish for the future of NP-C?
ThinkAgain.Think NPC
@ThinkNPC
almost 10 years ago
It’s day 1 of
#SSIEM
& we’re delighted to celebrate 2 years of
#ThinkAgainThinkNPC
. Visit us on the
@inpda_org
stand
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