The fact that at least FIVE "major" #ALS organizations have not yet signed on in support of the most wanted drug in #ALS history is telling. Perhaps just an honest oversight, and there is time for ALL #ALS groups to come on board before most pALS and cALS note this failure. #ALS
If you follow me you know I have ALS. That ALS is 100% fatal. And that for the first time in 160 years patients like me have reason to hope.
Please join the more than 14,000 people who have signed this petition in under 24 hours. Help make hope real.
https://t.co/F7eeLvc2CF
If Cancer was treated like ALS, there would be little to NO treatments today. #NurownNow@US_FDA needs to do the ETHICAL option and provide Accelerated Approval for Nurown, please. @califf001 @FDACBER Peter Marks @iamalsorg
FDA said #NurOwn had "worked for some, not for all & that it didn’t work for enough people. We would never say that in any other 100% terminal disease. We would never say ... it worked, but not for every cancer patient so we’re not going to approve it'
https://t.co/szxpitLb8r
Our democracy is fragile and under attack.
We all have a duty to defend it. That means accountability for the perpetrators of the attempted coup, and it means passing reforms to protect our elections & our rights to vote.
This opportunity won’t come again. Congress must act.
So this is amazing:
A donor to @iamalsorg has just pledged to donate $5,000 (up to $25K) for every 1,000 new followers that follow me in the next 24 hours.
Twitter can you please help this ALS-having, “not today”-believing, “good night moon”-tweeting guy out?
#Grateful
Big things are happening in the world of #ALS. @foxyclean your MVP worthy season so far has been a joy to watch, but knowing you’re in the fight against ALS brings even more joy to this #nyr fan. Can you help us spread the word about ACT for ALS? #LGR#NHL