ALS TDI

The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS

[ALS TDI @ALSTDI]

Notice anything different since our last update?

Construction is moving forward on ALS TDI’s new 33,000 sq ft research facility. Hear Dr. Fernando Vieira explain what our expansion means for ALS research: https://t.co/GrbVyXKTl9

[AnswerALS @AnswerALS]

The @NFL has committed $500K to Champion Insights, a study asking why athletes, veterans & first responders face up to 2x the risk of ALS.

Grateful. 💙 Pictured: @SteveGleason & @nflcommish Roger Goodell at Domecoming.

https://t.co/9Hs3KbTeaK @ALSTDI @augiesquest

[ALS TDI @ALSTDI]

We’re looking at a crossroads with many, many different paths that we have to pursue.”

Dr. Fernando Vieira on why ALS TDI is expanding: a new 33,000 sq ft lab in early 2027 and double our science team.

Hear more at our Town Hall this Wed, 3 PM ET: https://t.co/9iW62FIqYm

[ALS TDI @ALSTDI]

That's a wrap on ALS TDI's 2026 Leadership Weekend. 💜 Thank you to everyone who came to Boston for an incredible week of collaboration, connection, and ALS research. We're leaving more determined than ever.

[ALS TDI @ALSTDI]

The 2026 ALS TDI Summit has begun — a full day of ALS science from our researchers and collaborators.

We look forward to hosting you in Boston or virtually for a full day!

[ALS TDI @ALSTDI]

Here's what the 2026 ALS TDI Summit looks like: a full day of ALS science, from TDP-43 modeling to AI-guided data science to a panel on hereditary vs. sporadic ALS. Virtual attendance is free. Join us: https://t.co/cVhuPjOyna

[ALS TDI @ALSTDI]

Meet Pevindi, one of the newest members of our growing research team.

At nine, she asked why some diseases have no cure. Today she's building stem cell models of C9orf72, one of the most common known genetic causes of ALS.

Follow us to learn more about our researchers.

[ALS TDI @ALSTDI]

October is a big month: Leadership Weekend in Boston, two community golf fundraisers, and a virtual Town Hall on our expansion.

The ALS TDI Summit on Oct 9 is free and streams online — a full day of updates on ALS research.

Full lineup: https://t.co/vuPuQYVgFz

[ALS TDI @ALSTDI]

Applications are open to run Grandma's Marathon with Team ALS TDI — full, half, or 5K, June 18–19, 2027 in Duluth.

Grandma's sells out fast. A Team ALS TDI spot is your way in, and every mile funds ALS research.

Apply today: https://t.co/EsDVtAKwLc

[ALS TDI @ALSTDI]

We are deeply saddened by the loss of our friend Brooke Eby.

Brooke talked about ALS with an honesty and humor that made people listen, and brought so many into the fight to end it.

Her 2023 stand-up set at our White Coat Affair: https://t.co/dQvRFoj5L3

[ALS TDI @ALSTDI]

Michele is here to help — and so is our whole team. Whatever a person living with ALS needs at Leadership Weekend, we've got it covered. Comfort and care are our #1 priority.

TODAY IS THE LAST DAY TO REGISTER. This is your sign: https://t.co/lWQ2chztX9

[ALS TDI @ALSTDI]

TOMORROW is the last day to register in person for ALS TDI's Leadership Weekend: Open House at our Watertown lab, the Research Summit, and the White Coat Affair gala.

This is the moment → https://t.co/6dvZha2Gx4

[ALS TDI @ALSTDI]

What happens when ALS research gets mapped? Where clinics are, who lives hours from one, and where ARC participants have lived across their whole lives.

If you've filled out an ARC survey, this is where your data goes. Thank you.

Watch the Town Hall: https://t.co/iZS8VbM4nS

[ALS TDI @ALSTDI]

Meet the people behind the research.

Our scientists explaining their projects at last year's Summit poster session. They're back October 9 with new work.

One week left to register in person.

Summit: https://t.co/ZXP9h8qFVd
WCA: https://t.co/GErQytWYKz

[ALS TDI @ALSTDI]

Our 2025 Annual Report is here — and for the first time, it's fully digital.

See how your support advanced potential treatments, built better research tools, and laid the groundwork for our expansion.

https://t.co/ddbeoLMb2w

[ALS TDI @ALSTDI]

We are encouraged by the positive Phase 3 results for ulefnersen in FUS-ALS, and grateful to every trial participant who made them possible.

Congratulations to the teams at Ionis and Otsuka — more evidence for treatments targeted to specific subsets of people with ALS.

[Ionis @ionispharma]

Today w/ partner Otsuka we announced positive topline results from the Ph3 FUSION study evaluating an investigational RNA-targeted medicine for people w/ amyotrophic lateral sclerosis (#ALS) caused by mutations in the fused in sarcoma (FUS) gene: https://t.co/5FKM4BdUns

$IONS

[ALS TDI @ALSTDI]

At the ALS TDI Summit, hear from ALS TDI scientists and guest experts about promising new approaches across the field—and learn how ALS TDI's expansion will increase our capacity to pursue more of these opportunities.

Read our blog to learn more: https://t.co/MutFgIp3HF

[ALS TDI @ALSTDI]

⏰ Last call — the Sheraton Boston room block for the White Coat Affair closes tomorrow, September 18. If you're joining us in Boston on October 10, now's the time to book. Registration stays open through October 1. https://t.co/aOGudsBhHR

[ALS TDI @ALSTDI]

Boston is back for Team ALS TDI. 🦄

The course runs straight through Newton, where ALS TDI was founded. Run all 26.2 with one mission: to end ALS.

$20,000 fundraising minimum. Apply by 9/28:
https://t.co/oOcXFEoblB

[ALS TDI @ALSTDI]

Thank you to the 150+ people who joined us at the 2026 ALS Walk for Research and raised over $105,000 for research in our lab. 💜

We're already looking forward to next year.