AdrenoLeukoDystrophy

follow us for facts about AdrenoLeukoDystrophy

[AdrenoLeukoDystrophy @ALD_Facts]

Another form of treatment that is being tested is bone marrow transplant and steroids.

[AdrenoLeukoDystrophy @ALD_Facts]

Such as oils called Lorenzo's oil. (Named after the son of the family who discovered the disease.)

[AdrenoLeukoDystrophy @ALD_Facts]

Many cures are being tested and experimented on patients.

[AdrenoLeukoDystrophy @ALD_Facts]

Because the quality of life is so low, patients are often in a coma.

[AdrenoLeukoDystrophy @ALD_Facts]

For patients with ALD everyday life is very difficult. It is not easy to move, speak, or understand what is happening.

[AdrenoLeukoDystrophy @ALD_Facts]

Ben's Friends is an organization that finds support groups for anyone that needs help coping with a rare disease.

[AdrenoLeukoDystrophy @ALD_Facts]

#FunFact a disease or disorder is considered rare when it affects fewer than 200,000 people. ALD is considered a rare disease.

[AdrenoLeukoDystrophy @ALD_Facts]

There are 3 major categories of this disease. They are the childhood cerebral form, adrenomyelopathy, and impaired adrenal gland function.

[AdrenoLeukoDystrophy @ALD_Facts]

Female carries can be diagnosed 85% of the time using an acid test & a DNA probe in special labs.

[AdrenoLeukoDystrophy @ALD_Facts]

#Discovers of ALD Haberfeld and Spieler

[AdrenoLeukoDystrophy @ALD_Facts]

#OtherNamesForAld Adrenomyeloneuropathy and Schilder Addison Complex

[AdrenoLeukoDystrophy @ALD_Facts]

For children with ALD it is a progressive disease that leads to a long term coma for about 2 years after a neurological systems develop.

[AdrenoLeukoDystrophy @ALD_Facts]

follow us for facts about AdrenoLuekoDystrophy