Alexandra Pike

Haematologist | PhD candidate in PNH @UniversityLeeds @LIMRLeeds | Specialist interest in #PNH #AplasticAnaemia

[The Max Foundation @themaxfndn]

We're teaming up with the International PNH Interest Group to improve care for people with Paroxysmal Nocturnal Hemoglobinuria (PNH) in low-resource countries. PNH is a rare, debilitating blood disease that requires frequent blood transfusions & poses high risk without treatment.

[PNH Global Alliance @GlobalPnh]

Join our PNH Awareness Campaign! 🌟 From Sept 6 to Oct 12, let's raise awareness about Paroxysmal Nocturnal Hemoglobinuria. Share our posts with #PNHAwareness2024, join discussions, and support those affected. Together, we can make a difference! 💪 #DidYouKnow #TreatingPNH

[Louise Arnold @LouiseShackle]

Access for all to support is vital

[Louise Arnold @LouiseShackle]

It was amazing to represent the wider multidisciplinary team at EHA presenting about PNH with the patients at the centre of everything. #eha2024 #pnh #acp @GlobalPnh @PNHSupport @PNHScotland

[Alexandra Pike @AlexandraCPike]

@LouiseShackle @UniversityLeeds Congratulations Louise!

[Blood Cancer UK Research @BloodCancer_Res]

Fantastic poster session yesterday. 🎉 Congratulations 🎉 to @AlexandraCPike and the team at Leeds, and to @AlexLubin6 & @bethpay and the team at UCL on their ASH Abstract Achievement Awards - a double win for Blood Cancer UK funded grants! 🏆 #ASH23

[PNH Global Alliance @GlobalPnh]

Dr Jens Panse reminds the audience that 80% of #PNH patients have no access to #treatment = significant #inequality As #patients we collectively lobby to address this where we can @lichterzellen @aamdsif @pnhaacontact @hpn_asociacion @PNHCanada @AAundPNHeV @ERNEuroBloodNet

[Alexandra Pike @AlexandraCPike]

https://t.co/hKWMue8ZV9

[Tim Brümmendorf @brummendorf]

Another very nice selected abstract evaluating disease burden and it’s implications for patients with #pnh within a UK-F-G consortium including QLQ-AA/PNH54 developed by ⁦@UniklinikAachen⁩ with strong support and collaboration ⁦@lichterzellen⁩ and ⁦@AAundPNHeV⁩

[HaemSTAR 💙 @HaemSTAR_UK]

Congratulations to @UniversityLeeds' Prof Peter Hillmen for being awarded the Ernest Beutler Lecture and Prize, for 30 years of research on paroxysmal nocturnal hemoglobinuria. Great stuff! https://t.co/hgwWBxwCZY

[The AAT @AplasticAnaemia]

Very proud to say that that the recent Leeds Covid vaccination study, funded by The Aplastic Anaemia Trust, has been published in The Lancet Haematology. https://t.co/sr6SAaLmlk @TheLancetHaem

[@leedshaem @leedshaem]

Congratulations to Dr Pike for her recent publication assessing SARS-CoV-2 antibody response to vaccine in patients with aplastic anemia and PNH; thank you to the patients for their participation
https://t.co/9C2M8shECv

[The Lancet Microbe @LancetMicrobe]

New comment in @TheLancetHaem> #COVID19 vaccination antibody responses in patients with #AplasticAnaemia and paroxysmal nocturnal #haemoglobinuria https://t.co/DatqigKmBr #PNH

[Jennifer Pike @JenniferPikeVLN]

Today musicians gather at 3pm in Trafalgar Square 💛💙#playforukraine @decappeal