AHDA/THA

Alliance for Headache Disorders Advocacy and The Headache Alliance are sister orgs dedicated to making life better for those impacted by headache disorders.

[AHDA/THA @AHDAorg]

#StepTherapy delays care and can cause unnecessary suffering and progression of headache disease. AHDA’s appreciates the conversation with @RepJamesComer, @HHSGov, & @RobertKennedyJr on the need to reduce barriers to treatment. #PatientsFirst #migraine

[AHDA/THA @AHDAorg]

So proud of our youth advocates! Way to go, Jonathan! #HOH2026

[Jessica Cohn @JessicaCohnPA_C]

Words cannot express how proud I am of Jonathan, who presented the #SafeStepAct to Courtney Kaufman from @RepMikeLawler office during our meeting for #HOH2026 !
#AHDA
#youthadvocacy

[AHDA/THA @AHDAorg]

@RepBrianFitz Thank you for being a champion for migraine and headache disorders patients, @RepBrianFitz!

[AHDA/THA @AHDAorg]

We are so grateful to @RepBrianFitz for being a champion for people living with migraine and headache disorders as one of our lead sponsors of the #HEADACHEAct! #HOH2026

[Rep. Brian Fitzpatrick 🇺🇸 @RepBrianFitz]

Had a great meeting with @AHDAorg and two outstanding PA-1 constituent advocates—Jenn Schacht of Doylestown and Ashley Bennett of Chalfont.

Their lived experience and insight are exactly what shaped the bipartisan Headache Act I introduced in September with Congresswoman Lori Trahan—the first-ever coordinated federal initiative focused on headache disorders.

With more than 40 million Americans affected—and headaches the leading cause of disability worldwide—this issue demands a thoughtful and serious national response. Our bill establishes a National Headache Disorders Initiative at HHS, strengthens access to care and workforce capacity, improves data, and keeps patient voices at the center of policy.

Jenn and Ashley, thank you for your leadership and for bringing real-world perspective to this effort. It’s a powerful reminder that advocacy here in PA-1 is helping drive national change. I look forward to continuing our work together with you and the entire AHDA team to continue this progress.

[Nina Riggins, MD, PhD, FAAN, FAHS, UCNS Diplomate @NinaRiggins]

So happy to participate with fantastic ⁦@ScottWPowers⁩ in #HOH2026 ⁦@AHDAorg⁩ 👏 ⁦@ahsheadache⁩ ⁦@AANmember⁩ #AANAdvocacy ⁦@miles4migraine⁩ 👏👏

[Nina Riggins, MD, PhD, FAAN, FAHS, UCNS Diplomate @NinaRiggins]

#HOH2026 ⁦@AHDAorg⁩ ⁦@miles4migraine⁩ ⁦@WNGtweets⁩ #DC ⁦@ahsheadache⁩ 💜⁦@EhrlichNP⁩

[Nina Riggins, MD, PhD, FAAN, FAHS, UCNS Diplomate @NinaRiggins]

#AANAdvocacy ⁦@AANmember⁩ Policy Forum #HOH2026 ⁦@AHDAorg⁩ ⁦@miles4migraine⁩ ⁦@WNGtweets⁩ ⁦@ahsheadache⁩

[AHDA/THA @AHDAorg]

No one should have to shrink their life around pain.

Your support helps us lift up patient stories, grow youth programs, and bring Flags for Headache back in 2026.
Give here: https://t.co/jIiFGdc6zf

#givingtuesday #migraine #headachedisorder #chronicpain #patientadvocacy

[AHDA/THA @AHDAorg]

Don't forget about #HOH2026 applications. We'll be processing our first round of acceptances the last week of October! Applications will be accepted on a rolling basis through 12/05 but apply early for the best chance at reserving your spot!

[AHDA/THA @AHDAorg]

Applications are open for Headache on the Hill 2026! No prior experience is required. Patients, caregivers, clinicians, & researchers are encouraged to apply. Kids are welcome too with a dedicated youth track!
Apply https://t.co/MtvuFC4swq #HOH2026 #Migraine #PatientAdvocacy

[AHDA/THA @AHDAorg]

Medication isn’t the only answer for #migraine.
Join us 10/30 at 12 ET for our next Lunch & Learn:
Complementary Approaches for Migraine Care: Biofeedback & Physical Therapy

Hear from medical experts + patients

Register ➡️ https://t.co/fOHnqJ1uRw

[AHDA/THA @AHDAorg]

It’s #DAFDay! Your #DonorAdvisedFund can help The Headache Alliance build community, raise awareness, and train advocates. Support our work to make headache disorders impossible to ignore.
➡️ https://t.co/PMASvifvyJ

[AHDA/THA @AHDAorg]

The headache community was well represented at our member organization’s Policy & Advocacy Summit! @patientaccess, thanks for a great morning! #patientadvocacy

[AHDA/THA @AHDAorg]

Applications are open for Headache on the Hill 2026! No prior experience is required. Patients, caregivers, clinicians, & researchers are encouraged to apply. Kids are welcome too with a dedicated youth track!
Apply https://t.co/MtvuFC4swq #HOH2026 #Migraine #PatientAdvocacy

[Barbara Nye MD, FAHS @NyeBarbara]

Thank you very much to Rune Moore in @repmcdowel.bsky.social office for taking the time to me with the NC #HOH2025 team yesterday.
you can take action here: https://t.co/iVXnap0VbV...

[Annika Ehrlich, DNP, FNP-C, CNRN, AQH @EhrlichNP]

Thank you Brandon Machado w/ @RepRoKhanna for meeting with us during #HOH2025 and listening to our asks to support the #HEADACHEAct and the #SafeStepAct. These bills will reduce stigma, expand research, and improve access to care for millions.

#Headache #Migraine
@AHDAorg

[Annika Ehrlich, DNP, FNP-C, CNRN, AQH @EhrlichNP]

Feeling FOMO about Headache on the Hill? Join us and send a message to your reps today!

#HOH2025 @AHDAorg

https://t.co/wMt47YQuJ9

[Barbara Nye MD, FAHS @NyeBarbara]

Thank you very much to Sam Madsen in @RepPatHarrigan office for taking the time to me with the NC #HOH2025 team. It was a pleasure to introduce our team. Looking forward to fostering a long term relationship.
#HOH2025

[Jessica Cohn @JessicaCohnPA_C]

Virtual #HOH2025 began this morning with a great meeting with Courtney Kaufman in @RepMikeLawler ‘s office, where we discussed the importance that the #safestepact as well as the #headacheact will have on those with #headache disorders in New York as well as across the US

[Olivia Begasse de Dhaem, MD, FAAN, FAHS (she/her) @obegassededhaem]

Happy and proud to be part of the Connecticut dream team at #HeadacheOnTheHill. Today, we are calling on Congress to cosponsor the bipartisan HEADACHE Act and the Safe Step Act. Patients deserve better care and timely treatment. #HOH2025 https://t.co/RsMgpi2WdK

[pattishank @pattishank]

Proud to represent the Colorado-Montana delegation at #HeadacheOnTheHill. Today, we are calling on Congress to cosponsor the bipartisan HEADACHE Act and the Safe Step Act. Patients deserve better care and timely treatment. #HOH2025 https://t.co/SibKkMoYGp