Torpedo-CF

This is the account for the Torpedo-CF trial of anti-pseudomonas eradication therapy for people with cystic fibrosis.

[Torpedo-CF @TorpedoCF]

@GreatStrides65 @oli_rayner

[Torpedo-CF @TorpedoCF]

A very strong message here in favour of the role of clinical research trials! https://t.co/OCfZGAPEzv

[Be Part of Research @NIHRtakepart]

“It’s the duty of every doctor to get involved with research��� great report from @annegulland @bmj_latest https://t.co/qXNeNg9RV9

[Torpedo-CF @TorpedoCF]

I’m attending the @cftrust Clinical Trials Forum on Weds 14 May. Find out more and join us:
http://t.co/wzArNCz9le #CFTResearch

[Torpedo-CF @TorpedoCF]

Fabulous!

[Carolyn Bray @RebeccasMummy]

Consenting to @TorpedoCF with my son James today. Fingers crossed we kick pseudomonas' backside!

[Zoë Elliott @zcelliott]

@CFAware we were in the daily mail talking about the @TorpedoCF trial! http://t.co/Kkfo2KWeSg

[Torpedo-CF @TorpedoCF]

Take a look: new update for #TorpedoCF trial at http://t.co/GAw7u7oQws

[Torpedo-CF @TorpedoCF]

@TheCFBall Thanks! Check out http://t.co/0H984mUC3K, trial of eradication of #pseudomonas in children and adults. Newsletter posted soon

[cf/Aware @CFAware]

@oli_rayner @hailes_uk this and things to keep you all entertained! Own bedding or pillows can help too!

[Jeri Dickey @JeriDickey]

@hailes_uk @CFAware a nice pillow for under the IV arm, yes a laptop, blankets, vasoline for the lips, Patience...:D Good luck!

[Sharon Brennan @SharonBrennan]

@hailes_uk favourite cuddly toy, colouring stuff, own pillow, cream as ivs can dry skin, laptop as some hospitals have wifi

[Tink @BLT_x]

@hailes_uk own blanket, pillow, cuddley toy. Colouring, films, laptop anything that they use at home. Us cfs like to make the room like home

[Torpedo-CF @TorpedoCF]

@CFAware thanks for helping spread the word and making us all more #CFAware :-)

[Torpedo-CF @TorpedoCF]

@SUHT_adult_CF thanks for helping spread the word

[Torpedo-CF @TorpedoCF]

@TRWNancy @erickbauer @djwood247 @emmalouiseregan @Scarlett65Roses thanks for helping to spread the word

[Torpedo-CF @TorpedoCF]

@TheCFBall there's lots of info on our website but please ask if you have other questions: http://t.co/0H984mUC3K

[Torpedo-CF @TorpedoCF]

@TheCFBall Hi Debbie - we reviewed all the evidence on the best form of treatment for Pseudomonas. It was unclear so we set up this trial.

[Torpedo-CF @TorpedoCF]

See if your #CF centre is taking part in this important clinical trial: http://t.co/G0W5jQSZBr

[Torpedo-CF @TorpedoCF]

Why take part in the Torpedo-CF clinical trial? Check it out: http://t.co/oGaXaoFMQL #cysticfibrosis

[Torpedo-CF @TorpedoCF]

153 people with #CF from 47 centres have joined our trial. There are people from England, Scotland and Wales but none yet from N. Ireland.