If you are an able-bodied person reading this, please consider the notion that if you knew the world was about to end, and no one believed you, so you couldnโt save yourself or others, how would you feel?
Putting our lives on pause, being housebound/bed bound, excluded from everything, itโs a different type of pain. One that no one understands, making it even more isolating. Sometimes the illness itself is only half the battle. #chronicillness#chronicpainramblings#chronicpain
(2/2) Our bodies can take away the things we love most, and no one realises that until it hits them. Itโs all totally unexplained and weโre left to deal with it on top of everything else. Chronic illness is honestly draining in so many ways! #chronicpainramblings#alwaysinpain
Does the grief just hit anyone else suddenly? When you realise you wonโt be able to do old hobbies, relive some of your favourite memories, just have a day where you arenโt always wired on to think about meds, pain and exertion etc. CONTINUED (1/2) #chronicpain#chronicillness
Daily things chronically ill and disabled people experience that most don't:
- Pain, fatigue and other symptoms
- Not remembering how pain free feels
- Needing to rest after small tasks
- Taking daily meds
- Constant medical appointments
- Not having access needs met
- Ableism