Visual Snow Initiative

Global awareness, education, recognition, resources, and research for Visual Snow Syndrome 👁️🌨️🧠 #VisualSnowSyndrome

[Visual Snow Initiative @VisualSnowInit]

💙 Sierra Domb, Founder Emeritus of the Visual Snow Initiative, was recently featured by CNBC Cures to share her journey with Visual Snow Syndrome (VSS).

🔗 Read more: https://t.co/udeFP0h5Hv

[Visual Snow Initiative @VisualSnowInit]

🗓️ Visit the timeline page on our website to learn more about the history of VSS and what VSI has done throughout the years.

https://t.co/64aoPYjRH1

[Visual Snow Initiative @VisualSnowInit]

Some of VSI’s latest updates 💙

Swipe through six milestones in Visual Snow Syndrome awareness, research, and support 👉

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VSI and Oxford Mindfulness offer a free introductory module for VSS in the Oxford Mindfulness app. It gives people a way to explore the approach at their own pace.

Watch Dr. Wong explain the #research . 🧠
https://t.co/ux3cZX5B8Z

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In this video, Dr. Sui Wong shares what led her to study mindfulness-based cognitive therapy for VSS. It also explains what her first study found and how the approach was adapted for visual symptoms.

https://t.co/ux3cZX5B8Z

[Visual Snow Initiative @VisualSnowInit]

👉 Join using the link in our bio or visit: https://t.co/wqwRiqkN0l
We hope to see you there! 🩵

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Join us TODAY for our #VisualSnowSyndrome Support Group @ 2:00 PM (EST)! 💬

📅 Don’t forget to mark your calendar for future sessions:
Every first Wednesday of the month at 8:00 PM EST
Every third Tuesday of the month at 2:00 PM EST

[Visual Snow Initiative @VisualSnowInit]

This peer-moderated virtual group provides supportive face-to-face conversations, friendly and relatable connections, emotional encouragement, and a safe space to share experiences. (Note: This group is not for medical advice. Please follow the guidelines.)

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💡 If you’ve been diagnosed by a physician in your area who is knowledgeable about VSS but not yet listed in our directory, please email us at [email protected].

🔎 Explore the directory via the following link: https://t.co/mvrsMwSevB

Stay tuned for more updates!

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Attention #VisualSnow community in 🇫🇷

The Visual Snow Initiative (VSI) has added its first physician in #France to the VSI Physician & Specialist Directory! 🌍🩺

This exciting milestone marks an important step in expanding access to knowledgeable care and diagnosis

[Visual Snow Initiative @VisualSnowInit]

for individuals living with #VisualSnowSyndrome (VSS) in France.

We are always accepting additions of doctors worldwide who are aware of VSS and able to provide proper diagnosis and care.

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How to test if you have #VisualSnowSyndrome
https://t.co/lLKwBQ731r

Check out more videos by Dr. Sui Wong on her YouTube channel
https://t.co/bHr8u2VzOT

[Visual Snow Initiative @VisualSnowInit]

ASL/English interpreter Tarra Grammenos, this article highlights why diverse experiences deserve recognition. VSS should not be assumed to be present or absent based only on someone’s vision or hearing ability.

🔗 Learn more:
https://t.co/gVV9tG5sXf

[Visual Snow Initiative @VisualSnowInit]

Yes, people who are Blind, Deaf, DeafBlind, or Hard of Hearing can experience #VisualSnowSyndrome (VSS). 💙

🧠 VSS involves differences in how the brain processes visual and sensory information. Because visual snow is generated by the brain, reduced vision or

[Visual Snow Initiative @VisualSnowInit]

sensory experience. These symptoms can make everyday tasks more challenging, but current scientific evidence does not indicate that VSS causes blindness or deafness.

🤝 Inspired by a collaboration between VSI Founder Emeritus Sierra Domb and

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symptoms may not be immediately understood or accommodated.

Buy your card:
https://t.co/lFfUAY30kt

[Visual Snow Initiative @VisualSnowInit]

The Visual Snow Initiative’s Medical ID and Travel Card was created specifically for people living with #VisualSnowSyndrome . 🪪

The card includes:
👁️ A description of VSS
✨ Symptoms you may experience
🤝 Guidance on how others can help
📋 The ICD-11 code

[Visual Snow Initiative @VisualSnowInit]

personnel, family, or friends who may be unfamiliar with VSS.

The idea came from Founder Emeritus Sierra Domb’s experiences living with VSS and multiple invisible illnesses. 💙 Her goal was to make self-advocacy more accessible and help others communicate their needs when their