A-T Society

The A-T Society supports people living with the disabling and life-limiting condition ataxia-telangiectasia and funds research to find a cure.

[A-T Society @ATSociety]

The FDA will fast‑track its review of Intrabio’s potential AT treatment, with a decision possible by Sept 2026. If approved, it would be the first treatment for AT. It will still need UK approval, but US progress could help speed things up here too. https://t.co/iowKmZuxce

[A-T Society @ATSociety]

For too many families, a rare diagnosis, such as AT, comes without a viable cure or treatment. On Rare Disease Day we share Kerry Taylor-Smith’s article in Technology Networks.
https://t.co/nlDzj8OdsJ

[A-T Society @ATSociety]

The government has published a new school’s white paper, Every Child Achieving and Thriving
https://t.co/ECZAFIYCXu, setting out plans to fix England’s special educational needs system. If you have questions about this, please contact us at [email protected]

[A-T Society @ATSociety]

To our AT community,
We know many families were hoping for encouraging news from the recent Phase 3 trial of eDSP. Sadly, Quince Therapeutics has announced that the treatment did not show the improvement researchers were looking for. Update attached
https://t.co/mftJNRQT3Q

[A-T Society @ATSociety]

We’re delighted to welcome three new members to our Scientific Advisory Board: Dr Nienke van Os, Dr Ramsay Bowden and Maureen Roden. Their expertise helps ensure we invest in research wisely and stay true to our mission - we’re hugely grateful for their support.

[A-T Society @ATSociety]

🎄✨ Our Winter Raffle is packed with amazing prizes!

Every ticket helps the AT Society provide vital support and fund important research for families affected by AT. 🎟️ Get your tickets today: https://t.co/DLFsU8BIuj 💌 Don’t forget to share this with friends and family!

[A-T Society @ATSociety]

The @BigGive has now closed - and together we raised over £28,220! From the bottom of our hearts, thank you for making this incredible achievement possible.
A big thank you to @HSFCharity for being our Champion Big Give Funder!
#BigGiveChristmasChallenge #HSFCharity

[A-T Society @ATSociety]

Your Donations Are Changing Lives – Thank You!
In the words of children with AT: “Thank you – you are AMAZING!”
📷 Donate here: https://t.co/Al01BbtwyK

[A-T Society @ATSociety]

For ONE WEEK ONLY (2–9 Dec), every donation to the AT Society through the @BigGive will be doubled!
Meet Jonatan, a young boy living with ataxia telangiectasia (AT). He shares why the AT Society matters.
Donate now:
https://t.co/Al01BbtwyK
#ChristmasChallenge #ATSociety

[A-T Society @ATSociety]

The Big Give is LIVE!
For ONE WEEK ONLY (2–9 Dec), every donation to the AT Society will be doubled!
Donate now and make your impact go further:
https://t.co/Al01Bbu4oi
One week. Double the difference. Don’t miss it!

[A-T Society @ATSociety]

What an incredible few days at the AT Clinical Research Conference!
Here, researchers and clinicians share their reflections on the conference.
Watch the video to hear why this event matters - and how it’s shaping the future of AT research.

[A-T Society @ATSociety]

What an inspiring kick-off to the AT Clinical Research Conference! With over 120 delegates joining us, the day was filled with powerful talks, thought-provoking posters, and productive working groups.

A special thank you to Alecia, who lives with AT, for setting the tone.

[A-T Society @ATSociety]

Our charity Golf Day is BACK for 2025 at the stunning Aldwickbury Park Golf Course, sponsored by Optimus Access Limited.

Don't miss out on this incredible event—click the link for more information and to book your place:

https://t.co/Fh7pppDftm

[A-T Society @ATSociety]

There's still time to join the AT Society and take on the 3 Peaks Challenge this June - sign-up closes on the 4th April!📷📷📷
Climb the three highest peaks of Scotland, England and Wales, for more info 📷
https://t.co/G7J7Q19wiO

[A-T Society @ATSociety]

Calling all healthcare professionals, scientists, researchers interested in ataxia telangiectasia. An in-person AT Clinical Research Conference is happening this June. Register here:
https://t.co/YQRf1Vz0zw…
#AtaxiaTelangiectasia #clinicalresearchconference

[A-T Society @ATSociety]

Exciting Opportunity for Researchers and Clinicians!

Join leading experts in the field of ataxia telangiectasia (AT) for a highly anticipated, in-person clinical research conference.
Visit our website to find out more and register:
https://t.co/YQRf1Vzyp4

#ATResearch

[A-T Society @ATSociety]

Calling all healthcare professionals, scientists, researchers interested in ataxia telangiectasia. An in-person AT Clinical Research Conference is happening this June. Register here:
https://t.co/YQRf1Vzyp4

#AtaxiaTelangiectasia #clinicalresearchconference

[A-T Society @ATSociety]

Professor Jeggo, AT Society Trustee and scientific advisor, will lead a discussion with the world's leading ataxia telangiectasia scientists into neurodegeneration in AT.
https://t.co/1xidMjlEiW
Please note, it will be a scientific discussion at a clinical research level.

[A-T Society @ATSociety]

@Kathrinedavies @mel_4nie @NewsomeAcademy Thanks for all your advice, we're looking forward to doing some great work together to help schools with AT pupils!

[A-T Society @ATSociety]

We are very excited that our 'Tee off for AT!' Golf Day is BACK for 2024 at the beautiful Luton Hoo golf course. Follow the link to book your team place today!
https://t.co/szPRDZedTJ