Yan Défossés

A father trying to save his son.

[Meg & Jon Burns @MegNJonBurns]

@isispharm Dr. Stan Crooke, we don't have 18 months to wait. Please apply for accelerated approval NOW! #SMNrx4all #letthemlive

[Ümit @3bzalby]

Today a child dead from SMA in Turkey ;( #SMNrx4all

[jennifer lozina @JenniferLozina]

@isispharm help emily! SMA type 1, age 4. Loves going to preschool, her big brother, reading stories. #SMNrx4all

[Familles SMA France @fSMAfr]

@isispharm Faîtes un choix éthique ! #SMA #SMNrx4all

[Yan Défossés @YanDfosss]

@isispharm #SMNrx4all

[Ionis Pharma @isispharm]

Isis Reports Financial Results and Highlights for Third Quarter 2015: - 2015 Pro Forma Net Income of $25 Milli... https://t.co/hkKI2hTWHe

[Yan Défossés @YanDfosss]

@ThierFournier @JBEmond @francoislegault Ils étaient sensible à la situation ;-)

[Yan Défossés @YanDfosss]

@ThierFournier @JBEmond @francoislegault Pas de problème, c'était le point que je soulevais dans ma discussion avec eux!

[Yan Défossés @YanDfosss]

@ThierFournier @JBEmond @francoislegault Je n'ai donc aucun soutien financier :-(

[Yan Défossés @YanDfosss]

@ThierFournier @JBEmond @francoislegault En fait, je n'ai pas le statut d'aidant naturel,car la personne dont je prends soins est mon fils.

[Yan Défossés @YanDfosss]

Liam est toujours en vie et aura bientôt deux an :-) @snyderjulie, @MBergeronTVA, @lpouimet, @mylenemoisan
http://t.co/g2UpK0FkwO

[Jasmin Lemieux-Lefebvre @jasminll]

@lpouimet @PascaleNadeau Merci de partager l'histoire de http://t.co/PtTuF7pLYs @YanDfosss & https://t.co/Ysg89qMuzx #parents #héros #TJ

[SMA Awareness Ribbon @SMAribbon]

@PaulaAbdul looking for a celeb to wear the SMA Awareness ribbon. Please? August is SMA awareness month.

[Yan Défossés @YanDfosss]

Please, you can help us to finance next injection http://t.co/QsCHUui6SY If it works for Liam other child's could avoid the worst

[Yan Défossés @YanDfosss]

Don't give up Liam, your body can now produce full SMN proteine for the next 4 weeks. #letliamlive Dad already think for the next injection!

[Yan Défossés @YanDfosss]

#letliamlive Instant and positive reaction to the saturation and heart rate. Already some improvement on legs, arms and back:-)

[Yan Défossés @YanDfosss]

#letliamlive, Second injection is done! Many challenges for the trip, but we are income healthy and unless:-)

[Yan Défossés @YanDfosss]

So far so good, we return in january:-) #letliamlive that why we need your help

[Yan Défossés @YanDfosss]

The last 22 nov, We are having the drug produced privatly, and have to fly abroad for Liam to receive his injections. #letliamlive

[Yan Défossés @YanDfosss]

Take a look on new footage of Liam on https://t.co/OXm2NFACBm #letliamlive