#pwME#MyalgicEncephalomyelitis Colleen discusses a new study. Low Blood Volume: critical M.E. symptom, studied for decades, but needs more attention. See also Hillary Johnson's Substack on this.
New Year - 2026 https://t.co/lm6lq7drg4
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#PwME Very wise words about #MyalgicE#MyalgicEncephalomyelitis and the holiday season. Take care and be cautious, all of you. Slow and steady. Thank-you, Colleen Steckel.
Holiday Greetings 2025 https://t.co/Hx8A6l2TiU
#MyalgicEncephalomyelitis#pwME#EncefalomielitisMialgica
Latest news for people in the U.S., regarding healthcare policies. An important and helpful read for anyone in the #MyalgicE or disability community. Thank-you Colleen Steckel.
News: 2025 Nov 15 https://t.co/Gl4fPnoOaW
I loved Mindy Kitei's new book, "Shots in the Dark," an unsparing look at ME, "long vax," and long Covid--and medicine's failure to address them. Kitei surveys the literature, chronicles NIH + CDC's dismal response and boldly separates facts from theories
https://t.co/Z1hoJzrr23
Glad to see Discover article about the Cornell's recent paper on cell-free RNA, but dismayed at yet another "tired person" image. Unfortunate that journalists who learn about ME/CFS aren't the ones who choose headlines and photos. https://t.co/XsSGEd065V
Sudden onset myalgic encephalomyelitis is a medical emergency. Hospitalization + IV antivirals, in lieu of so-far absent targeted therapy, may be opportunity to avoid life-long disability. Doctors need training to identify this disease when they see it. Do something, don't wait
#MEAwarenessDay For reliable #MyalgicE info, i recommend Hillary Johnson, Colleen Steckel, Jeannette Burmeister, Eileen Holderman, Joan McParland: some of the best patient/advocates. Not attention-seekers or opportunists. No agenda, no ego. Just want to help patients + proper Dx.
I wrote an in-depth analysis of the history of the NIH intramural ME study and how the outcome--a psych label for ME--was predetermined by NIH's putting extremist ME denier Walitt in charge.
https://t.co/q1QbbUbPZF
Much-anticipated Part 2 of Low Blood Volume in #MyalgicE. A crucial issue, ignored, not funded enough, that could provide Dx tests for us, as exist for MS & Sickle Cell Anemia, whose patients share some blood cell deformation issues with M.E. A must-read.
https://t.co/0RI9ipfvvO