Tomorrow, as part of #RareDiseaseDay, the House Health Subcommittee will hold a Legislative Hearing on Rare Disease Bills at 10 AM. The hearing will be open to the public and will be live-streamed online at https://t.co/8f5b6oJgpC #ALSAdvocacy
The Kostiuk Care Grant program provides financial assistance to families living in Georgia diagnosed with #ALS or #PLS.
Visit our https://t.co/n3Ie7gWhP3 to access the application materials. 100 applications will be approved during cycle #1. The deadline to apply is Feb 15.
A first in class investigational drug helped people with #ALS retain function longer, according to @AmylyxPharma’s latest CENTAUR trial announcement. For more on this trial and what this bodes for the ALS community, read the full press release here: https://t.co/RW1xXNvrKu
Today’s the day! We can’t wait to see over 125+ of our friends and supporters at @RedBrickBrewing atlantabrewingtaproom today! Don’t have your ticket yet? There’s still time! Grab it today online or purchase it at… https://t.co/FNBQN9l1zO
We are less than $30,000 away from reaching our fundraising goal for the 2019 Atlanta Walk to Defeat ALS! If every registered participant raised just $13 this week - we'd exceed our goal!
What does $745k mean for… https://t.co/9OiFpGUiKA
THIS SATURDAY!! Do you have your tickets yet? Grab them today at a discounted rate! All tickets include craft beer from @RedBrickBrewing, food from @TandTAtlanta, live music, college football viewing party & more!!… https://t.co/DDRwQJZdQB
Will you accept the $13 Challenge? The Atlanta Walk to Defeat ALS is SO CLOSE to reaching its fundraising goal of $745,000 for families living with #ALS in Georgia. If all participants raised just $13 this week, we’d… https://t.co/5bw5jP8yDh
**TICKET PRICES HAVE DROPPED!** Join us for the inaugural Pints for pALS event on October 5th! Football, food, live music and craft beer to support families living with #ALS! 🍻 Purchase your tickets today:… https://t.co/zZJAQK9R9B
After much work & collaboration across the #ALS community, @US_FDA issued its guidance for the pharmaceutical industry this AM. We're reviewing the document and will issue our comments soon. We thank the FDA and the entire ALS community for their efforts. https://t.co/NwUJVsW0sP
The Georgia Chapter Board of Directors was proud to present Dr. Jonathan Glass a check for $100,000 as part of a recent grant fund from The ALS Association for Project MinE’s next phase of work: Establishing a… https://t.co/KtuMsvq2m0
We are thrilled to share that we have raised over $700,000 for families living with #ALS in Georgia! THANK YOU to everyone who made this possible! Help us get to our $745k goal >> https://t.co/2hsmndVzXr https://t.co/GaUQUvOvCe
Have you purchased your tickets yet for #PintsForPals? Grab yours today to join us on Saturday October 5th at @RedBrickBrewing to watch @footballuga take on @vol_football! Craft beer, college football, music, games… https://t.co/0bxnag08mT
Today was absolutely incredible. More than 3,500 people and over $660,000 (and counting!) raised for families living with #ALS in Georgia. THANK YOU to our walkers, team captains, donors, sponsors and volunteers for… https://t.co/BAOfXE2xUz
TWO DAYS! Can’t wait to see 3,000+ of our closest friends and #ALS advocates at Georgia State Stadium (Old Turner Field)! Get all Walk Day Details via the link in our profile #ATLWalkToDefeatALS @ Georgia State… https://t.co/szG16Pllm5
Great news! The Senate has taken the first step toward doubling funding for #ALS research at the DOD, from $10M to $20M. The House has already approved and now the full Senate must approve. We thank ALS advocates and our ALS champions in Congress. /1
We are happy to share a scholarship opportunity for caregivers of individuals living with #ALS:
The Mattie J.T. Stepanek Scholarships, named for peace activist Mattie Stepanek, provide financial assistance to family… https://t.co/B7KZnoFs6A
The Savannah Support Group challenges you to take the Ice Bucket Challenge this Saturday, July 20th! If you donate or participate then Roots Southern Salon will wash, blow-dry, and style your hair 💆🏻♀️
You're invited to Pints for pALS on Saturday, October 5th at @AtlantaBrewing! This event is hosted by our Young ProfessionALS Group and is open to all friends of the association, 21+ 🍻 Tickets and sponsorship opportunities can be found at https://t.co/XvvStI5WRy.