Join Genetic Alliance UK for our free Rare Resources Scotland event in Aberdeen on 9 Dec 2025. Get vital info, connect with other people and find support for genetic, rare and undiagnosed conditions.
Book your free place https://t.co/uh9peIPQRT
@quarriers@fragilexuk
7.11 - Williams Syndrome Day
Save the Date!!
Check out our CDLD 40 facts about WS to learn more, or explore our short course!
Facebook @williamssyndromefoundationuk
Instagram @WSF_UK
🥰 My Eva, who has #williamssyndrome.
What is Williams Syndrome, I hear you ask?
Few pics on it and to find out more about Williams Syndrome, visit https://t.co/kP5pS6o2aP @WSF_UK#williamssyndromeday#wsf
On Wednesday 25th July, @WSF_UK are holding a webinar on 'Upholding the legal rights of people with William Syndrome (and similar conditions)' - designed to support parents and carers of children and adults with Williams Syndrome.
Book your pace now: https://t.co/nk016dydvw
Participants needed!
@durhamuniversity require people with Williams Syndrome aged 12 - 25 and their parents, to take part in a study looking at the social world of people with WS. Watch the short video to find out more. https://t.co/6Gub9jBMCv
email: [email protected]
NEW WEBINAR!⭐️
Wednesday 25th July - Upholding the legal rights of people with WS with Eliza Sharron and Imogen Jolley.
Our webinars are designed to support parents and carers of children and adults with WS. Email: [email protected]
It's learning disability week. This year's theme is about being seen, heard and being valued. People over 14 with a learning disability should have a health check every year. https://t.co/rgm9VnLfwJ Make sure you ask your GP for your health check https://t.co/tG9wo7v6uh
Proud to have contributed to Jamie Oliver’s Dyslexia Revolution documentary on Channel 4 with The Jamie Oliver Group, which shines a spotlight on what needs to change in our education system for children with SEND (📚💡
#SEND#EducationReform#Dyslexia#JamieOliver#ComeOnBridget
Participants needed for research study! @durham_uni require young people with Williams Syndrome aged 12 - 25 and their parents, to take part in a study on the social world of people with WS. Please scan the QR codes or email: [email protected].
https://t.co/6Gub9jBMCv
See the plain English https://t.co/FDggwV5Ovv and easy read https://t.co/dSOY3Ox08d guidance on how to the complete the health and care passport template which is for people with a learning disability, autistic people, their families/carers.
May is William’s Syndrome Awareness month. Here’s a message from Peter and I, proud patrons and proud Aunty and Uncle of wonderful Molly who has Williams ❤️. @WSF_UK @DrHeery
We celebrate #WilliamsSyndrome Awareness Month in May. By raising awareness, we can improve early diagnosis and intervention, promote research as well as reduce feelings of isolation and discrimination. Join us and help spread the Williams Syndrome word in May!
@WSF_UK
The @WSF_UK Family Convention provides excellent opportunities for everyone to make friends and share support. There are presentations and workshops hosted by professionals and experts in WS. Find out more about our conventions by watching this video: https://t.co/XZpReULIb0
We are fortunate to have a fantastic Professional Advisory Panel (PAP) - a panel of professionals who have expertise in WS and/or a special interest in voluntarily supporting families with WS.
#WilliamsSyndrome#WilliamsSyndromeSupport@WSF_UK
The @WSF_UK is a small UK charity, providing help and support for individuals with Williams Syndrome. We fund research, create resources and organise regional events to keep families connected. https://t.co/09wyelLWcd
#WilliamsSyndrome#Charity#Rare#Support
Williams Syndrome is a rare genetic condition affecting around 1/18,000 people in the UK. It’s caused by a deletion on chromosome 7. It causes cardiac, physical and mental health problems as well as learning disabilities. https://t.co/09wyelLWcd
#WilliamsSyndrome@WSF_UK