United Mitochondrial Disease Foundation

UMDF powers the research, education, & support that is advancing treatments for patients and families affected by mitochondrial disorders.

[United Mitochondrial Disease Foundation @UMDF]

There’s just ONE Energy for Life Walk left for 2026 in Orlando, FL! Join us on Saturday, November 7 at Bill Frederick Park (Pavilion 6 - 3401 South Hiawassee Road) at 9 AM ET as we come together to raise awareness and funding for #mitochondrialdisease. https://t.co/AjWuAv1bDD

[United Mitochondrial Disease Foundation @UMDF]

Reminder: The next Ask the Mito Doc webinar is on Tuesday, October 27 at 7 PM EST. Join us to learn more about Understanding Access to Therapies: Compassionate Use, Expanded Access, and Off-Label Treatment in #MitochondrialDisease. To register, visit: https://t.co/4NBq9QY5J7

[United Mitochondrial Disease Foundation @UMDF]

A community that understands your journey starts here. Connect with patients and families through weekly Virtual Support Meetings hosted by UMDF to share experiences and find encouragement in the #mitochondrialdisease community. https://t.co/weNphgGg21

[United Mitochondrial Disease Foundation @UMDF]

Congratulations to Dr. Bruce Cohen of @AkronChildrens on receiving the Hower Award from the @ChildNeuroSoc! This recognition honors Dr. Cohen’s contributions to the field and his continued dedication to improving the lives of individuals affected by #mitochondrialdisease.

[United Mitochondrial Disease Foundation @UMDF]

We’re grateful to everyone who joined us for UMDF’s Energy for Life Walk – Kansas City! Every step you take helps raise awareness and support the #mito community. Scroll through to relive some of our favorite moments from this special day!

[United Mitochondrial Disease Foundation @UMDF]

Congratulations to @Mighty_Tx and @ucb_news on being named Industry Innovator Honorees as part of @RareDiseases Rare Impact Awards! This well-deserved recognition celebrates both companies’ ongoing contributions to advancing care for people living with #mitochondrialdisease.

[United Mitochondrial Disease Foundation @UMDF]

Thank you to UMDF Ambassador, Jenny Hobbs, for sharing her #mito journey and helping spread the word about the upcoming Energy for Life Walk – Charlotte on @wcnc this morning!  There’s still time to join us and register for UMDF's Charlotte Walk on 10/24.
https://t.co/FLHDKEKYwn

[United Mitochondrial Disease Foundation @UMDF]

There's one final stop left on UMDF’s Biorepository Roadshow with @combined_brain for 2026! Patients with a confirmed #mitochondrialdisease can participate on December 3-4 in Denver, CO. Email [email protected] for availability and to secure your spot.

[United Mitochondrial Disease Foundation @UMDF]

This #BlindnessAwarenessMonth, we’re highlighting the impact of eye & vision challenges in the #mitochondrialdisease community. According to mitoSHARE, 96% of respondents report at least one eye or vision problem. Join mitoSHARE to share your experiences. https://t.co/DrGzduNLCx

[United Mitochondrial Disease Foundation @UMDF]

Find your support circle at one of UMDF's weekly Virtual Support Meetings. Check our events calendar for log in details and to connect with patients and families in the #mitochondrialdisease community. https://t.co/weNphgGNRz

[United Mitochondrial Disease Foundation @UMDF]

A big thank you to @ucb_news, @Drive4Modern, @UPMC, and @PNCBank for sponsoring this year’s National #Mito Movement Challenge! Thanks to everyone who participated, we exceeded our goal of raising $30,000 in honor of UMDF’s 30th anniversary!

[United Mitochondrial Disease Foundation @UMDF]

A big thank you to everyone who came out to support UMDF's Energy for Life Walk – Indianapolis! Your participation helps raise awareness and funds for the #mito community. Take a look at some of our favorite moments from the day and let's celebrate this incredible community.

[United Mitochondrial Disease Foundation @UMDF]

Join UMDF for a new virtual support group meeting on Oct. 21, at 12 PM ET on Rare Disease Drug Access. Designed for #mito patients and caregivers, this session will cover prior authorizations, navigating claim denials, the appeals process, and more. https://t.co/nPLD763cDm

[United Mitochondrial Disease Foundation @UMDF]

Missed this year’s #MitoMed 2026 family programming in Orlando, FL? You can now catch up on the recorded sessions! Explore topics like Approved Therapies Coverage Landscape and Living with Leigh Syndrome: Care, Science, and Support Together, plus more. https://t.co/id0iXYkEWT

[United Mitochondrial Disease Foundation @UMDF]

Do you have questions about access to therapies and treatments for #mitochondrialdisease? Join us for our Ask the Mito Doc webinar on Oct. 27 at 7 PM ET as we explore Understanding Access to Therapies in Mitochondrial Disease. Register: https://t.co/4NBq9QY5J7

[United Mitochondrial Disease Foundation @UMDF]

Support is just a click away! Join one of UMDF's upcoming Virtual Support Meetings where patients and families can connect, share experiences, and find encouragement in the #mitochondrialdisease community. Check our events calendar and join us. https://t.co/weNphgGNRz

[United Mitochondrial Disease Foundation @UMDF]

October is #BlindnessAwarenessMonth. Vision issues can be an important part of the #mitochondrialdisease experience. In our mitoSHARE community, 54% of participants have reported a major vision issue, an optic nerve abnormality, or a retinal abnormality.

[United Mitochondrial Disease Foundation @UMDF]

UMDF, alongside our partners at @MitoAction, International Mito Patients (IMP), @4Lilyfoundation, @MitoCanada, @AusMito, and Mitocon, are hosting a community update regarding the PRIZM study on Oct. 8 at 7 PM ET. To register, visit: https://t.co/QIny6VO907 #mito #MELAS

[United Mitochondrial Disease Foundation @UMDF]

Do you want to host an in-person support meeting? We recently gathered at Columbia Doctors in NYC, bringing members of the #mito community together to share their experiences. If you’re interested in hosting an in-person meeting, email Margaret Moore at [email protected].

[United Mitochondrial Disease Foundation @UMDF]

The latest issue of UMDF Connect is here! Check your inbox for a recap of #WorldMitoWeek2026, new #mito support meetings launching, exciting updates coming to mitoSHARE, and more from across the UMDF community. To read the newsletter: https://t.co/zdIRyuvtFk