20Gifts

This feed will sortof document my journey with glioblastoma

[20Gifts @20Gifts]

/5the original surgery spot so i'll remain just as good looking as i have always been. surgery day is April 20. Hanging in St. Augustine with whole family this weekend which has been awesome. Prayers for #M4H #GBM #rGBM 0#PUPS 20#SUPS love you all!

[20Gifts @20Gifts]

/1long overdue update! we did the next MRI to see how the new chemo worked. It really didnt do anything. You can see from the attached picture where we are at. That little spot back in Jan had grown to the next one, and then if you look at the last one it is bigger.

[20Gifts @20Gifts]

/4it. it is most likely also cancer, but this way we will know for sure. it is in the corpus collusum, right in the middle of the brain. the standard risks apply in the surgery, most prominently stroke. but our surgeon is excellent and seemed very confident. will be going in thru

[20Gifts @20Gifts]

/6basically works on you for 6-8 wks. So this is technically a "recurrence", with a chance that it still "may" be a pseudo progression. Next MRI at end of Mar. Need this to work as a surgery where this spot is is complicated and would likely impact me. #GBM #rGBM #25pups #M4H

[20Gifts @20Gifts]

/1Update time! Its been a while but alot has gone on. On 1/5 we had the regular MRI, and a new little spot appeared. After consulting with our doctors and with Dana Farber, the question was whether to nuke it, or there was a chance that it was "pseudo progression",which is

[20Gifts @20Gifts]

/5again. Good news is they think I will respond well to it. Also, I responded well with fairly mild side effects, fatigue and headaches, but avoiding the nausea they warned about. Also got my first bloodwork back and the counts look pretty good. Amazing that you take once and it

[20Gifts @20Gifts]

/7 this targeted radiation. i will note that the Dr.s exam notes said that I "appear well groomed", something Maria would probably disagree with! Chemo next week, radiation and chemo in Feb, and chemo/another MRI in March! Love you all-keep up the positive vibes!

[20Gifts @20Gifts]

/1 Update time! after traveling to #CapeTown in Nov, I was lucky enough to contract some type of intestinal virus which lasted for 2 weeks, where I missed Thanksgiving completely, and had to push off the Dec. chemo session by a week, as well as the MRI.

[20Gifts @20Gifts]

/6 They are not sure if this is the tumor spreading, it could be "pseudo progression" from the original radiation. The best course of action is the radiation as another surgery to biopsy is not worth it. The spot is located in a fairly unused part of the brain so little risk from

[20Gifts @20Gifts]

/2 are going to #CapeTown SA to visit our Beautiful,Courageous,Awesome daughter @annaegreen22!Also,special shout out to my friend @BlattmanGurion https://t.co/PMhCDUhQWT who earlier in the year lost his wife #Sara to #GBM.Next MRI end of year. Love you all. #20PUPS #301DirtHats

[20Gifts @20Gifts]

/1 We are in the grind it out phase of this battle,finished chemo week last week with the normal fatigue and nausea, which lingers and even grows into the following (this) week. Wed. the following week things get better so today looks good- especially because @MariaGreen628 and I