From Kyle, Dianna’s husband:
Two years ago, I married my smart, adventurous, curious best friend. I loved her curiosity and so did her 3M+ followers on her Science YouTube channel.
Now, she’s been 100% bedbound with long Covid for 1.5 years. She lays in a dark room, earplugs in, with only her mind and simple thoughts to keep her company. No, she can’t talk, watch TV, read books, listen to podcasts or even music. She can’t tolerate visitors (even the faint smell of laundry detergent makes her sicker). It’s a kind of locked-in hell and there’s currently no cure for this disease.
We desperately need more funding for research to find the cure for #longcovid and #MECFS . @SenDuckworth@SenMarkey@timkaine@BernieSanders
#MECFS is unimaginably isolating, especially for severe patients like Dianna. The disease just doesn't make sense; even for me, it's taken a year of caring for her every day to start to understand.
To get a sense, Dianna has spent the last year and a half in her room, unable to watch tv or read a book or spend time with friends.
She cannot walk or take care of herself. She can brush her teeth and feed herself, but not much more than that. We can cuddle and hold hands, but sometimes that's too much for her. It's so removed from normal life, and so much worse than you could ever imagine.
It's hard to share these things, because I fear people will blame me or blame her for not treating her properly, for not taking this medication or that supplement, or following such and such a protocol. Or worse yet, suggesting that all she needs is to get up and go for a walk.
Even on this post, people will say those things.
But there's no consistent treatment or even diagnostics at this point. So, we are left alone, in pain, wondering if what we're doing is right or wrong, if there's something else we should have done a year ago that would have avoided all this. We try not to think like that, but it creeps in from time to time.
If you are a physician, please consider getting involved in treating and researching #longcovid and #MECFS While Dianna is still very sick, her doctors and treatments ease her burden and give us hope.
Written by Kyle, Dianna's husband.
It is happening because the corporate news media is enabling it to happen because their owners have a different opinion of who deserves a fair society.
The news is out! The @NANOGrav pulsar timing array collaboration has detected a background of cosmic gravitational waves rippling through our Universe! Let’s talk about it!
(Full press conference tomorrow, https://t.co/7hsBd7IWdO)
1/n
The image taken by the JWST compared to one taken by Hubble, of the galaxy cluster SMACS 0723.
It's s a gravitational lens, showing us the light of galaxies that are far behind the cluster in arcs around it. I tried to orient them the same. LOOK AT THE DIFFERENCE.
@arthurball4 @bbeepbeeep oh, because i have several new disorders, i’m sure.
it was one or the other and the universe said “let’s give ben new disorders by making the world totally bananas for the next years”