@jowhiley this is my friend Ben -10 months ago he was in @BTHFT with Covid refusing to wear an oxygen mask and did not have a good prognosis- health professionals were fabulous - this was last week eating pancakes with chocolate!!! Sending you and your family hugs and love ๐
Motor neurone disease (MND).
It kills a third of people within one year, and more than half within two years of diagnosis. Six people will be diagnosed today. ๐๐ญ ๐ก๐๐ฌ ๐ง๐จ ๐๐ฎ๐ซ๐.
More people need to know this. ๐๐ฅ๐๐๐ฌ๐ ๐ฌ๐ก๐๐ซ๐.
ICYMI @CarersTrust#PushedToTheEdge survey included quotes like this one.
It's no wonder 91 % of #UnpaidCarers feel they are ignored by government.
Link to report below ๐
https://t.co/CDBptsLcXM
"Carers shouldn't be having to leave work to be an unpaid carer"
Laura Bennett from Carers Trust says the charity want the Government to reform the carers allowance to provide more choice and support on #BBCBreakfast
More: https://t.co/tixwDP6Bnc
Iโm proud to be one of the MND Associationโs trustees, I help govern the organisation. Iโm excited to see the launch of the #MNDPromises.
These give the organisation a renewed focus to work faster, fight harder & strive for better, for us all.
๐ค https://t.co/mvo3kEw66p
J R R Tolkien's great grandson Mike was only 39 when he lost his life to motor neuron disease #otd in 2015.
#MND is NOT rare! The reason so few are living with it is because so many are dying!
PLEASE retweet to help raise awareness of this callous killer!
#MND#MoreNeedsDoing!
Did you know supplementary oxygen therapy can have a serious detrimental effect on people with #MND? See our guide for #paramedics and other professionals working in acute/emergency medicine: https://t.co/xZV9Lv6TJP
THANK YOU, John Lamont MP, who has urged Health Secretary @SajidJavid to speed up delivery of the ยฃ50m package for #MND research pledged by @GovUK, stating that "Time is of the essence for people living with motor neuron disease!".
#MND#MoreNeedsDoing!
https://t.co/7FAJM296bo
Lily 100 years old would't let me photograph her until I smartened myself up I had to wear a tie & jacket she said "I've had my hair done,got a new dress and borrowed a necklace, you look like you've been dragged thru a hedge you need to make an effort".
Congratulations to Kevin Sinfield OBE. Such a wonderful lovely and inspirational person. No amount awards can be enough for Kevin Sinfield. We love you millions Kev. God Bless x
Let's start 2022 the way we mean to carry on, by raising awareness of motor neurone disease.
Please retweet our graphic that highlights some of the key facts about the disease.
Together we can achieve our vision of a world free from #MND ๐ thank you for your support!
@dylone9 Merry Christmas to all who are living with this terrible disease - it is my husbands dinner choice too Forticip - when the delivery came he did look for the Christmas dinner one !!! MND might have taken his voice, swallow and legs but his sense of humour is still there x x
So I am always up for a challenge a baggies friend of mine has now challenged me to get 101 retweetโs and he will put ยฃ101 on my just giving page matching Sir Kevs 101 miles https://t.co/kKPXbTKqZ8
Thankyou everyone
#WBA#Baggies#united2endMND
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Two years ago yesterday, I was told I had 1-2 years to live and to get my affairs in order. That day something happened to me - I became more determined than ever! There is no way this horrible disease is going to beat me. 2 years on I'm more focused than ever.