ABC's of MS ♿️ Jane

A substack newsletter about a mother's perspective living with multiple sclerosis for 20-years ✎ by Jane Gould

[ABC's of MS ♿️ Jane @ABCsofMS]

Got my legs all the way on my bed today, all by myself after being paraplegic for 6 months. I’ll take it as a WIN!! 💪🏼♿️ 🏆 #SPMS #MultipleSclerosis #Disability

[ABC's of MS ♿️ Jane @ABCsofMS]

@Juleigh2 Yes!!! lol

[ABC's of MS ♿️ Jane @ABCsofMS]

Wheelchair question: What do you suggest someone who uses a wheelchair does to get noticed in a crowd so they can get through? I was at Opening Day of the MN Twins & got scarily stuck as people pushed in front and around me. A horn? Bicycle bell? Or gone extra early?

[ABC's of MS ♿️ Jane @ABCsofMS]

MS'ers watch & share this fantastic film. $10 to stream for 3 days. It's an inspiring, maddening and beautiful documentary about an MS activist & artist. Available until 4/20. 🧡 #MultipleSclerosis #SPMS

[ABC's of MS ♿️ Jane @ABCsofMS]

ABC's of MS -- MS Documentary: The Art of Rebellion https://t.co/Uhef91g4Ep

[ABC's of MS ♿️ Jane @ABCsofMS]

ABC's of MS: G is for Gratitude https://t.co/rik7zz68mM

[ABC's of MS ♿️ Jane @ABCsofMS]

ABC's of MS: S is for Sclerosis https://t.co/waajorYcST

[ABC's of MS ♿️ Jane @ABCsofMS]

@emma__jenner1 As a disabled person who lives in Minnesota, I currently leave my house once a week. Doing it for a month would be no big deal. #SPMS

[ABC's of MS ♿️ Jane @ABCsofMS]

@Itravelwithms Good luck! I hope you have a brilliant adventure! 🧡

[ABC's of MS ♿️ Jane @ABCsofMS]

@paul_griffin1 You can add tincture to anything - drinks or food - no need to stress about the taste.

[ABC's of MS ♿️ Jane @ABCsofMS]

D is for Death and Depression on ABC's of MS https://t.co/4CUdtvfYl0

[ABC's of MS ♿️ Jane @ABCsofMS]

@kim_crotty I hope they work🤞🏻 They didn’t help me at all (and tizandine was awful), so I had a baclofen pump fitted which does work. So, even if you don’t join the special club, hopefully you’ll find what works for you. 🧡

[ABC's of MS ♿️ Jane @ABCsofMS]

@DumondVince @scorebecca That’s really interesting. Good for you noticing that 🧡

[ABC's of MS ♿️ Jane @ABCsofMS]

@PamelaSwint That would really piss me off!!!! Sorry that happened to you!

[ABC's of MS ♿️ Jane @ABCsofMS]

@GrapplingWithMS @rosanacartman I’ve had MS for 21yrs. Now aged 49 & disabled. I hate the word warrior - it implies MS is a battle to be won or lost by the person’s ability to fight. That’s total bs. Plus I don’t consider myself a warrior.

[ABC's of MS ♿️ Jane @ABCsofMS]

@andy_reynard I often look down wondering if my feet are still attached and what position they’re in. Such a weird thing to experience. Slippers rule. What else can you really get on numb feet?

[ABC's of MS ♿️ Jane @ABCsofMS]

@GavinGiovannoni Super interesting read. Thank you! I do Rituximab every six months, you don’t mention it. Is it similar to any of the treatments you mention? Thank you.

[ABC's of MS ♿️ Jane @ABCsofMS]

@MikeKnight121 I’m so happy you got to go outside. It’s beautiful! Enjoy!

[ABC's of MS ♿️ Jane @ABCsofMS]

@TracyShudo That’s interesting! I’ve avoided that thankfully. I do a bowel program and when I remember to empty my bladder regularly am good. Thank you 🧡

[ABC's of MS ♿️ Jane @ABCsofMS]

@mostlykiwi @TracyShudo Totally agree.