Barney Hawthorne

[Barney Hawthorne @ABHawthorne]

@FlightCentre_UK I need help with customer services team to obtain a refund for a deposit for holiday ref OE3 DG7. Have been told there is 28 day wait to get response. Who can I speak to? AB Hawthorne

[Barney Hawthorne @ABHawthorne]

@jeswaram @SDolwani Great opportunity to present the #IBDStandards to Welsh gastro professionals @ibdukteam at the annual WAGE meeting

[Barney Hawthorne @ABHawthorne]

@DrChrisLamb @BritSocGastro @Gut_BMJ @ACPGBI @BSPGHAN @BDA_Dietitians @BSGAR_UK @PCSGastro @IBDUKTEAM @UniofNewcastle @NewcastleHosps @CrohnsColitisUK I must echo Chris and thank all our collaborators. Great to see the BSG IBD Guidelines published.

[Barney Hawthorne @ABHawthorne]

Life is all about the journey. Full of peaks and valleys. Across Wales supporting @CrohnsColitisR

[Barney Hawthorne @ABHawthorne]

@sarahberry_1 @CrohnsColitisR Lon Las Cymru. It’s all about the journey. 4 days of Welsh countryside - beautiful with lots of ups and downs! Great way to support @crohnsColitisUK

[Barney Hawthorne @ABHawthorne]

@GastroMJB We need more data like this to inform choices for patients. Assessing the very low risk of an often fatal event for patients starting thiopurines currently impossible. Is the risk really higher in adults who are seronegative??

[Barney Hawthorne @ABHawthorne]

@ibdnurse @ibdportal #BSG2018. It would be nice to measure outcomes in relation to IBD nurses (as well as WTE nos. Eg %advice line calls responded by end of next working day, and other measures of quality?

[Barney Hawthorne @ABHawthorne]

IBD nurses are central to safe monitoring of immunosupp drugs/biologics. Modelling of case load in UK (Leary/Crohn's Colitis UK) shows we need at least 2.5 WTE per 250,000. That's 450 in the UK. How do we make the case for more -about 300 now? #BSG2018

[Barney Hawthorne @ABHawthorne]

@ibdnurse @ibdportal Great. Nice study also from Connell Int Med J 2015 shows average time spent managing biologics is 5.25hours 1st year and then 3.5 hrs per yr after. So if you have 200 patients that 1000 hrs !!

[Barney Hawthorne @ABHawthorne]

@davidbarkerceo @BritSocGastro #bsg2018 THanks. Really useful stats in the Crohn's Colitis UK 2017 IBD nurses survey document

[Barney Hawthorne @ABHawthorne]

@EmmaFriddin @IBDPassport @BritSocGastro @CrohnsColitisUK @IBDRegistry @RheumBarts #BSG2018. Agreed. Lets hope this can be rolled out, tech permitting

[Barney Hawthorne @ABHawthorne]

#BSG2018. Thanks to all for lively debate around crucial IBD role and linch-pin of IBD services!

[Barney Hawthorne @ABHawthorne]

#BSG2018. This has been great. Huge unmet need for varied roles of IBD nurses. Not just Monitoring drugs. Getting admin/sec support for IBD nurses may be cost-effective AS WELL as more nurses.

[Barney Hawthorne @ABHawthorne]

@isobelgastro @IBDPassport #BSG2018. What about PaedsIBD nurses. Are they even less provided for than adult IBD nurses?

[Barney Hawthorne @ABHawthorne]

@EmmaFriddin @IBDPassport @BritSocGastro @CrohnsColitisUK @IBDRegistry @RheumBarts #BSG2018 This sounds great!! Lots of ideas how about how IBD Registry can do more. All ideas to be considered! AT this stage PROMs inputted from pts is on the cards, but need two way data exchange!

[Barney Hawthorne @ABHawthorne]

@Crohnoid @drmanmeetm #BSG2018 Standard is generally by end of next working day (email or phone). I think this is a good measure of whether there is enough IBD nurse support. In some ways this is better measure than how many WTE nurses in a unit ?

[Barney Hawthorne @ABHawthorne]

@EmmaFriddin @BHR_hospitals @BritSocGastro How do we translate patients satisfaction into business cases for more nurses? Patient power is vital (supported by Crohn's Colitis UK) #BSG2018

[Barney Hawthorne @ABHawthorne]

#BSG2018 Other professional groups may also be able to support IBDnurses - pharmacist? Physician Associates? What do IBD nurses feel about this?

[Barney Hawthorne @ABHawthorne]

@IBDPassport @ibdnurse @bottomline_ibd @ibdportal #BSG2018. Training for IBD nurses is a major funding issue. How can we support them getting more CPD and further qualifications?

[Barney Hawthorne @ABHawthorne]

@AjayMVerma #BSG2018 Some IBD nurses also give the infusions - this is a problem as its hugely time-consuming and should not be counted as part of the IBDnurse role. There are more vital things for them to do

[Barney Hawthorne @ABHawthorne]

#BSG2018 https://t.co/Tlea969EOE

[Barney Hawthorne @ABHawthorne]

@drmanmeetm @Crohnoid Agree. Sometimes we need to protect our IBD nurses, as they can be bogged down supporting those with massive need