Princess, The Tower

Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP

[Princess, The Tower @APainPrincess]

“Pain is soul destroying. No patient should have to endure intense pain unnecessarily." #chronicpain #spoonie

[Princess, The Tower @APainPrincess]

“As the world outside continues to turn, I remain laid up in the one thing that eases any physical pain. The mental pain it causes however, hurts much more.” What It's Really Like to Stay in Bed All Day Because of Pain https://t.co/Ay2x7H0Qgz #ChronicPain #ChronicallyIll

[Princess, The Tower @APainPrincess]

“It's the reality when people cannot see your pain or the other #symptoms accompanying #chronicillness. They assume it doesn't exist or that you're exaggerating it to be much worse than it is.” https://t.co/rtkRtTtVDz @serenebutterfly #FND #chronicpain #chronicallyill

[Princess, The Tower @APainPrincess]

“I would much rather be healthy and working instead of at home and in pain. I barely have a life outside of my #chronicillness. It isn’t easy, and it isn’t fun and being put down/misunderstood because of it makes it so much worse.” https://t.co/DEDVYPfSpF #Disability #ChronicPain

[Princess, The Tower @APainPrincess]

“Most people start the day with possibilities, and energy to do whatever they desire, especially young people… Every little thing I do as a person with #chronicillness(es) and #chronicpain requires energy (especially because #fatigue is a symptom).” https://t.co/rYnG6ERQXy

[Princess, The Tower @APainPrincess]

“#ChronicPain is not simple. It’s really complicated. I have so many different pains in different areas at different times, each requiring different treatment with varying rates of success. People have a hard time understanding this.” https://t.co/rSFaFgEHPo #InvisibleIllness

[Princess, The Tower @APainPrincess]

“Don’t shoulder all the #stress by yourself…the emotional roller coaster of having a #chronicillness makes it necessary to have someone you trust to vent and talk to. Keeping everything inside will only make you feel more stressed.” https://t.co/cfF5AL8xXm #MentalHealthMatters

[Princess, The Tower @APainPrincess]

“#Fatigue weighs heavy in my bones—often sucking the life out of me—but can I explain how that feels…? Words fail me… My struggle to remain even a little bit useful has cracked—and threatens to collapse—for a complete lack of adjectives.” https://t.co/CLRIYrLuca #pwME #spoonie

[Princess, The Tower @APainPrincess]

“My “good hours” are spent working and my “bad hours” (rest of the day) are spent recovering… It’s a massive battle inside me all the time—like I need to prove to others that I’m not “lazy” by not actually taking the rest I need.” https://t.co/bilyEmMcJM #chronicillness #spoonie

[Princess, The Tower @APainPrincess]

“To look halfway decent required a lot of effort. I winced, took breaks, sighed…cursed the pain… I may seem fine. I am not. I’m screaming on the inside. I am trying not to think about the pain. I’m on fire, but you can’t see my flames.” https://t.co/MlSC82n31F #CRPS #RSD #CPP

[Princess, The Tower @APainPrincess]

“Feeling exhausted after a shower. Showering is so hard… Hair wash is always something I dread, as it makes it even worse. I think we have all been there when we have to [rest] afterwards.” Daily Challenges with #ChronicIllness https://t.co/ZwBj7Z2rR4 @throughfibrofog #spoonie

[Princess, The Tower @APainPrincess]

“Pushing through #ChronicPain simply doesn’t work and can completely disable you for days, weeks, months or years… Our bodies will literally disable themselves. And us. Because they should never ever be put under this kind of strain.” https://t.co/9YnVs2q0zu #invisibleillness

[Princess, The Tower @APainPrincess]

“My health has tanked recently… It takes a lot of mental strength to live a life with #ChronicIllness or #ChronicPain… at times… I would say ‘I can’t do this. I can’t survive this.’ But I have [and you have too]… We have to acknowledge the strength.” https://t.co/BjqgMpRKdD

[Princess, The Tower @APainPrincess]

“It’s not just constant unrelenting pain and #fatigue…I experience #migraines…nausea…I struggle to walk…experience #brainfog… At times, being able to think or concentrate becomes an impossible task. I can never experience comfort again.” https://t.co/nDOs9fyA4C #Fibromyalgia

[Princess, The Tower @APainPrincess]

“After the CDC guideline, the agency turned a deaf ear to a chorus of complaints that it was forcing #patients on long-term #opioids into rapid tapers that resulted in uncontrolled pain, withdrawal and even suicide… [as illicit] opioid overdoses doubled.” https://t.co/92kntcXVKP

[Princess, The Tower @APainPrincess]

“The truth is that this face has become a disguise for me. My disguise to hide the #pain and struggles of living with two chronic, incurable illnesses and my #mentalhealth illnesses.” What Hides Behind My Resting 'I’m OK' Face in Life With #ChronicIllness https://t.co/6Rr2fKsi9j

[Princess, The Tower @APainPrincess]

“I have been in a flare for 3 weeks now. The best I can figure is that it’s due to three different issues. The weather… Barometer running up and down the scale…hormonal changes… It feels like a trap or prison.” Habits to avoid in a flare https://t.co/JZoSJNFEN3 #chronicillness

[Princess, The Tower @APainPrincess]

“People assume if you‘re using a disabled parking pass, it must mean you should be in a wheelchair or use a #mobility device. But not all #disabilities are visible… You don’t deserve judgment just because you don’t fit society’s narrative of #disability.” https://t.co/CDhBp8QILY

[Princess, The Tower @APainPrincess]

“If you handle it well, they tend to forget that you’re handling it at all… doesn’t mean that I’m okay… I still have to deal with my illnesses [&] handle everything… I still have way too many medical appointments and way too much #pain.” https://t.co/JlAOGNyOtC #chronicillness

[Princess, The Tower @APainPrincess]

“Being sick is like a revolving door of intensity. On some days, the catastrophic pain trumps the way you feel… On others, you can feel perpetually pulverized by the way you’re trapped in a body that continuously fails.” https://t.co/uxNSSoCNsj #ChronicPain #MentalHealthMatters

[Princess, The Tower @APainPrincess]

“#ChronicPain interrupts my life at every opportunity, putting its stamp on everything that matters… I reach the point where simply managing the pain feels like a small victory… I cope as best I can… I have to… pain like this can be soul-destroying.” https://t.co/9ZHyrZo6Eh