@FlightCentre_UK I need help with customer services team to obtain a refund for a deposit for holiday ref OE3 DG7. Have been told there is 28 day wait to get response. Who can I speak to? AB Hawthorne
@sarahberry_1 @CrohnsColitisR Lon Las Cymru. It’s all about the journey. 4 days of Welsh countryside - beautiful with lots of ups and downs! Great way to support @crohnsColitisUK
@GastroMJB We need more data like this to inform choices for patients. Assessing the very low risk of an often fatal event for patients starting thiopurines currently impossible. Is the risk really higher in adults who are seronegative??
@ibdnurse@ibdportal#BSG2018. It would be nice to measure outcomes in relation to IBD nurses (as well as WTE nos. Eg %advice line calls responded by end of next working day, and other measures of quality?
IBD nurses are central to safe monitoring of immunosupp drugs/biologics. Modelling of case load in UK (Leary/Crohn's Colitis UK) shows we need at least 2.5 WTE per 250,000. That's 450 in the UK. How do we make the case for more -about 300 now? #BSG2018
@ibdnurse@ibdportal Great. Nice study also from Connell Int Med J 2015 shows average time spent managing biologics is 5.25hours 1st year and then 3.5 hrs per yr after. So if you have 200 patients that 1000 hrs !!
#BSG2018. This has been great. Huge unmet need for varied roles of IBD nurses. Not just Monitoring drugs. Getting admin/sec support for IBD nurses may be cost-effective AS WELL as more nurses.
@Crohnoid@drmanmeetm#BSG2018 Standard is generally by end of next working day (email or phone). I think this is a good measure of whether there is enough IBD nurse support. In some ways this is better measure than how many WTE nurses in a unit ?
@AjayMVerma #BSG2018 Some IBD nurses also give the infusions - this is a problem as its hugely time-consuming and should not be counted as part of the IBDnurse role. There are more vital things for them to do