The Lily Foundation

The UK's leading mitochondrial disease charity. We support patients & families, raise awareness & fund pioneering research to find treatments & a cure

[The Lily Foundation @4Lilyfoundation]

10 years ago, The Lily Foundation stood at the heart of the campaign to legalise #mitochondrialdonation.

Today, research confirms it’s working, giving families the chance to have healthy, genetically related children 💗

Read more and please share!
https://t.co/2fp9DK5IuE

[The Lily Foundation @4Lilyfoundation]

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️✨

Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease.

https://t.co/U1rgC3VcRT

[The Lily Foundation @4Lilyfoundation]

We're delighted to welcome Arantxa to The Lily Foundation as our new Public and Patient Involvement and Engagement (PPIE) Manager!

Please join us in giving Arantxa a warm welcome! 🩷

To read more about Arantxa click here ⬇️
https://t.co/TYgQjLddI6

[The Lily Foundation @4Lilyfoundation]

A very special celebration for the beautiful Bethany! 🩷

We couldn't let this wonderful milestone pass without celebrating the incredible Bethany, who recently attended her school prom – and doesn't she look absolutely stunning! ✨

[The Lily Foundation @4Lilyfoundation]

Thank you to @OpenAccessGov for featuring us in their 51st edition

We discuss the mitochondrial disease research landscape and our ambitious 10-year vision to develop a UK Mitochondrial Disease Research Institute

Read the full article:
https://t.co/YuNcx7Nag5

[The Lily Foundation @4Lilyfoundation]

We want to say a huge thank you to Skyform for sponsoring our wonderful Croham Hurst Golf Day! ⛳

Interested in getting involved with this fantastic event? Click the link below to learn more about our sponsorship opportunities.

Join us - https://t.co/oWdU7kgFJj

[The Lily Foundation @4Lilyfoundation]

We want to wish a huge thank you to everyone who helped make research such an exciting part of our Lily Family Weekend. 🧬

We are so grateful for everything you do, it was an incredible weekend! 🤩

[The Lily Foundation @4Lilyfoundation]

We are always so grateful to the clinical teams who give their time so generously to support our Lily Family Weekend. 🩺

Your time and kindness make a real difference. #mitochondrialdisease #mito

[The Lily Foundation @4Lilyfoundation]

One leap. One decision. One brave moment!!☁️✈️

This summer, challenge yourself and take the leap for The Lily Foundation, tick it off your bucket list and help change lives.

Ready for the ultimate adrenaline rush? Sign up today -
https://t.co/GGYalMYeO6

[The Lily Foundation @4Lilyfoundation]

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️

Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease.

Sign up today!
https://t.co/7p2tQ6kAdr

[The Lily Foundation @4Lilyfoundation]

Science, smiles and special connections at our Lily Family Weekend. 💗🔬

It was wonderful to bring families, clinicians, researchers and early career scientists together to share knowledge, ask questions and explore the science behind mitochondrial disease.
#science #raredisease

[The Lily Foundation @4Lilyfoundation]

The Lily Foundation Family Weekend 2026!🩷

Our Family Weekend is always a special event in the Lily calendar. It’s a chance for families to connect with others who can understand living with mitochondrial disease.

To find out more visit - https://t.co/MQpNRa7KOJ

[The Lily Foundation @4Lilyfoundation]

Run the Bath Half for The Lily Foundation 🏃‍♀️

This year, places must be secured through general admission, so you’ll need to be FAST to grab your spot!

Sign up today and run for something bigger than the finish line.🩷
https://t.co/zEhx0mnX7Y

[The Lily Foundation @4Lilyfoundation]

The countdown to our Family Weekend is on!🤩

We're so excited to welcome our Lily families together again and wanted to share these fantastic photos of Liz ahead of the big event.🐮

Want to get involved? ⬇️
https://t.co/JNN7FxvCuZ

[The Lily Foundation @4Lilyfoundation]

We were honoured to attend Euromit 2026.

We feel incredibly fortunate to have been part of such an inspiring event, working alongside researchers, clinicians, advocates and families who are all committed in their fight against mito.

https://t.co/VxSA7pvqwG

[The Lily Foundation @4Lilyfoundation]

We were honoured to be invited by Dan from A Star Experience to attend the incredible Head for Change charity event as his guests.

📸Photos with:
@teddysheringham
@RealRomfordPele
@jimmybullard
@davidflatman

Such an honour to have been invited 🩷 #Football #Rugby #Charity

[The Lily Foundation @4Lilyfoundation]

Run the Manchester Marathon 2027 with Team Lily! 🏃

Sign up today through our partner, Run for Charity, and once you’re registered, we’ll support you every step of the way! 🩷 - https://t.co/jeruV9rQ0I

[The Lily Foundation @4Lilyfoundation]

One leap. One decision. One brave moment!!☁️✈️

This summer, challenge yourself and take the leap for The Lily Foundation, tick it off your bucket list and help change lives.

Sign up today and be part of something incredible.
https://t.co/GGYalMYeO6

[The Lily Foundation @4Lilyfoundation]

Huge congratulations to Matt and Team Matilda for completing the Yorkshire Three Peaks Challenge and raising an incredible £1,905 for The Lily Foundation!⛰️

Feeling inspired? Why not take on a challenge of your own? ⬇️
https://t.co/nPMQzpn9sP

[The Lily Foundation @4Lilyfoundation]

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️

Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease.

Sign up today!
https://t.co/7p2tQ6kAdr

[The Lily Foundation @4Lilyfoundation]

Join us for Parallel Windsor 2026! It's the most accessible, sensory-friendly, and inclusive event!

With no cut-off times, it’s not about speed – it’s about inclusion, community and achieving your personal goal. Who’s joining us?! 🤩
https://t.co/itgRvSoWtm