@kirstymecfslife@MastcellMadness For patients considering 2 day cpet to gain clear proof of their condition, the recent Mount Sinai study potentially complicates things:
https://t.co/ZYdMrnzas3
Further studies will follow in due course to clarify one way or the other but for now it adds a shadow of doubt
“There appears to be a bidirectional relationship between connective tissue disorders and
ME/CFS: underlying connective tissue abnormalities may increase susceptibility to ME/CFS, while #MECFS may aggravate connective tissue pathology.” #pwME#EDS#Marfans https://t.co/u0Ndgq78O3
My old account is gone permanently due to inactivity for 30 days so I lost all my connections to the #LongCovid and #MECFS community.
Need to get following everyone again…
So excited to publish this paper with @DrMark_Faghy and a wonderful team of dedicated researchers and clinicians. One paper at a time, let us keep on making a difference!
@_VFK_DAA@seanstidston Chris Masterjohn calls Long Covid "wildly exaggerated" and "basically bullshit" in his tweets. Are you sure you want to promote this person as a supposed mitochondrial expert?
1/7) We are excited to share our preprint, where we present a method to measure thrombo-inflammation that lead to systemic thrombotic endothelialitis in Long COVID, other post-viral and inflammatory diseases in general: https://t.co/R6SkR8Sf7r with @dbkell and lead author Anél Thompson
Our paper is (finally) out in @CellRepMed: antibodies from #LongCOVID patients transfer symptoms to mice, pointing to a potential causal role for autoimmunity: https://t.co/K3za9wNsH2 @amsterdamumc@UMCUtrecht 1/12
@DiamonDie@kirstymecfslife Happiest except for those not accepted by Dutch society, i.e. young people with ME/CFS put away in institutions. Whilst you lived in happy Netherlands people like Kirsty had a parallel life. But everyone else was happy, and you got away from Finland aka Happinness Index Hell
With the time I have left, I want to write about my Long COVID Journey so others won’t suffer the same fate as me.
Doctors and the health care system played a huge role in me becoming terminally ill.
if I were properly treated, I would have survived.
I had to figure my disease out on my own. maybe it’s too late for the information I’ve gained to save me, but it could be helpful for others.
Today our response was published in British Journal of Sports Medicine, addressing the recent scientific statement by the American Heart Association in Circulation on exercise intolerance in Long COVID.
🔗 https://t.co/3sLEzf3CI9
with @PutrinoLab@KasperJanssen
Very excited to share our publication in BBI-Health. Many thanks to a 3 year long collaboration between Uni Würzburg, Charité Berlin, UCSD, and RSU, Riga. https://t.co/gH2ThKPAOq
By linking circulating autoantibodies to endothelial and metabolic dysfunction, this work strengthens the biological basis of ME/CFS and post-COVID.
This study is less about claiming novelty and more about challenging long-standing assumptions that deserve re-examination.
I recently joined a space about ME/CFS, Long Covid, and Post-Vax Syndromes hosted by @kirstymecfslife and @alexandrer81988. Listening to their stories was eye-opening and deeply unsettling. 1/