TrayCee

[debra of America @debraOfAmerica]

As 2024 ends, we’re so grateful for your support in improving the lives of those with #EpidermolysisBullosa. Here’s to another year of hope and progress! 🎉✨ Check out our blog for highlights: https://t.co/kXFf88Pfqj

[TrayCee @AceTryD]

Today kicks off #EBAwarenessWeek! Big thanks to Mayor Mike Savage for proclaiming Oct 25–31 as EB Awareness Week in Halifax. Nothing says support like posing while someone rocks last year’s pic of you! 😄💙 Let’s make a difference together! 🦋#EpidermolysisBullosa #WeFightEB

[TrayCee @AceTryD]

Congratulations Dr. Anna Bruckner of @ChildrensColo. I had the pleasure of seeing you speak at DCC 2024 - looking forward to seeing you again.

[debra of America @debraOfAmerica]

Announcing our 2024 #debraBenefit Jouni Uitto Impact Award Honoree: Dr. Anna Bruckner of @ChildrensColo! 💫 Join us in celebrating Dr. Bruckner's outstanding contributions to the #EpidermolysisBullosa Community on Oct 26 at @SoFiStadium in LA!

[TrayCee @AceTryD]

It was an incredible experience attending this years #debraCareConference. I met so many wonderful humans 🥰🦋💪🏻. Thank you @debraOfAmerica and @DEBRACanada #epidermolysisbullosa #DCC2024

[debra of America @debraOfAmerica]

The 2024 #debraCareConference was unforgettable, and it's all thanks to YOU —our amazing EB warriors, families, researchers, and advocates! 🎉 A heartfelt thank you to our sponsors, speakers, volunteers, and attendees. #DCC2024

[debra of America @debraOfAmerica]

The 2024 #debraCareConference was unforgettable, and it's all thanks to YOU —our amazing EB warriors, families, researchers, and advocates! 🎉 A heartfelt thank you to our sponsors, speakers, volunteers, and attendees. #DCC2024

[TrayCee @AceTryD]

@Sack_Vegas What are some of your go to podcasts?

[debra of America @debraOfAmerica]

In the more severe cases of #EpidermolysisBullosa , >75% of the body may be covered in open wounds, leaving individuals susceptible to life-threatening infections. How can you tell if a wound is infected? 🔍 Learn more athttps://pulse.ly/vqzu5sldxo

[TrayCee @AceTryD]

February 29th is Rare Disease Day.  Rare Disease Day raises awareness and generates change for 300 million people worldwide living with a rare disease. Thank you, @MikeSavageHFX for proclaiming February 29, 2024 Rare Disease Day in Halifax #RareDiseaseDay #EpidermolysisBullosa

[EB Research Partnership @EBResearch]

It's almost time for #ReportinForDuty 2024!!! 100% of proceeds from this special show will support life-saving research!

Just a few seats left – get 'em while you can: https://t.co/JMh7gFcKJ0

@jakewrogers @RubyAmanfu @thewarandtreaty @JellyRoll615 @eddievedder @PostMalone

[Andy Bowers @evilpez4]

This is the time when I ask you to do one https://t.co/HVzW64sGjY RT or social media post to help boost awareness.
If you have before, my thanks, if not, pick one (I know there are A LOT) & have at it. Shout outs are as good as donating! Lets help #FeedTheNeed
Thanks, kids! -Andy

[Epidermolysis Bullosa News @EpiBullosaNews]

Having loose joints, or hypermobility, contributes to the impaired walking ability seen in children with epidermolysis bullosa, per a study. https://t.co/KzSRMZr3yn

[Mr. MacLean @John_E_MacLean]

Today I was out visiting a @lockviewhigh co-op student with @hfxgov - Transformation & Innovation. Mckenna has been gathering raw data for lots of cool projects, learning Microsoft tool tips, & assisting her mentors with data collection for city planner reports. #DataAnalytics

[TrayCee @AceTryD]

😍😍

[The Laker News - Pat Healey 🇨🇦 @ReprtrPatHealey]

#PHOTOSVIDEO: Sarah Bradford of #NineMileRiver released her debut single Naive at a sold out show at @CarletonHalifax on Nov. 19. Check out the photos we took along with a link to @mattdagley shot video. #EastHants

https://t.co/4Gf7inRmuY

[The Laker News - Pat Healey 🇨🇦 @ReprtrPatHealey]

#VIDEOSTORY: Nine Mile River's Sarah Bradford held a debut release party for her single Naive at @CarletonHalifax on Nov. 19. Video sponsored by Joyful Sounds Music Studio. Video shot/edited by: @mattdagley #EastHants #FallRiverNS @musicnovascotia #Halifax

[debra of America @debraOfAmerica]

Nutrition is a priority for those with #EpidermolysisBullosa as it promotes growth and development, provides nutrients for wound healing, strengthens the immune system to fight infection, and more. 🥑🍗

➡️ https://t.co/77jDwGxWZt

[The Laker News - Pat Healey 🇨🇦 @ReprtrPatHealey]

What an awesome afternoon of music from three talented singers n the release of Sarah Bradford (red) debut single Naive. Watch for the video story on The Laker website n socials #EastHants @CarletonHalifax @mattdagley

[Eddie Vedder @eddievedder]

Repost from @ebresearch: We are heartbroken by the devastating news of the passing of EB community leader, Deanna Molinaro. Deanna was a fierce advocate, brilliant artist, and incredible person who we were blessed to work with and get to know over the years.

[The Laker News - Pat Healey 🇨🇦 @ReprtrPatHealey]

Singer Sarah Bradford from #EastHants will release her debut single this Sunday at @CarletonHalifax. #FallRiverNS (The Laker News will be there covering it)

https://t.co/BjSu19lXt9

[debra of America @debraOfAmerica]

Skin infections are particularly problematic for those with #EpidermolysisBullosa because they decrease our body’s ability to heal wounds.

Dr. Marissa Perman of CHOP offers guidance on treating skin infections in EB in her EB Connect video talk.

➡️ https://t.co/sNKNhu3nLO

[demetrios @demetriosns]

"Along with his extraordinary wife @jillvedder77, they helped cofound @EBResearch which hosted a major EB conference & the benefit shows here in Seattle. Together their work ethos is pure synergy bringing hope, awareness & funding for EB research." @eddievedder