ALS United Illinois

Fighting for a cure and helping individuals living with ALS in Illinois live their lives to the fullest.

[ALS United Illinois @ALSUnitedIL]

Today, we honor the legendary New York Yankees first baseman whose courage in the face of ALS brought national attention to the disease. On Lou Gehrig Day, we remember his impact and stand with the ALS community as we continue the fight for better treatments and a cure.

[ALS United Illinois @ALSUnitedIL]

What started as a vision for Camp United became something even more meaningful thanks to every walker, team captain, sponsor, donor, volunteer, family member, and supporter who showed up for Walk ALS Chicago.

[ALS United Illinois @ALSUnitedIL]

📅 Save the Date!

Join us for the 13th Annual Vendor Expo & Learning Luncheon

Connect with trusted ALS care providers at our Vendor Expo, then stay for a Lunch & Learn featuring insights from national and local ALS experts.

[ALS United Illinois @ALSUnitedIL]

We can't wait to welcome you to Camp United at Walk ALS Chicago tomorrow! 🏕️ Find all the event details you need at https://t.co/y5VbxWBt5Q. Together, We End ALS.

[ALS United Illinois @ALSUnitedIL]

Walk ALS Chicago is almost here, and we can’t wait to welcome everyone to Cantigny Park on Saturday! Online registration closes Friday at 8:00am. Register before the deadline at https://t.co/y5VbxWBt5Q. Onsite registration will be available Sat at the Registration Tent.

[ALS United Illinois @ALSUnitedIL]

This Memorial Day, we honor and remember the brave individuals who made the ultimate sacrifice for our country. ❤️🤍💙

[ALS United Illinois @ALSUnitedIL]

In our recent Living Well with ALS webinar, Scott Marsell shared powerful advice on navigating work, retirement, and making the most of the time that matters most after an ALS diagnosis.
Watch the full webinar replay on YouTube!

[ALS United Illinois @ALSUnitedIL]

There is no better way to close out ALS Awareness Month than by coming together for Walk ALS Chicago on May 30th! 🧡✨ These highlights from last year show exactly what this community is all about. We’re ready to do it all over again, and we need YOU there with us!

[ALS United Illinois @ALSUnitedIL]

We do what we do because of them. This ALS Awareness Month, we are honoring the incredible individuals, families, and caregivers who inspire our mission every single day.

Let’s create a wall of honor right here.

[ALS United Illinois @ALSUnitedIL]

Each year, Major League Baseball celebrates Lou Gehrig Day to honor the legacy of baseball legend Lou Gehrig and raise awareness for ALS. ALS United Illinois is proud to come together with our community at two special Chicago baseball games this year

[ALS United Illinois @ALSUnitedIL]

In this conversation, OT student Maddie Kraus sits down with caregiver Maddie Rynkiewich to talk honestly about navigating life as an ALS caregiver, balancing roles, adapting routines, and finding meaning through change.

Watch our caregiver series on https://t.co/fvCijiIsFR

[ALS United Illinois @ALSUnitedIL]

Every dollar makes a difference in the fight against ALS. 💙 Your donation helps fund advocacy efforts, advance groundbreaking ALS research, and provide critical support services for individuals and families affected by ALS.

[ALS United Illinois @ALSUnitedIL]

Last week, the National Mall was transformed into a sea of blue. From May 6–9, I AM ALS planted 6,000 flags for ALS Awareness Month, each bearing the name of a hero living with the disease or a loved one lost.

Together, we end ALS.

[ALS United Illinois @ALSUnitedIL]

This May, ALS United is kicking off ALS Awareness Month right where the world is watching, Times Square. But awareness alone isn't enough. We need action.

Ask Congress to pass this bill today: https://t.co/SOXGR0w3vX

[ALS United Illinois @ALSUnitedIL]

The Senate ACT for ALS Reauthorization Act has been introduced. Ask your members of Congress to cosponsor the ACT for ALS Reauthorization Act: https://t.co/SOXGR0w3vX

[ALS United Illinois @ALSUnitedIL]

May is ALS Awareness Month 🧡
For us, this month is about showing up for the ALS community in every way that matters. Stay tuned and join us throughout the month as we honor individuals and families affected by ALS.

[ALS United Illinois @ALSUnitedIL]

Get trail ready with Camp United 🏕️
Basecamp Briefings are here to help you feel ready for Walk ALS! Ask questions, get tips and connect with your Camp Counselors.

Wednesdays in May I 12:00pm - 12 30 PM

[ALS United Illinois @ALSUnitedIL]

SAVE THE DATE: The ALS Classic 2026
Join us Wednesday, September 9, 2026 at Cog Hill Golf & Country Club for a day of golf, fun, and impact in support of the ALS community.

🏌️‍♂️Mark your calendars—more details soon!

[ALS United Illinois @ALSUnitedIL]

Registration is open for the Chicago River Swim.

Join swimmers from across Chicago for this historic open water event supporting ALS research and youth swim education.

Sign up or learn more: https://t.co/LMx4Q6Hwb6

[ALS United Illinois @ALSUnitedIL]

ACT for ALS has helped build research infrastructure, improve coordination, and expand access to investigational therapies for people living with ALS. Now Congress has introduced legislation to reauthorize these important programs and keep that momentum going.