Biologist who's also an ADHDer. Tweeting about doing my job with life set on anything but easy mode! She/her. (Also following some long covid + ME/CFS accounts)
@BCarfree@Naomi_D_Harvey@useless_priest From a quick skim this might be me too - what I've been labelled with is chronic rhinitis.
I'll have a dig at this. I wonder if that's an at home version possible.
Does anyone remember the name of this database thing? I remember there was useful information in it, but can't find it in inbox.
It collated human reports and scraped from social media re useful supplements and meds. Was invite only at first. Black website. Not just long COVID.
@ChrisAlvino@useless_priest Sorry if you've said elsewhere, but did you play much with when you take Taurine? I swear I've read conflicting things on here, but would take me a while to dig.
@useless_priest Following with interest. I've tried a few but am not totally sure. I've had SIBO which seems to have calmed down, but will try again soon.
Peak supps in the UK has decent prices and was recommended to me by others. Seems okay so far.
Long COVID folks, has anyone spotted any data over summer re food supplements/similar to short list/avoid?
After a run of SIBO I'm looking to try again with stuff next month, but might have missed new data.
@ThePOTSPostman ... gastrologist prescribed antibiotics which made life better.
Be aware of low fodmap and low histamine. I ended up doing both accidentally when I dropped down to mostly chicken, rice and potato for a bit.
Good luck figuring stuff out :)
@ThePOTSPostman Would recommend looking up MCAS (mast cell activation syndrome) before you go too wild with diet - co-occurs with POTS quite often.
Some of the tips for fermented stuff will make that worse.
I ended up finding out I had SIBO that was triggering MCAS like symptoms...
@drvyom This might not be you Dr Vyom, but a decent chunk of the people I know who always have thoughts turn out to be at least one of the known flavours of neurodivergent.
I'm a biomedical researcher, so while in principle I knew this internal experience varied, it was wild to me...