Active Against ALS

Active Against ALS is a nonprofit whose mission is to raise funds for cure driven research while being Active and creating a compassionate community.

[Eva Feldman, MD, PhD @EvaFeldmanMDPhD]

In case you missed it we recently launched a groundbreaking, first-of-its-kind study in #ALS:

https://t.co/PWX3fqKyzf

[Eva Feldman, MD, PhD @EvaFeldmanMDPhD]

What an incredible evening! @ActiveALS hosted a screening of the inspiring "Go On, Be Brave."

Here I am with my dear friend and @MichiganRoss Associate Dean Gretchen Spreitzer and the subject of the documentary @AndreaLytlePeet:

[Brian Wallach @bsw5020]

BREAKING NEWS: I am freaking out with excitement to share that @noc_film will be streaming on @PrimeVideo May 28th!

Please share the trailer below with everyone so that, together, we can change the world. #ForLoveAndLife #NoOrdinaryCampaign

[Active Against ALS @ActiveALS]

We invite you to join us for the Michigan Madness basketball FINALS on April 4 at 5:00pm at the University of Michigan Sports Coliseum. This event to benefit Active Against ALS was organized by our partners:
Phi Delta Theta University of Michigan
https://t.co/DLigxqSQhY

[The ALS Association @alsassociation]

Today’s @CMSGov final rule prevents health insurers from using delay tactics to deny care, a HUGE win for the #ALS community!
The rule mandates Medicare Advantage plans to respond to urgent prior authorization requests from doctors within 72 hours and standard requests within 7 days.
Learn more about how this helps the ALS community and their families.: https://t.co/MMoJDVQHJP

[Active Against ALS @ActiveALS]

It’s our 12th annual Rivalry Ride for ALS Day! We've developed connections with individuals and their families, both near and far, whose lives have been touched by ALS. Some have passed and others are living with ALS. We're honoring more than 80 of them...
https://t.co/TtzaOTmBFT

[Active Against ALS @ActiveALS]

Thank you for being a part of the Active Against ALS community! During the past 15 years we have experienced joy, heartache, gratitude and hope. Please read our special edition newsletter... #ALS #alsresearch #defeatals

https://t.co/a13v85Um8r

[Active Against ALS @ActiveALS]

SAVE THE DATE!
October 5, 2023
Please join us for our 15 -year anniversary event, Uncork a Cure for ALS. Enjoy an evening of food, drink, and entertainment while supporting our goal of raising $150,000 for research. #ALS
https://t.co/hY4CezDqIQ

[Active Against ALS @ActiveALS]

We were pleased to donate books from our May #ALS awareness display at the Chelsea District Library to the library's collection. Thanx to the library for continuing to share information & awareness about ALS (Lou Gehrig Disease). @a_life_derailed
#ALSawareness #DefeatALS

[Active Against ALS @ActiveALS]

Active Against ALS is proud to join the Major League Baseball teams in recognition of the 3rd annual Lou Gehrig Day on June 2nd. Please consider helping us “Strike Out ALS” by donating to support research to find a cure for ALS.

https://t.co/shPRSx0PCL

[MISciWriters @MiSciWriters]

This week on the @MiSciWriters blog, @iverma119 highlights the work of @EvaFeldmanMDPhD in honor of May as ALS Awareness Month. Read the Scientist Spotlight here: https://t.co/dO2Tz8Twku

[Active Against ALS @ActiveALS]

This weekend and on Memorial Day we honor those who have died in service to our country.

We are also reminded that for reasons we don’t yet fully understand "military service may trigger the development of Lou Gehrig's disease, also known as ALS...

https://t.co/PitejAzQKu

[Eva Feldman, MD, PhD @EvaFeldmanMDPhD]

#ALSAwarenessMonth Fact: ALS is put into two categories based on family history.

Familial ALS occurs in patients with a family history (about 15% of cases) Those patients without a family history are termed as having “sporadic ALS”.

[Eva Feldman, MD, PhD @EvaFeldmanMDPhD]

Did you know that certain professions have been found to have increased prevalence or risk of ALS?

Veterans have a higher-than-normal rate of ALS, and last year we found that production occupations have a higher risk of ALS due to exposure to toxins.
#ALSAwarenessMonth

[Active Against ALS @ActiveALS]

NEW LOOK - SAME ORGANIZATION

Active Against ALS has hit a major milestone!  You might have heard 2023 marks the 15-Year Anniversary of our organization. 15 years of community-based events to help raise funds and awareness for ALS.  We felt now...

https://t.co/R2kviAXFu4

[Active Against ALS @ActiveALS]

Our thanks to York for partnering with us to help raise #ALS awareness by displaying our posters and table tents. If you visit them, please let them know how much you appreciate their support.

#ALSAwarenessMonth
#DefeatALS

https://t.co/BuicT3rFd6

[Active Against ALS @ActiveALS]

Thx to the NeuroNetwork for Emerging Therapies at Michigan Medicine for this comprehensive fact sheet. We included it inside the back cover of the books we're placing in neighborhood Little Free Libraries.

https://t.co/VnJm7Zuxna

#littlelibraryals
#ALSAwarenessMonth

[Eva Feldman, MD, PhD @EvaFeldmanMDPhD]

Next fact that people should know about #ALS from my @TheLancet seminar...

In addition to muscle weakness, up to 50% of patients with ALS can also present with changes in cognition and behavior. #ALSAwarenessMonth

[Active Against ALS @ActiveALS]

Thx to the Chelsea District Library for, partnering with us to help raise awareness about ALS (Lou Gehrig’s Disease) by featuring our display of ALS facts, books, and information about our organization and its mission. @ChelseaLibrary

https://t.co/eD60OuMkvO

[ChelseaLibrary @ChelseaLibrary]

Special thanks to Kathy from @ActiveALS for creating this informative display and donating books during #ALSAwarenessMonth. be sure to check it out upstairs the next time you visit the library!