Lynch Syndrome Project 2020

This is a summer studentship funded by the ICS.
We are researching the Quality of Life for people in Ireland with Lynch Syndrome.
Get in touch via DM!

[Emma Davidson @ProfEmmaD]

Delighted to share this paper, published in @JMG_BMJ, showing the value of an IHC pre-screen for the identification of #Lynchsyndrome in women with #ovarian #cancer & an indicative family history. Open access at: https://t.co/q8xkwKgh6k @ECTeamSMH @drnikiflaum @ER_Woodward

[Claire K @Dr_ClaireK]

An important @IrishCancerSoc funded survey to help us scope cancer genetic services in Ireland. Please participate if you are a member of the public or HCP with experience of accessing cancer genetic services!

[Roberta Horgan 🇮🇪 @HorganRoberta]

Are you living in Ireland with a #Lynchsyndrome diagnosis??

If so, please consider participating in this important research study to help assess the Psychosocial impact experienced by LS carriers. Help build awareness & support 🙏
Pls RT 🙏

#ResearchMatters

[Lynch Syndrome Project 2020 @2020Lynch]

The Lynch Syndrome patient survey is STILL ACTIVE!!! If you or someone you know has a Lynch Syndrome diagnosis and would like to participate in research on the Psychosocial Impact of living with Lynch Syndrome, please follow the link below to participate! ⬇️⬇️⬇️⬇️⬇️

[Angela Snow @AKSnow270332583]

@huntsmancancer and @UofUHealth are hosting a FREE virtual educational event for healthcare providers on #LynchSyndrome Friday, August 21, 2020 4pm – 6pm MDT. CME credits are available. Patients may find it informative as well. @Lynchsyndromirl @2020Lynch
https://t.co/Lhx7WZrtR6

[Lynch Syndrome Project 2020 @2020Lynch]

The questionnaire takes only 15 minutes to complete and taking part is completely anonymous. Access to the questionnaire can be found on the link below⬇️

Questionnaire Link: https://t.co/udNG41nW1o

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[Lynch Syndrome Project 2020 @2020Lynch]

The @MarieKeating #Concert4Cancer last night was immense in illustrating the vital services needed for cancer patients. Well done to everyone who worked tirelessly to put this together as I’m sure it was no easy task. 1/3

[Lynch Syndrome Project 2020 @2020Lynch]

Research is fundamental in supporting our cancer services and can aid in building knowledge and awareness.

If you or anyone you know has a Lynch Syndrome diagnosis, research is currently being conducted on the Psychosocial Impact of living with a Lynch Syndrome diagnosis. 2/3

[Roberta Horgan 🇮🇪 @HorganRoberta]

Cancer has a huge presence in my life, both personally and as an advocate for @Lynchsyndromirl. Tonights #Concert4Cancer was such a tonic, can't tell you how great I feel right now ❤️ THANK YOU to everyone involved 🙏

[Lynch Syndrome Project 2020 @2020Lynch]

Your participation is greatly appreciated. This type of research has not previously been done in an Irish setting. If you have any questions please contact [email protected] for more information. 2/2

[Lynch Syndrome Project 2020 @2020Lynch]

If you have a Lynch Syndrome diagnosis and would like to be involved in a study assessing the Psychosocial Impact of living with a Lynch Syndrome diagnosis, please click the link attached to access a questionnaire which only takes 15 minutes to complete. 1/2

[Lynch Syndrome Project 2020 @2020Lynch]

The Lynch Syndrome questionnaire is STILL OPEN to anyone who wishes to participate! To access the questionnaire, find the link below...⬇️⬇️⬇️⬇️⬇️

[lynch syndrome irl @lsireland.bsky.social @Lynchsyndromirl]

Please help to ensure a successful survey....

[Lynch Syndrome Project 2020 @2020Lynch]

Questionnaire Link: https://t.co/udNG41nW1o
It is hoped that this research will increase awareness of the psychological health of Lynch Syndrome patients and give overall support to the Lynch Syndrome community.

[Lynch Syndrome Project 2020 @2020Lynch]

DO YOU HAVE A LYNCH SYNDROME DIAGNOSIS?
Are you interested in taking part in a short online questionnaire assessing the Psychosocial Impact of living with a Lynch Syndrome diagnosis? If so, click the below link to access the questionnaire.
IT TAKES ONLY 15 MINUTES TO COMPLETE!

[Lynch Syndrome Project 2020 @2020Lynch]

@yorkiec Hi @yorkiec, Thank you very much for your message and offer of participation. Its very much appreciated. We are currently recruiting participants who have had Lynch Syndrome while residing in Ireland. Have you previously been resident in Ireland with your diagnosis?

[Lynch Syndrome Project 2020 @2020Lynch]

The Lynch Syndrome 2020 research study assessing the Psychosocial Impact of living with a Lynch Syndrome diagnosis is STILL ACTIVE! If you wish to take part in the survey, please click on the below link to access the questionnaire. Study Link: https://t.co/udNG41nW1o
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[Lynch Syndrome Project 2020 @2020Lynch]

@KeshaMonk Hi Kesha, The link to the questionnaire is https://t.co/udNG41nW1o
Thank you very much for supporting this project.

[Lynch Syndrome Project 2020 @2020Lynch]

Do you or someone you know have a Lynch Syndrome diagnosis?
The below study being conducted by researchers at NUI Galway on the Psychosocial Impact of living with a Lynch Syndrome diagnosis. This research is funded by the Irish Cancer Society. 1/2