Adult Preemie Advocacy Network

We are a group of like minded adults born prematurely that strive to connect with and advocate for other adults born early.

[COLLABORATE Randomised Controlled Trial @COLLABORATE_rct]

Calling all UK neonatal teams! COLLABORATE, an adaptive, 2-randomisation, real-world-data-enabled RCT to reduce NEC will go live 06/25! We are running a series of webinars to explain & discuss the study Join us! All welcome! Web-links at
https://t.co/26MzsQaWn7
@BAPM_Official

[Lauren Ingledow @l_prem_88]

@Adultpreemies

[Lauren Ingledow @l_prem_88]

That's a wrap for @Adultpreemies webinar series: Adults Born Preterm - The Honesty Sessions.

Grateful to all the excellent speakers who took part including @Premmiemum @MichelleMKelly1 @The_BPD_Collab @DrColeFletch

[Lauren Ingledow @l_prem_88]

🎉 Today is the day we go live with our webinar series! @Adultpreemies @julietteprem28 @99nicu @vickypayne 🥳🥳

Still time to register and catch the 1st in the series live at 3pm GMT.

Adults Born Preterm: The Honesty Sessions

https://t.co/jk9Te5LZD5

[Adult Preemie Advocacy Network @Adultpreemies]

SIGN UP! https://t.co/MgjCJPfTjT

[Adult Preemie Advocacy Network @Adultpreemies]

Join us for the first webinar in The Honesty Sessions on the 2nd November where Lauren and Juliette will be discussing their path to advocacy
Sign up in the link below 🔽

[Adult Preemie Advocacy Network @Adultpreemies]

Join us as we explore some important topics relating to adults born preterm. 'We just catch up right?' live on 2nd November with Lauren and Juliette

[Lauren Ingledow @l_prem_88]

@99nicu @Adultpreemies Adults Born Preterm: The Honesty Sessions https://t.co/BeIjzCp398

[Lauren Ingledow @l_prem_88]

Excited to reveal that @Adultpreemies will be hosting a series of webinars across November, powered by @99nicu More details to follow.

[Neena Modi @NeenaModi1]

Coming soon! ⁦@BAPM_Official⁩ ⁦@Blisscharity⁩ ⁦@Adultpreemies⁩ ⁦@NeonatalSociety⁩ ⁦@NNAUK1⁩

[James P Boardman @JamesPBoardman]

Protocol for new study in preterm birth, funded by @The_MRC.

Preterm birth as a determinant of neurodevelopment and cognition in children (PRENCOG): protocol for an exposure-based cohort study in the UK @BMJ_Open https://t.co/g4UaOwmoyr

[Nursing Research @NResonline]

Influence of Preterm Birth and Environmental Context on Academic Performance and Neurodevelopmental Outcomes https://t.co/fiZaW8U5zR

[Salvesen Mindroom Research Centre @SMRCResearch]

Registration has opened! Sign up to attend this year's Salvesen Lecture either in person https://t.co/MfKMLQ4hVR or online https://t.co/8qYPJibr6O... or scan the QR code below

[Lauren Ingledow @l_prem_88]

🎉We did it - 5000 visits to the @Adultpreemies website! Thank you everyone and keep spreading the word.

[Adult Preemie Advocacy Network @Adultpreemies]

@drbretty Please get in touch so we can ensure the voice to adults born preterm are included too

[Katie Gallagher @DrKatie_G]

Improving neonatal palliative & end-of-life care is vital to ensure we're providing care that families need. If you're a parent willing to share your experiences, please contact us, we'd love to hear from you @PeepsHie @mancini_smith @dadmattersuk @zephyrsnotts @Adultpreemies

[Lauren Ingledow @l_prem_88]

Our first APAN stand is starting off like us... Small but mighty. Excited to spread the word about all things adult preterm. @Adultpreemies

[emma_lewis @emmalew84262217]

Final call for participants!
Survey closes 3 June 2024.

It would be great to hear from #AdultsBornPreterm

For more info please below:
https://t.co/uxbeh22OwZ

Grateful for shares!

Thank you to everyone who has supported my survey so far 🙏

[Adult Preemie Advocacy Network @Adultpreemies]

There's still over a month left to be a part of this exciting research

[Adult Preemie Advocacy Network @Adultpreemies]

We co-produced this survey with @ChiesiGroup for those born prematurely living with asthma and/or Chronic Obstructive Pulmonary Disease (COPD). Open until the end of June for preemies in the UK, USA, Germany, France and Spain
https://t.co/Pg6DPoLM8R
#asthma #COPD #adultpreemies