Amy Blomenberg

[Amy Blomenberg @ABlomenberg]

@Huskerhuntshawn Way to go Kaela 🎉

[Amy Blomenberg @ABlomenberg]

Thanks @RepDonBacon from this rare disease mom in LNK. Great to see a Congressman from The Good Life helping to make life good for the most vulnerable. #NEProud

[RDLA @RareAdvocates]

Thank you to @RepDonBacon (NE) for joining the Rare Disease Congressional Caucus!

And to the hundreds of #RareAcrossAmerica2021 advocates who've met with their legislators and made their voices heard for the rare disease community.

[Amy Blomenberg @ABlomenberg]

@JackMitchellLNK Do you consider a hotdog a sandwich?

[Jon Gordon @JonGordon11]

In 2020 it feels like we’re living in pot of boiling water. When placed in the pot an 🥚 is hardened. A 🥕 is weakened. Don’t be like either. Instead be like the coffee bean. It transforms the water into ☕️. You have the power inside you to transform your environment.

[Amy Blomenberg @ABlomenberg]

Love my Rare and the wonderful folks making a difference in the Rare Disease Community

[Horizon @HorizonNews]

NEWS: Today in partnership with @EveryLifeOrg we announced the #RAREis scholarship, our $1 million commitment over five years to support life enrichment activities for adults living with #rarediseases. Learn more about this: https://t.co/hOpAXLsnM6.

[Amy Blomenberg @ABlomenberg]

#Huskers @BenSedivy

[Amy Blomenberg @ABlomenberg]

@coach_frost you have a real class act in @MartinezTheQB. Husker pride swelling in my heart all afternoon watching him take pics with fans at the baseball game. So gracious and kind with each one. #GBR

[Ben Sedivy @BenSedivy]

Spring Game ‘19! There is no place like Nebraska! #HuskerSpringGame #Huskers #GBR

[Horizon @HorizonNews]

For 11-year-old Mya, living with a urea cycle disorder won’t stop her from doing the things she loves. Hear more about Mya’s story that was featured by @Channel8ABC. https://t.co/LRlYlF6iQG

[Channel 8 KLKN-TV @Channel8ABC]

Lincoln fifth-grader battling rare and life-threatening disorder https://t.co/rrAdD50XFF

[BTN LiveBIG @BTNLiveBIG]

How @NIC_Innovates is helping a @UNLincoln faculty-led startup that makes miniature surgical robotics grow big time .

https://t.co/qZsx6kY5Yv

[Amy Blomenberg @ABlomenberg]

@LNKToday @JackMitchellLNK 8:06am and I’m a good 30+ people back to vote @ 84th & Old Cheney.

[Ben Sedivy @BenSedivy]

#Husker fans, you’re never gonna feel better than you do right now! DONATE! @TeamJack @UMNChildrens

[Horizon @HorizonNews]

#FACT: A urea cycle disorder (UCD) is a #raredisease that affects about 1 in 35,000 births in the United States. Find more facts and information to better understand a UCD here: https://t.co/RcOLLAvpUd

[Running4Rare @running4rare]

FACT: 30% of children w/ #rarediseases will not live 2 see their 5th birthday. RT this post 2 help #running4rare raise awareness.

[Amy Blomenberg @ABlomenberg]

@hccaquatics BEST Swim Coaches EVER! What a way to wake up. THANKS!! @hillcrestcclnk

[Amy Blomenberg @ABlomenberg]

@JeffFortenberry And I trust they got your support on a ban of lifetime limits and covering pre-existing conditions. @Huskercub04 @betheball70

[Global Genes @GlobalGenes]

.@HZNPplc is donating $1 to @GlobalGenes (up to $10K) for each person who texts the word “rare” to 565-12. #RAREis #BIO2017 @BioConvention

[Beyond the Diagnosis @BeyondtheDx]

The Most Expensive Prescription Drugs in the World - https://t.co/9YMLm9TBNh #GoogleAlerts

[Sharon Rose Nissley @Rose_of_Sharon8]

Rare Disease Day Our Illness Symptoms must not B ignored due 2 lack of data! #WRDD2017 @GlobalGenes @TheMightySite https://t.co/4LUhvAeGOM