Freja

#LongCovid since Jan '21 with #PoTS
Sharing my journey with Long Covid and HNPP.

[Freja @ThrawnFreja]

£57,600 of @scotgov funding was used by @covidaidcharity and LGOWIT to create a dangerous #LongCovid Self Management course full of awful recommendations - exercising, positive thinking to heal LC, suggests fatigue & shortness of breath are anxiety, depression or lack of exercise

[Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @LongCovidScot]

It's #VolunteersWeek and #LongCovidScotland are building a team of volunteers where many people can do a little, which will achieve a lot! 💪🏽📈

We'd love to hear from you:
Get in touch to find out more: https://t.co/4wtwSg6qUc

[Freja @ThrawnFreja]

@rob__i I think government by their nature are short sighted as they're only in power a few years at a time. Long Covid will become a massive unavoidable issue in time but by then it won't be their problem. And stopping it becoming big issue/dealing with it is £££. Eg. climate crisis etc

[Freja @ThrawnFreja]

I am disappointed only 3 of my Highlands & Islands MSPs came to the Call to Action or attended the #LongCovid debate.

Thank you to @ArianeBurgessHI for attending the Call to Action. Thanks @Emma_Roddick and @jhalcrojohnston for attending the debate.

[Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @LongCovidScot]

1/ Thank you to all the MSPs who supported our Call to Action at the Scottish Parliament and the #LongCovid debate.

We want to acknowledge all the MSPs who attended, so here is a thread 🧵

[Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @LongCovidScot]

The 23/24 spending of this £10 million fund is £12.88 per person with Long Covid. The entire fund is split over 4 financial years.

Long Covid allocation for @NHSaaa is only £10.88 per person.

@scotgov need to take real action on #LongCovid for #LongCovidAwarenessDay.

[Freja @ThrawnFreja]

Thank you to @ITVBorderRB for the extensive coverage of the @LongCovidScot Call to Action.

I tried my absolute best to represent the 187,000+ people in Scotland with #LongCovid.

#LongCovidAwarenessDay

https://t.co/c13GiF0isa

[Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @LongCovidScot]

Thank you to @ITVborder for your extensive coverage of our Call to Action.

We had a 10 minute segment on Representing Border dedicated to the struggles of over 187,000 people in Scotland with #LongCovid ahead of #LongCovidAwarenessDay.

https://t.co/dvGwNYvJhU

[Freja @ThrawnFreja]

"We keep hearing about 'post-pandemic' and 'post-covid' but sadly the reality is we are not 'post-covid' and we are not 'post-pandemic'. This is very much still an ongoing issue."

Thanks to @STVNews for the interview.

#LongCovid #LongCovidAdvocacy #LongCovidAwarenessDay

[Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @LongCovidScot]

Thank you to @stvnews for covering our Call to Action event yesterday.

The £10 million Long Covid fund is over 4 years, amounting to £12.88 per person with Long Covid in 23/24. It is not enough.

We need @scotgov to #ConfrontLongCovid.

#LongCovid #LongCovidAwarenessDay

[Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @LongCovidScot]

Thanks to our volunteers for ensuring the space was as safe as can be @ScotParl for coming together in person. #LongCovidScotland #LongCovidAwarenessDay

[Freja @ThrawnFreja]

I should be on @STVNews, @ITVborder, maybe @itvnews tonight for @LongCovidScot.

Keep an eye out and let me know if you see me anywhere!

[Freja @ThrawnFreja]

So much of my energy the last few weeks has been on writing MSP briefings, press release etc.

Please support us any way you can and show the MSPs we need action ahead of #LongCovidAwarenessDay.

[Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @LongCovidScot]

Call to Action: Scottish Government Act on Long Covid

📍Scottish Parliament Main entrance
📅 12.45-1.30pm, Wednesday 13th March
❓ To ask the Scottish Government for action on #LongCovid
😷 Wear an FFP2/3 mask

Please keep any signs respectful and expect press attendance.

[Freja @ThrawnFreja]

A #DisabilityPrideMonth post from a museum! 🤩💕

#DisabilityTwitter #DisabilityInclusion #DisabilityPride

[Freja @ThrawnFreja]

I absolutely love this 🏳️‍🌈🌈

[Freja @ThrawnFreja]

Why is encouraging people to wear a little bit of fabric on their face in order to not kill or disable themselves or others such a difficult, thankless job?

[Freja @ThrawnFreja]

@SawyerBlatz I'm on 2.5mg every 12 hours. I couldn't go higher as my sight went patchy when I did which was a tad terrifying. My BP is so low they couldn't try anything else.

[Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS]

We have now had confirmation from @covidaidcharity that the course has been taken down pending discussions with LGOWIT

We very much hope that it undergoes a thorough revision with the help of people with lived experience of #LongCovid - as should ALL resources such as these

[Freja @ThrawnFreja]

I am delighted to say this dangerous course from @covidaidcharity and LGOWIT has been removed from public view.

Thank you so much to everyone that has shared this. Questions still need to be answered.

[Freja @ThrawnFreja]

£57,600 of @scotgov funding was used by @covidaidcharity and LGOWIT to create a dangerous #LongCovid Self Management course full of awful recommendations - exercising, positive thinking to heal LC, suggests fatigue & shortness of breath are anxiety, depression or lack of exercise

[Freja @ThrawnFreja]

@Sandeshgulhane @LaRadarina @LongCovidSOS @scotgov @covidaidcharity @long_covid @LCNMUK Thank you so much! I can send you the pdfs from the course and the email I sent to @covidaidcharity going through each section and detailing my concerns.

[Freja @ThrawnFreja]

£57,600 of @scotgov funding was used by @covidaidcharity and LGOWIT to create a dangerous #LongCovid Self Management course full of awful recommendations - exercising, positive thinking to heal LC, suggests fatigue & shortness of breath are anxiety, depression or lack of exercise

[Freja @ThrawnFreja]

@LongCovidSOS @scotgov @covidaidcharity @long_covid @LCNMUK Here is a link to the course https://t.co/IqTABax6AG

It is free to sign up until the end of May according to the email @HighlandCouncil sent out to all their employees.

[Freja @ThrawnFreja]

Please share to raise awareness or this dangerous #LongCovid Course.
@DrGrounds @drclairetaylor @CM_7505 @ZeroCovidScot @mciver1977 @amyismall

[Freja @ThrawnFreja]

Here are my sources to back up why this course is so dangerous, particularly for people new to #LongCovid who do not yet know what to do and have never dealt with an energy limiting condition before.