My Christmas wish is for my followers to share this video to help raise awareness of the rarer brittle bone disease Osteogenesis Imperfecta! Merry Christmas!!!
https://t.co/gMZUR8eddM
Almost 1yr old Ella with her sister's lilac bush donated by the wonderful Golisano Children's Hospital NICU nurses and now 12 1/2yr old Ella with her sister's Butterfly at Grace’s Garden located at the Golisano.
Dear Alle,
May 21, 2009, at 11:07 am on this bench at Golisano Children's Hospital we held you as you went to heaven, please know we did all we could. A part of us died with you that day. I can still feel you in my arm, I am proud to call you my daughter, we all love you!
Not looking forward to tomorrow. May 21, 2009, we made the heartbreaking decision to take Alle Shea off life support. It was also the first and last time we held Alle without cushions and padding between us. she opened her eyes one last time and saw her proud parents. we miss u
6 years ago I was one of the grand prize winners of Kwik Fill Sounds of Christmas contest, I won over $2,000 worth of musical instruments. I decided to use them as raffle items to raise money for the OI Foundation!!! #oiawerness#brittlebones#OIAwarenessWeek#MyUnbreakableStory
I share Alle's xrays for the first time in 14 years. I do this for OI Awareness Week, when I first saw them my heart just broke, my baby was so broken. This is OI the rare brittle bone disease.... At birth, Alle had broken ribs, arm, wrist, legs, and her skull was fractured
Day 2 of OI Awareness Week @News_8 Extraordinary People on the Snuggle Buddy care packages we send to kis with OI all over the world! Since this interview, we have sent 199 care packages to 41 states and 10 countries. https://t.co/zZwMpyjnYf
I will try to do my best to give information about Osteogenesis Imperfecta for OI awareness week, first up Rodding sugery. many children may need this surgery children Who have curved bones,
repeatedly break a long bone many at a very young age.
National OI Awareness Week begins on Saturday! @CityRochesterNY proclaimed May 6 - 13 as OI Awareness Week in Rochester
For more information on how you can raise awareness and support the OIF this week, visit https://t.co/W4GIAw7bEh. #OIawarenessWeek#UnbreakableSpirit
Tomorrow at 8pm I will be on Inspirational Talk with Toneal! I will tell Alle's story and how we are doing work in her name, I will give more details soon!!!