ALPS - heArt sibLings ImPact Study

Interested in the impact on siblings of having a brother or sister with congenital heart disease @LizzieBichard

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

A little history about our project.....
My name is Lizzie, working as a nurse I am with children and families during difficult times. I always wonder what happens when they leave the hospital? how are they getting on at home? how do these experiences affect the whole family?

[Tiny Tickers Charity @tinytickers]

This #HeartWeek, please consider helping us on our mission to spread this potentially life-saving Think HEART message.

Knowing the signs of congenital heart disease (#CHD) could save a life. ❤

#tinytickersheartweek2025 #thinkheart #congenitalheartdisease #chdawareness

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

@szbench Thank you 😊

[CCNA @CongenitalCNA]

Helene thanked Di @diccna with a gift for her many years supporting nurse education and as founding member of the CCNA - so many of us have been supported by Di through our careers, so this was very special thanks 👏🤩

[Dr Elizabeth Bichard (RN) @LizzieBichard]

Thanks to @CongenitalCNA for the opportunity to discuss the findings from the heart siblings impact study @AlpsHeart in Dublin @bcca_uk
Delighted to be an abstract winner but more importantly to fly the flag for siblings, we won't stop talking about it, watch this space!

[CCNA @CongenitalCNA]

Congratulations to our abstract winners yesterday Helene Murchan for her poster and @LizzieBichard @AlpsHeart for her oral presentation @bcca_uk

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

Wonderful day sharing ALPS findings at @bcca_uk @CongenitalCNA in Dublin. Great to see some familiar faces and hear some inspirational professionals who have a passion for Children with CHD and their families 💛💚💜

[Prof Kerry Gaskin @GaskinKerry]

This afternoon starts with three abstract presentations - National audit of CYP cardiac nursing roles, children requiring sedation and experience of siblings @WalshForster @anna_annadi @Jenzer001 @LizzieBichard @AlpsHeart @CongenitalCNA @bcca_uk

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

@CongenitalCNA @bcca_uk See you later! Delighted to be included, thank you 😊

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

Today! Very exciting 😀

[CCNA @CongenitalCNA]

We’re really looking forward to the CCNA conference tomorrow - lots of great speakers. Are you joining us? Let us know in the comments @bcca_uk

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

Delighted to have an abstract accepted to discuss ALPS results!
Let's hear it for the siblings
See you in Dublin 🙌🏼
@CongenitalCNA @bcca_uk

[CFS Events - Medical Educational Events @Med_EventsCFS]

Less than 8 weeks to go until #BCCA2024!
Register now to secure your place & book your flights to #Dublin . The next 50 people to register can use the code: FIRST50 to get £20 off!
https://t.co/Zz1UshkP3N
#medicalmeeting #cardiology #MedEd #Event #networking

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

Great document to help parents support siblings with their feelings! @Sibs_uk
https://t.co/v1fpYpuBre

[Dr Pippa Sipanoun @Pippa_FS]

A huge thank you to all the fabulous YPF members, the Patient Safety Partners, GOSH Arts, and all who supported our successful Digital Inclusion workshop 🌟#GOSHYPF #PSPs #healthinequalities #GOSHArts @GoodThingsFdn @GOSHLearnAcad

[Julie Menzies @jmenzies1]

Presenting #patientpublicinvolvement #PPI from our @NIHRresearch feasibility grant to explore the feasibility of a #PedsICU platform @kerry_woolfall @pus27 @pic_pram @ICNARC @PaulMouncey @Doug_Gould1
@ESPNIC_Society #ESPNIC2024 Paper detailing all currently under review

[Prof Kerry Gaskin @GaskinKerry]

Great to see our paper has been published about dental advice for CYP with CHD @CongenitalCNA

[Prof Kerry Gaskin @GaskinKerry]

It's my last day @gloshospitals today! Here's an overview of our achievements over 18 months of NMAHP research culture, capacity, capability building @100_m_p_h @CraigBradleyRN @suz_cro @SLovett81 @GHFT_Excellence @uow_TCSNM @teamCNO_ @drjoanne_cooper

[Children's Hearts UK @C_hearts_UK]

CHF are proud to be part of The Newborn Screening Collaborative and share 'A Rare Find'.
This film is just one part of a broader campaign to push the subject of screening and to work towards positive progress within the current UK screening programme.🩷
#NewbornScreening

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

Fantastic podcast on supporting siblings of children with additional needs! Focus on communication + information sharing which mirrors findings from the heArt sibLings impPact Study
(ALPS)
#congenitalheartdisease
#chdawareness
@echoukcharity @CHFed @LHM_UK
https://t.co/Bf5AYEKa4F

[ECHO @echoukcharity]

The Happiness Hub is a valuable resource where you can access all our online workshops, filled with insightful content and practical tips. 💙 For more information visit: https://t.co/ln3dnQ6W8n

[Children's Hearts UK @C_hearts_UK]

World Mental Health Day
Join one of our steering groups to be part of our community. Your participation in a steering group will help us to monitor how well we are reaching our organisational aims.
Contact us now for more information on how to join.
#WorldMentalHealthDay23

[Osama Hosheh @OsamaHosheh]

The September collection from @PICJournalWatch is now ready to view on this link https://t.co/ssREoMjHWp including AricleOfTheMonth: https://t.co/X7cogtGpbR. Range of #PARDS #Renal #Neurology #CICU & #Retrieval @Dr_Hari_Krishna @DrToyinOcholi #PCCS2023