The Patients' Academy for Research Advocacy

We develop educational programs that equip patients and care partners to help inform the development of new and better medicines.

[The Patients' Academy for Research Advocacy @AcadForPatients]

When you shop at https://t.co/lfeQUDyIdD, AmazonSmile donates to The Patients' Academy for Research Advocacy!

#PatientEngagement #BlackFriday #GivingTuesday #donate

[The Patients' Academy for Research Advocacy @AcadForPatients]

“Give me subtitles to the foreign flick of healthcare” from @sarahkrug1 at #patientsaspartners2023

[The Patients' Academy for Research Advocacy @AcadForPatients]

@sarahkrug1 at #PatientsAsPartners2023:
“Patient stories are data with a soul.”

[The Patients' Academy for Research Advocacy @AcadForPatients]

Excited to be at #PatientsasParters2023 again this year

[Project World Impact @pwihub]

This #GivingTuesday help @AcadForPatients empower patients to advocate for research that centers on their needs and preferences. Go to https://t.co/rTWjyaERcf #empoweredpatients #powerful #donate

[The Patients' Academy for Research Advocacy @AcadForPatients]

Great thread on the importance of engaging patient communities in the development of PROs that are relevant and sensitive

[Putrino Lab @PutrinoLab]

Short 🧵on symptom measurement in #LongCovid / #MECFS and other chronic illnesses. We need to do better. Many of the symptoms that we're trying to track don't have a physical biomarker, and while patient-reported outcomes (PROs) are helpful, then need to be far more (1/n)

[The Patients' Academy for Research Advocacy @AcadForPatients]

On May 17 @theNASEM will publish a new report on Improving Representation in Clinical Trials & Research: Building #ResearchEquity for Women & Underrepresented Groups. Register for the release webinar: https://t.co/v5epkdaHKn #EquityinClinicalTrials

[Karen's Club @karensclubnyc1]

Yes! “ Empowered patients will show up differently “❗️ That is true! @pfizer VP of Global Patient Advocacy 🌍 Emma Andrews gives valuable insight #PatientsasPartners2022

[Stacy Hurt (she/her)🌻 @stacy_hurt]

“The experts in the room are #patients. And the experts in the community are its trusted leaders.” Powerful words that speak to the need to communicate and build relationships to ensure diversity, equity, and inclusion in #clinicaltrials #PatientsasPartners2022

[The Patients' Academy for Research Advocacy @AcadForPatients]

Addison Freeman from Reverba: Sponsors can reduce the burden on patients and investigators by engaging and educating patient communities before a study launches. #PatientsasPartners2022

[The Patients' Academy for Research Advocacy @AcadForPatients]

@karensclubnyc1 kicking off #PatientsasPartners2022 with her quest to find a clinical trial for mTNBC. It shouldn’t be that hard!

[The Patients' Academy for Research Advocacy @AcadForPatients]

Looking forward to #PatientsasPartners2022 today and tomorrow

[The Patients' Academy for Research Advocacy @AcadForPatients]

This #GivingTuesday you can help us help patients advocate for research that meets their needs. And if you donate on Facebook, your donation could go twice as far with matching funds! https://t.co/ziX9FJlAnD

[Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey]

Learning to #citizenscience as #patientsincluded be like ... swinging on a ropes course over a crevasse.
Sometimes the rope feels, um, optional from POV of "other side" - research teams.
Work to do!
HT @AcadForPatients
#pharma #healthpolicy #datasharing
https://t.co/vcrcCMVg6C

[The Patients' Academy for Research Advocacy @AcadForPatients]

ICYMI: Patients' Academy CEO @BiotechSusan recently spoke with eyeforpharma on why patient education is key to scaling engagement and increasing participation in research.

https://t.co/jZBXvvoGk3

[Neurotech Network @NeurotechNetwk]

Got a minute or two? Join us for our NYC Neuromodulation virtual session about patient engagement practices in neuromodulation development.
April 22 from 3-4PM EDT.
Featuring: @Cara Altimus @Blythe Karow @Yagna Pathak @Susan Schaeffer
Register here: https://t.co/pkmTN1z6FE

[The Patients' Academy for Research Advocacy @AcadForPatients]

ICYMI: Why drug companies should invest in education and training that increases patients' capacity to partner in R&D, by our CEO and @BrendatweetsDC & @tunis_rachel from @fastercures https://t.co/6oCIUuwqR0

[The Patients' Academy for Research Advocacy @AcadForPatients]

Metani Rooms from CSL: when we asked patients what we could do better, feedback touched everything from manufacturing to commercial ops and biostatisticians

[The Patients' Academy for Research Advocacy @AcadForPatients]

Looking forward to @eyeforpharma Patient Summit USA in Philadelphia today and tomorrow.