The Alle Shea Project

Advocate for Osteogenesis Imperfecta (OI) aka brittle bones in memory of my daughter Alle Shea that passed away from OI after 5 weeks of life.

[The Alle Shea Project @Allesheaproject]

@pulte Pay off my cards and donate to the oi foundation

[The Alle Shea Project @Allesheaproject]

My Christmas wish is for my followers to share this video to help raise awareness of the rarer brittle bone disease Osteogenesis Imperfecta! Merry Christmas!!!

https://t.co/gMZUR8eddM

[The Alle Shea Project @Allesheaproject]

Merry Christmas to everyone from The Alle Shea Project!!!

[The Alle Shea Project @Allesheaproject]

Almost 1yr old Ella with her sister's lilac bush donated by the wonderful Golisano Children's Hospital NICU nurses and now 12 1/2yr old Ella with her sister's Butterfly at Grace’s Garden located at the Golisano.

[The Alle Shea Project @Allesheaproject]

I want to share a message I received from the CEO of the OI Foundation!! Feeling very proud!
#KindnessMatters #inspired #goodnews

[The Alle Shea Project @Allesheaproject]

Dear Alle,
May 21, 2009, at 11:07 am on this bench at Golisano Children's Hospital we held you as you went to heaven, please know we did all we could. A part of us died with you that day. I can still feel you in my arm, I am proud to call you my daughter, we all love you!

[The Alle Shea Project @Allesheaproject]

Not looking forward to tomorrow. May 21, 2009, we made the heartbreaking decision to take Alle Shea off life support. It was also the first and last time we held Alle without cushions and padding between us. she opened her eyes one last time and saw her proud parents. we miss u

[The Alle Shea Project @Allesheaproject]

What an amazing voice! She will go far!! #tallent #singer #torikelly

[Angelo Collazo @acollazo414]

Ella Sung Always Love You by Tori Kelly at a special Mother's Day Cabaret!!! https://t.co/IIMtXEN6yP
@TheTalkCBS @DrewBarrymoreTV @585Kids #torikelly #roc #twosues

[The Alle Shea Project @Allesheaproject]

6 years ago I was one of the grand prize winners of Kwik Fill Sounds of Christmas contest, I won over $2,000 worth of musical instruments. I decided to use them as raffle items to raise money for the OI Foundation!!! #oiawerness #brittlebones #OIAwarenessWeek #MyUnbreakableStory

[The Alle Shea Project @Allesheaproject]

If you are unfamiliar with Osteogenesis Imperfecta, here is some info

[The Alle Shea Project @Allesheaproject]

I share Alle's xrays for the first time in 14 years.  I do this for OI Awareness Week, when I first saw them my heart just broke, my baby was so broken.  This is OI the rare brittle bone disease.... At birth, Alle had broken ribs, arm, wrist, legs, and her skull was fractured

[The Alle Shea Project @Allesheaproject]

An OI parent will understand!!! Can you imagine having to have a letter from your DR to say you are not abusing your child

[The Alle Shea Project @Allesheaproject]

Day 2 of OI Awareness Week @News_8 Extraordinary People on the Snuggle Buddy care packages we send to kis with OI all over the world! Since this interview, we have sent 199 care packages to 41 states and 10 countries. https://t.co/zZwMpyjnYf

[The Alle Shea Project @Allesheaproject]

I will try to do my best to give information about Osteogenesis Imperfecta for OI awareness week, first up Rodding sugery. many children may need this surgery children Who have curved bones,
repeatedly break a long bone many at a very young age.

[The Alle Shea Project @Allesheaproject]

Happy Osteogenesis Imperfecta Awareness Week! #wishboneday #oiawarenessweek #roc

[The Alle Shea Project @Allesheaproject]

National OI Awareness Week begins on Saturday! @CityRochesterNY proclaimed May 6 - 13 as OI Awareness Week in Rochester
For more information on how you can raise awareness and support the OIF this week, visit https://t.co/W4GIAw7bEh. #OIawarenessWeek #UnbreakableSpirit

[The Alle Shea Project @Allesheaproject]

Tomorrow at 8pm I will be on Inspirational Talk with Toneal! I will tell Alle's story and how we are doing work in her name, I will give more details soon!!!

[The Alle Shea Project @Allesheaproject]

@pulte Hope I will get lucky of a follow that way you can see the good I do :)

[The Alle Shea Project @Allesheaproject]

Your work continues Alle!! You are helping so many with your story and brave fight!!! #GoodNews #fundraising #oi #brittlebones