Rachael Bikbov

#Autoimmuneencephalitis survivor and warrior. AE advocacy and awareness. Autoimmune Encephalitis Alliance West Coast Support Group Leader.

[Encephalitis International @encephalitis]

Join us to celebrate #WorldEncephalitisDay!

On Wednesday the 22nd of February we are hosting a virtual gathering from 8-9pm (GMT)

If you'd like to sign up or find out more email [email protected]

[Rachael Bikbov @AElikeMe_8]

I’m taking part in the #BrainWalk step challenge to raise vital funds in support of @encephalitis and to raise awareness of #WorldEncephalitisDay on 22nd February. This is a cause close to my heart and I would love your support. https://t.co/vUT0a9smUC

[Rachael Bikbov @AElikeMe_8]

On days when chronic fatigue hits hard, extra pacing is the key to being able to get things done. Also managing expectations of what you want to get done. #chronicillness #chronicfatigue #autoimmune #encephalitis

[Rachael Bikbov @AElikeMe_8]

Let’s get @Starbucks to turn their corporate office red for #worldencephalitisday ! Use #starbucksredforwed and pass this on!

@encephalitis #encephalitis #Awareness #encephalitisawareness #redforwed

[International Autoimmune Encephalitis Society @ae_society]

Pls RT Jonathan D. Santoro, MD will be presenting on #Pediatric #AutoimmuneEncephalitis for #AEawarenessMonth #SpeakerSeries How to recognize, #Diagnose & treatments will be discussed.
Register:
https://t.co/h9EGjKuf1U #Neurology #Psychiatry #brain #Pediatrics #PedsEM #MedED

[Rachael Bikbov @AElikeMe_8]

Next AE Alliance West Coast Support Group meeting: Dec 5th at 4pm PST via Zoom. For more information, or to get the login, please email [email protected]

#encephalitis #autoimmune #support #supportgroup #StrongerTogether #YouAreNotAlone

[Rachael Bikbov @AElikeMe_8]

Her story saved my life.

[Encephalitis411 @encephalitis411]

Have you read Brain on Fire? The New York Times bestselling book about autoimmune encephalitis celebrates 10 years since publication this month🔥

https://t.co/EUvQFFByS5 #encephalitis #autoimmuneencephalitis #antinmda

[Rachael Bikbov @AElikeMe_8]

@wampillows The original wait time was 5 to 6 months. He approved me for next month.

[Rachael Bikbov @AElikeMe_8]

That moment you get a call from neurology saying “the doctor approved you to be seen as soon as possible”. There is something very validating about that with a brand new doctor.

#autoimmuneencepalitis #neurology #antibodynegative #validation

[International Autoimmune Encephalitis Society @ae_society]

In honor of #NationalFamilyCaregiverMonth This week's #IAESBlog focuses on ways to help our #caregivers We hope you find these wonderful tips informative about the many ways caregivers can be cared for! #AutoimmuneEncephalitis #Psychiatry #neurology
https://t.co/HXP0LSGEhj

[Autoimmune Chat @AutoimmuneChat]

How do you explain to family & friends what it really feels like to have an autoimmune disease? How do you explain non-visible symptoms such as fatigue or brain fog? This can be a huge issue for people & can contribute to stress & feelings of isolation. #autoimmunedisease

[Encephalitis411 @encephalitis411]

Seizures are a common presenting symptom of #encephalitis. But did you know that #epilepsy—recurring, unprovoked seizures—can be a long-term consequence of encephalitis, even after the inflammation is gone?

Read more:
https://t.co/SCxQrJYppK
#EpilepsyAwarenessMonth #neurotwitter

[Rachael Bikbov @AElikeMe_8]

@encephalitisiz @Starbucks I loved working for the company and I am really hoping they see this (and others) to help us bring awareness!

[Rachael Bikbov @AElikeMe_8]

@Starbucks I used to be a partner before I got Autoimmune Encephalitis. It would mean the world to me if you helped us turn the world red for #RED4WED Turn Corp Building Red?? @HowardSchultz

[Encephalitis International @encephalitis]

We need you to help turn the world #RED4WED on World Encephalitis Day!

Get in contact with your local landmark and ask them to light it up red on the 22nd of February. Make sure to email us once you have asked so we can keep track.

👇👇
https://t.co/YfAqNIuYlh

[Rachael Bikbov @AElikeMe_8]

@wampillows I hate insurance companies and government insurance.

[International Autoimmune Encephalitis Society @ae_society]

Pls RT #ExtinguishTrial 1st Clinical Trial for a promising new drug, Inebilizumab, to treat #antiNMDAr #autoimmune #encephalitis Must be newly #diagnosed & 18 yrs + Learn more. Questions? contact @StaceyLClardy https://t.co/Zp2oh6g9ZG

[Rachael Bikbov @AElikeMe_8]

Trying to find a #neurologist in Seattle who treats Antibody Negative #autoimmuneencepalitis If you know a good one let me know. Much appreciated!

[Rachael Bikbov @AElikeMe_8]

@encephalitis411 Congratulations!!!! 🙌

[Encephalitis International @encephalitis]

Being a carer for someone with encephalitis can be tough.

For #WorldMentalHealthDay2022 - we want you to know that we can offer support, information, and a way to connect with others to help you on your journey.

Read more below 👇
https://t.co/4AxfQ9QCLE

[Rachael Bikbov @AElikeMe_8]

October 9th is PANDAS/PANS awareness day. It is so important to bring awareness as many still go undiagnosed from a lack of understanding and recognition. #PANDAS #PANDASawareness #pandaspanawarenessday #neurology