Alli Anthony

Proud to be working for the Motor Neurone Disease Association

[MND Education @mndeducation]

Our information sheet on managing dysphagia has now been endorsed by the @RCSLT!

The publication provides key information to HSCPs on how to identify and manage swallowing, eating and drinking difficulties in people with #MND

Download or order it from https://t.co/tR5gyGhSu9

[MND Association @mndassoc]

We asked you to share special days that mattered. Here's what you said. 🧡

#GlobalMNDAwarenessDay #SpecialDaysMatter

[MND Education @mndeducation]

We're pleased to launch our revised guide Our support for MND professionals

In this guide, you'll find comprehensive information on all the ways the Association can support you in your role & help you care for people with #MND

Download it on https://t.co/tR5gyGhSu9

[MND Association @mndassoc]

July is Disability Pride Month.

Accessibility gives people with MND the power to stay connected, heard and in control. That’s why accessibility is such an important part of pride.

The latest MND Matters episode explores the world of voice banking and how rapidly evolving technology is helping people preserve their voices and stay heard in their own way.

Listen now. 🔗 https://t.co/oDA9uEvaPy

[APPG on Motor Neurone Disease @APPGonMND]

Today, nearly twenty MPs and MSs from across Merseyside, Cheshire and North Wales have written to the @WaltonCentre urging them to ensure access to the ground‑breaking new treatment, tofersen, for people with a rare genetic form of #MND.

[MND Association @mndassoc]

Every day we support people affected by motor neurone disease.

Every day we push for better care and policy change.

Every day we fund and drive research towards treatments and a cure.

Every day matters.

[MND Association @mndassoc]

Every day matters when you have MND, no one understands that better than the people who share their stories with us, like Rob.

We're shaped by their experiences, honesty and determination. We’re proud to share their voices as part of this new chapter.

[MND Campaigns @mndcampaigns]

Disabled Facilities Grants (DFGs) are urgently needed for people affected by MND living in inaccessible housing. Yet, people are facing significant barriers in accessing housing adaptations.

Listen to James’ DFG journey and join our #UnlockTheDoor campaign.👇

#MND

[MND Education @mndeducation]

On 10 March Dr @ejmayberry & Prof R Gould will host a one-day online workshop to introduce HSCPs to acceptance and commitment therapy (ACT)

You'll learn how to use ACT principles to help people with #MND make care decisions and consider therapies

Book on https://t.co/lKXHn3Aylc!

[MND Association @mndassoc]

To find tomorrow's treatments, we need to better understand the causes motor neurone disease.

Over the next five years we’ll help build tests to detect MND sooner and understand how it progresses in each person. This means everyone will get the right care at the right time.

🔗https://t.co/TaYO6f5lw0

[MND Association @mndassoc]

A week ago today, we marked the start of a new chapter for the MND Association at a launch event alongside our Royal Patron, HRH The Princess Royal, people with MND and our supporters.

Thank you to everyone who joined us and helped make the evening so meaningful.

🔗https://t.co/xXDgRb5BwB

[MND Association @mndassoc]

Our new look is made possible by the people at its heart.

Debbie, who has MND, shows what every day matters truly means: the importance of support now, progress in research, and a future that can’t wait.

She inspires our determination to make every day matter.

[MND Association @mndassoc]

MND moves fast. Research must move faster.

Hear more about our five year research and innovation strategy.

🔗https://t.co/OR2xIlCMsS

[MND Association @mndassoc]

@UHSFT Over the last year, the MND Association has been campaigning for people with SOD1 motor neurone disease to have access to tofersen.

Read an update below. https://t.co/G2j93CYucz

[MND Research @mndresearch]

Day 9 🎄#2025wrapped

In July, we heard the news that Tofersen was approved by Medical and Healthcare products Regulatory Agency.

This marks the first drug to be approved for MND in the UK for 30 years.

Find out more about Tofersen 👇
https://t.co/fbzdUBWANL

[Caroline Nokes @carolinenokes]

So pleased that @IanByrneMP raised the issue of tofersen and the case of my constituent Lillia in #PMQs today - on behalf of all the #MND community - I'll be with Lillia's family in Downing Street later to hand deliver a letter to the PM

[MND Association @mndassoc]

This is us, the MND Association. Renewed, united and driven every day to make change happen.

Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research.

Because with MND, every day matters.

[MND Association @mndassoc]

The difference you could make in 2026. 🧡

👉 https://t.co/RXkDDC76qi

#MND

[MND Association @mndassoc]

Catch our wonderful patron @CharlotteHawkns on Celebrity Mastermind this evening on BBC 2 at 7:35pm, raising money for the fight against MND. 🧡

We can’t wait to see how she got on! 👀

#mastermind #celebritymastermind #MND

https://t.co/gENA6ak6h4

[MND Education @mndeducation]

We have developed a new infographic on managing muscle problems in #MND!

The publication is designed to give professionals a practical tool that summarises NICE recommendations about managing cramps, stiffness and spasticity

Learn more on https://t.co/tR5gyGhSu9