Running Boston Marathon 2020 to support Amber Freed in her fight against SLC6A1! Time to get rid of rare diseases one by one! Please share! Thank you! Roman
https://t.co/Dh8qnaycic
@BostonMarathon @SLC6A1_Mom #RareDisease#marathon#SLC6A1
It was a marathon to the marathon.
When I secured my spot in the 2020 @bostonmarathon , I wanted to raise awareness for a good cause with my race. Being in biotech, I quickly decided to support the fight against SLC6A1, a rare neurological disorder that leads to …
researchers across the globe.
Finally, last Monday, my journey took me to Hopkinton to run the Boston Marathon for Maxwell and everyone in the fight to find a cure for SLC6A1. I was overwhelmed by the spirit of this marathon and the great support along the course.
objects while training and receiving great support along the way.
The mission to run the Boston Marathon was not completed with a virtual marathon. I used the opportunity to show my support for the fight against rare diseases at the Chicago and New York City Marathon in 2021 …
#rarediseaseday 2023: Finally in less than two months, I can follow through on my promise from 2020 to run the @bostonmarathon for @SLC6A1_Mom . Back then we had to go virtual but now we‘ll be back and run to show support for patients like Maxwell!
#raredisease#marathon#running
One week to go until the 50th #newyorkcitymarathon! Very excited to run this year to raise awareness for SLC6A1 related diseases and Slc6a1 Connect! Let's work together and find a cure! We can do it! #RareDisease
https://t.co/wvjY3CPwPZ
@nycmarathon
Can‘t wait to lace up the shoes again for SLC6A1 Connect!
Gofundme link: https://t.co/q19MJGKLwb
Instagram/Twitter: @26MforMaxwell#slc6a1#marathonrunning
After Boston Marathon being postponed and then going virtual it’s awesome to have it all back this year. Fantastic crowd and great vibes all along the course in Chicago yesterday.
It’s not done yet: For weeks to go until New York City Marathon!