The Lily Foundation

The UK's leading mitochondrial disease charity. We support patients & families, raise awareness & fund pioneering research to find treatments & a cure

[The Lily Foundation @4Lilyfoundation]

10 years ago, The Lily Foundation stood at the heart of the campaign to legalise #mitochondrialdonation.

Today, research confirms it’s working, giving families the chance to have healthy, genetically related children 💗

Read more and please share!
https://t.co/2fp9DK5IuE

[The Lily Foundation @4Lilyfoundation]

Tomorrow marks the start of World Mitochondrial Disease Awareness Week! 💚🌍

Together, we can make more people aware of mito. Together, we can put mito on the map.

Get involved - https://t.co/U2l9KsdOQF

#MitoAware #MitoOnTheMap #MitochondrialDisease

[The Lily Foundation @4Lilyfoundation]

Take A Stand!🤩

Our FREE awareness packs contain everything you need to get started, including leaflets, wristbands, stickers, bunting, balloons, badges, a fundraising pack, poster, collection box and a Lily t-shirt.

https://t.co/HlttfZgEuW

[The Lily Foundation @4Lilyfoundation]

‘𝐓𝐊𝟐𝐝 𝐚𝐜𝐫𝐨𝐬𝐬 𝐜𝐨𝐮𝐧𝐭𝐫𝐢𝐞𝐬: 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬, 𝐦𝐮𝐥𝐭𝐢𝐝𝐢𝐬𝐜𝐢𝐩𝐥𝐢𝐧𝐚𝐫𝐲 𝐜𝐚𝐫𝐞 𝐚𝐧𝐝 𝐭𝐡𝐞𝐫𝐚𝐩𝐞𝐮𝐭𝐢𝐜 𝐩𝐚𝐭𝐡𝐰𝐚𝐲𝐬’.

📍Online
📆 September 9th 2026 (tomorrow) at 2pm UK time

ℹ️ More info and registration here:
https://t.co/79cc3s03ci

[The Lily Foundation @4Lilyfoundation]

Just ONE WEEK to go until World Mitochondrial Disease Awareness Week! 🦋

World Mitochondrial Disease Awareness Week is a time to shine a light on mitochondrial disease. Together, we can raise awareness, spark conversations around mitochondrial disease.

[The Lily Foundation @4Lilyfoundation]

Light up for mito!

World Mitochondrial Disease Awareness Week is fast approaching!🌍

⬇️ Click the link below to use our quick email template and invite your local landmarks to join the cause: https://t.co/k9kphsb5xS

#LightUpForMito #MitochondrialDisease

[The Lily Foundation @4Lilyfoundation]

Join Cure EB's Butterfly Run and make every step count! 🦋🩷

Looking for a fun day out with family and friends? The Butterfly Run is back on Sunday 4th October at the beautiful Queen Elizabeth Olympic Park, London.

Sign up today🤩⬇️
https://t.co/rHU0TIAkpU

[The Lily Foundation @4Lilyfoundation]

World Mitochondrial Disease Awareness Week is just around the corner!

We���re asking our amazing community to help us put mito on the map by changing your Twibbon!

Change your Twibbon today -
https://t.co/aGXizWncNp

[The Lily Foundation @4Lilyfoundation]

World Mitochondrial Disease Awareness Week is fast approaching!🌍

⬇️ Click the link below to use our quick email template and invite your local landmarks to join the cause: https://t.co/GKFCVGhz46

#LightUpForMito #MitochondrialDisease

[The Lily Foundation @4Lilyfoundation]

Take A Stand!🤩

Setting up a Lily Foundation awareness stand is a simple but powerful way to raise awareness of mitochondrial disease in your local community. Our FREE awareness packs contain everything you need to get started!

https://t.co/b2sQgbIzo9

[The Lily Foundation @4Lilyfoundation]

Join Cure EB's Butterfly Run and make every step count! 🦋🩷

Looking for a fun day out with family and friends? The Butterfly Run is back on Sunday 4th October at the beautiful Queen Elizabeth Olympic Park, London.

Sign up today🤩⬇️
https://t.co/rHU0TIAkpU

[The Lily Foundation @4Lilyfoundation]

Take A Stand!🤩

Setting up a Lily Foundation awareness stand is a simple but powerful way to raise awareness of mitochondrial disease in your local community. Our FREE awareness packs contain everything you need to get started!

https://t.co/b2sQgbIzo9

[The Lily Foundation @4Lilyfoundation]

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️✨

Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease.

https://t.co/U1rgC3VcRT

[The Lily Foundation @4Lilyfoundation]

Just one month to go until World Mitochondrial Disease Awareness Week! 💚🌍

This year's theme is 'Putting Mito on the Map'. Save the date, join the conversation, and help us put mito on the map. 💚🦋
https://t.co/hvHd4MR1Ms

#WorldMITOWeek2026 #PuttingMitoOnTheMap

[The Lily Foundation @4Lilyfoundation]

Tickets are almost SOLD OUT for our Lily Golf Day! ⛳

However, it's not too late to sponsor a hole at the event. It’s a great way to promote your company, celebrate someone special or simply show your support if you can’t be there in person

Find out more
https://t.co/cvdsFTHQpE

[The Lily Foundation @4Lilyfoundation]

📣 Registration is now open for the webinar ‘𝐓𝐊𝟐𝐝 𝐚𝐜𝐫𝐨𝐬𝐬 𝐜𝐨𝐮𝐧𝐭𝐫𝐢𝐞𝐬: 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬, 𝐦𝐮𝐥𝐭𝐢𝐝𝐢𝐬𝐜𝐢𝐩𝐥𝐢𝐧𝐚𝐫𝐲 𝐜𝐚𝐫𝐞 𝐚𝐧𝐝 𝐭𝐡𝐞𝐫𝐚𝐩𝐞𝐮𝐭𝐢𝐜 𝐩𝐚𝐭𝐡𝐰𝐚𝐲𝐬’.

ℹ️ More info and registration here:
https://t.co/lK4rFYB6Cu

[The Lily Foundation @4Lilyfoundation]

The London Marathon Disability Ballot is now open! 🏃‍♀️🏃‍♂️

If you're successful in securing a place and would like to support The Lily Foundation, we'd love to welcome you to Team Lily.

https://t.co/0zEz0KppbK

[The Lily Foundation @4Lilyfoundation]

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️✨

Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease.

https://t.co/U1rgC3VcRT

[The Lily Foundation @4Lilyfoundation]

The Lily Foundation are celebrating a MAJOR milestone in mitochondrial research.🚨

As a named partner, Lily are proud to be investing directly in FIVE PhD studentships.

To read more click here - https://t.co/BYoQNOEJt7

[The Lily Foundation @4Lilyfoundation]

Happy National Friendship Day! 🩷

Today, we're celebrating the incredible friendships that have grown through The Lily Foundation.

Learn more about our Family Support Weekend ⬇️🩷
https://t.co/3hdtwSBm6w

[The Lily Foundation @4Lilyfoundation]

🚨 HUGE NEWS!

@peterkay_co_uk has just announced 9 NEW tour dates – with profits split equally between 3 charities, including The Lily Foundation! 💙🎟️

Tickets go on sale this Friday 31st July at 10:00 AM. Thank you, Peter! 🙌
https://t.co/F3wkZYSckw

#PeterKay #MitoAware